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Developing an Understanding of the Mitochondrial Patient

It is easy to understand how a clinician can quickly feel overwhelmed when taking on the care of a new patient with mitochondrial disease.  First it is rare that the primary provider has even heard of mitochondrial disease, so her/his having a base of knowledge about or experience with these disorders is non-existent.  There are few resources available that can aid in the details of such a patient's care.  Mitochondrial patients have multiple active issues with several subspecialists involved in the case.  The patient's parents (especially the mother who is usually the primary caregiver), or the adult patient's family members, are often desperate for guidance in addressing the many problems and are looking for hope in the medical turmoil in which they find themselves.

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