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Related Podcasts and Videos

The podcasts and videos below discuss strategies for responding to false allegations of Munchausen Syndrome and medical child abuse as well as tips for effective advocacy as a patient or family member of one with a rare disease.  MitoAction is actively developing content in this area and will publish new offerings as they become available.


Becoming a Great Advocate: Advice for Complex Patients and Families, with Mark Korson, MD and Maggie Orr, RN

Get More from Every Doctor's Appointment, with Cristy Balcells, RN MSN, and Kathy Rivers, MD

Advocating Responsibly and Communicating Effectively, with Mannie Taimuty-Loomis, MA, LBS


Attorney James Ianiri and Advocacy Task Force member Jessica Shriver gave a terrific set of presentations on medical ethics and patient rights at a Mito Support of New England/MitoAction Family & Patient Social on March 22, 2014.  Click here to watch the video.


Return to Advocacy Task Force Overview Page