Publications Overview
MitoAction is a group of patients, family, and friends living with or caring for individuals with mitochondrial disease. We have joined with top clinicians from Mass General Hospital, Boston Children’s Hospital, and Tufts-New England Medical Center to improve the lives of those affected by "Mito." MitoAction is committed to providing relevant and current educational resources and publications for parents, patients, therapists, educators, physicians, and nurses.
MitoAction produces a variety of free print publications that can be ordered on this site and shipped to you free of charge, or in most cases reviewed and printed from the Adobe Acrobat version. To request any of our available publications, please contact director@mitoaction.org.
In this section you will find...
Support Books
Children’s G-tube book-"When Jeremy Jones’ Stomach Stopped Working": An illustrated story for children, parents, and siblings about g-tubes.
Patient Handbook-"Living with Mito" series: Tips and advice written by patients.
Reference book for health professionals
"Mitochondrial Disease Management Guide: A Reference for Pediatricians and Primary Care Physicians"
Read MitoAction's Interviews with Health Professionals
Updates on CoQ10. A conversation with compounding pharmacist Arthur Margolis, R.PH.
Articles
Mito Minutes - Written by board certified pediatrician Dr. Gwenn O’Keefe.
School Advocacy Manual/DVD
For more information or questions, e-mail director@mitoaction.org
To support projects like these publications, donate here.