In Living with Mitochondrial Disease you will find support and resources for your journey.

Getting started can be overwhelming -here are some areas we suggest you check out first!


Online Community for Patients, Parents, & Teens(a casual forum where you can read and post questions)

Tips for Living with Mito Series(articles written for and by Mito families)

Mito 411 program (a 1-800 phone support service for families by families).

(a free online resource written to help doctors and nurses to understand and manage mitochondrial disease.  Requires registration and acceptance of our terms of use)

Vitamin Supplement information
(also known as the "Mito-cocktail")

the MitoAction blog (more than just opinions, but actually a wealth of info related to many common issues like heat intolerance, gut dysfunction, the latest research and clinical trials, etc.)

Emergency Room Protocol Letter (download here)

Podcasts of every MitoAction meeting and guest speaker (this link opens iTunes) (to get to the audio files without iTunes, click here)

Tools for School (including letters, checklists, and articles specific to supporting the school-age kiddo who has mitochondrial disease)

Adult Advocacy Coalition (click to send an email)

Living with Mito is at the heart of MitoAction's mission. By creating support programs and accessing the experiences of Mito families, we hope we can improve quality of life for every adult and child who is living with mitochondrial disease!

Mito Patient and Family Socials  We will help you create an event that fosters community, support, and friendship.