Tips to conserve energy
| Posted: April 14th 2009 | |
|
janice |
Print I have found through the years that i have made alot of changes, in the way i do things, mostly due to pain, fatigue and weakness, and always being cold.. Finding out i had Mito, i now know why i made those changes sub-conciously. There are probably many. One example that i think is funny, is every night i steal the covers! I hold on tight to my corner, and roll. If i get a cool draft, it wakes me up, and thats it. No more sleep, i am awake. I have also found out that with a lower basal body temp. it goes even lower at night. This being my new excuse for stealing the covers! My husband thought that a King size wool blanket and Iderdown would eliminate this problem for him. WRONG! ........just more covers for me to burrow and roll in! The idea is to get him to go to bed first and warm up my side in the spring and summer. In the colder months, i turn on the electric blanket 20 min.s before i go to bed. I also sleep better when i eat something light before bed.? As much as i would prefer to drink cool or cold water, it takes energy to warm it up, so therefore i drink room temp water. Dressing warm enough, so your body doesn't have to use so much energy creating warmth. (I'll have to sit down and write a list, i can't think right now, as there are so many.) |




Laundry- I use a laundry bag
Submitted by janice on Tue, 04/14/2009 - 11:38pm.
Have you considered a
Submitted by Tina_EvesMum on Thu, 04/16/2009 - 12:45am.
Tina Mum of 5 children Eve has just been given a suspected diagnosis of Mitochondrial Cytopathy.
I do not know what the future holds but I am glad I know who holds the future!
Fortunately for me, I don't
Submitted by janice on Thu, 04/16/2009 - 10:40am.
This is great! :) We need
Submitted by lorimar on Thu, 04/16/2009 - 1:37pm.
I just wanted to mention,
Submitted by janice on Thu, 04/16/2009 - 1:49pm.
I just wanted to mention, that I hope I do not offend anyone, by taking light of my disabilities. I know how scared alot of people are, and i share your frustrations, but for my own survival if I did not take this aproach for the last 30 years,(when they kept telling me it was all in my head, and i knew it wasn't) I would of gone crazy! Stress of course makes it worse, so I choose to make light of what is happening to me. Reading the Mito Clinicians guide,(over & over) all my complaints of the last 30 years, are listed in there. When something does go wonky, i don't panic, because i know( more or less) what is happening, and have actually assisted my G.P. with direction. I still search for deeper answers to the Mito questions, and am still finding ways to improve my life, living with MELAS. (my brother with MELAS, has no idea what is happening with himself,and stresses himself to the point of triggering more mito strokes.( Iv'e watched it happen 3 times) The neurologist says that maybe it is best he doesn't know.)I myself like knowing, and have not had any Mito strokes to date. Letting go of stress is very important! I may be cold blooded (ha)(autonomic dysregulation) but I do have a warm heart, and would never want to offend anyone! Hugs to all.
Janice in 20 years of caring
Submitted by Tina_EvesMum on Thu, 04/16/2009 - 2:33pm.
Tina Mum of 5 children Eve has just been given a suspected diagnosis of Mitochondrial Cytopathy.
I do not know what the future holds but I am glad I know who holds the future!
Thanks Tina, Glad I'm not
Submitted by janice on Thu, 04/16/2009 - 2:56pm.
Thanks Tina, Glad I'm not alone!
My family loves to laugh.
Submitted by cellolover on Thu, 04/16/2009 - 6:37pm.
Rachel- I have abnormalities in Complex I,II, and V. I also married a wonderful man on June 5, 2010.
Suddenly I realized that
Submitted by cellolover on Thu, 04/16/2009 - 7:15pm.
Rachel- I have abnormalities in Complex I,II, and V. I also married a wonderful man on June 5, 2010.
LOVE IT! I can use that one
Submitted by janice on Thu, 04/16/2009 - 8:07pm.
Your Uncle has got that
Submitted by janice on Thu, 04/16/2009 - 8:18pm.
Thank you so much everyone.
Submitted by Anthonys mom on Fri, 04/17/2009 - 12:09am.
Oh Wow, I hope I didn't
Submitted by lorimar on Fri, 04/17/2009 - 5:19pm.
My husband's nickname for me
Submitted by beck7422 on Sat, 04/18/2009 - 2:56am.
Sometimes I fall on the
Submitted by lorimar on Sat, 04/18/2009 - 11:07am.
I do that also Lori with all
Submitted by janice on Sat, 04/18/2009 - 1:06pm.