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In Living with Mitochondrial Disease you will find support and resources for your journey.

Getting started can be overwhelming -- here are some areas we suggest you check out first!


Tips for Living with Mito Series: articles written for and by Mito families

Moving On With Mito, A Guide for Teens and Young Adults Living with Mitochondrial Disorders

Mito 411: a toll-free phone support service for families by families

Clinician's Guide: a free online resource written to help doctors and nurses to understand and manage mitochondrial disease.  Requires registration and acceptance of our terms of use

Vitamin Supplement information: also known as the "Mito cocktail"

MitoAction blog: more than just opinions, but actually a wealth of info related to many common issues like heat intolerance, gut dysfunction, the latest research and clinical trials, etc.

Emergency Room Protocol Letter (download here)

Podcasts of every MitoAction meeting and guest speaker: this link opens iTunes

Tools for School: including letters, checklists, and articles specific to supporting the school-age kiddo who has mitochondrial disease

Adult Advocacy Coalition: click to send an email

Living with Mito is at the heart of MitoAction's mission. By creating support programs and accessing the experiences of Mito families, we hope we can improve quality of life for every adult and child who is living with mitochondrial disease!

Mito Patient and Family Socials: We will help you create an event that fosters community, support, and friendship.