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Publications

The Mitochondrial Disease Action Committee ("MitoAction") is a group of patients, family and friends living with or caring for individuals with mitochondrial disease. We have joined together with top clinicians from Mass General Hospital, Boston Children's Hospital, and Tufts-New England Medical Center to improve the lives of those affected by "Mito." MitoAction is committed to providing relevant and current educational resources and publications for parents, patients, therapists, educators, physicians, and nurses.

In this section you will find...

Support Books

Children's G-tube book-"When Jeremy Jones' Stomach Stopped Working": An illustrated story for children, parents and siblings about g-tubes.

Living Well With Mitochondrial Disease: A Handbook for Patients, Parents, and Families  

Stories and Advice from Real Patients and Families

Reference guide for health professionals

Mitochondrial Disease Management Guide: A Reference for Pediatricians and Primary Care physicians 

Read MitoAction's Interviews with Health Professionals

http://www.mitoaction.org/taxonomy/term/4

Videos

 

Audio podcasts

 

For more information, questions, or publication questions, e-mail support@mitoaction.org