Letter From the President

Welcome to MitoAction. We hope that you familiarize yourself with our site. We strive to offer both a wealth of information about Mitochondrial disease as well as support and advocacy for patients and families affected by "Mito".

As a young organization, we are striving to meet the needs of “Mito families” everywhere. We are based in New England yet nationally focused. We are committed to creating and funding projects that reach across the country. Most recently our efforts have included funding a wonderful children’s book about a young boy getting a feeding tube (When Jeremy Jones’ stomach stopped working). And coming this summer we look forward to the release of our Reference Guide for Primary Care Physicians. Help us continue to fund exciting projects like these through online donation or one of the many events that support MitoAction (donate here).

There are many ways to become involved with MitoAction. Whether you are new to this “journey” and just need a friendly voice to talk to (our Mito411 program), are looking to hear concrete experience and ideas for coping (our Living with Mito series) or would like to join one of our program committees (contact director@mitoaction.org), there is a place for you.

As mom to my beautiful 5-year-old daughter, Gwen (complex 1 Mito) I know first hand the value and power of connecting with others. Together we can make a difference.

Kim
Kim Lorimier, President
president@mitoaction.org