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Dedication and Comment

DEDICATION AND COMMENT, from authors Margaret Klehm, CPNP and Mark Korson, MD

Metabolic Program, Floating Hospital for Children at Tufts Medical Center

 

This guide is dedicated to our patients and families

who are also our teachers and our inspiration.

Funding for this resource was provided solely from community donations to MitoAction.  Please show your support for by making a donation in honor of the dedicated clinicians caring for the adults and children affected by "Mito".

 

Thank your for your interest in mitochondrial disease!  This community of patients is terribly under-recognized and underserved.  There are simply not enough clinicians aware of mitochondrial disease, or who will play an active role in the care of these patients.  As a result, it is too often the patient or the family member who becomes the de facto primary care provider.

 

This manual was written to provide concise, clinically-relevant background information about mitochondrial disease in general.  Its primary target includes general providers and non-genetic specialists who may be following one or more patients with energy disorders but who have no background in mitochondrial medicine.  When these clinicians hear about patient concerns, the knee-jerk response is frequently, "call your mitochondrial specialist!"  It is our hope that this manual provides a way of thinking about some of the more common symptoms mitochondrial patients develop so that non-mitochondrial clinicians can play a more active role in their care.

 

The manual is not intended as a detailed source of information, and so does not replace the need for having a physician skilled in mitochondrial medicine to be involved in a patient's care.

 

Your feedback is welcome.  We continue to strive for clinical, practical approaches that improve the well-being of mitochondrial patients and their families.

 

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