Stay Up to Date! Like us on Facebook  and Twitter  for the latest news and announcements    

Staff

Meet the MitoAction staff: people committed to improving the everyday lives of those affected by mitochondrial disease!

MitoAction Staff Members

Kira Mann, Chief Executive Officer

Kira brings with her over 25 years of nonprofit experience and has championed growth within various patient advocacy organizations, including the Alzheimer’s Association and the Cutaneous Lymphoma Foundation. Most recently, she served as the Director of Development for Inheritance of Hope, supporting families facing the loss of a parent due to terminal illness. Kira will help MitoAction steward key funding opportunities, strengthen the organization’s business development and governance, and work with the team and the Board of Directors to increase MitoAction’s national impact and presence in the areas of awareness and education of mitochondrial disease. Kira is eager to engage with all members of the mitochondrial disease community to facilitate continued growth of the organization and share in our passion to improve the lives of those affected by this rare disease. “I am honored to join this passionate team and I look forward to continuing the growth and accomplishments of the staff, Board of Directors, and the MitoAction community,” Kira said. You can reach Kira at Kira@mitoaction.org.

MaryBeth Hollinger, Director of Education, Support & Advocacy

MaryBeth’s family has been touched by mitochondrial disease and this personal connection motivates her passion to serve the community. MaryBeth spearheads the Mito 411 program, moderates weekly support groups and educational activities, engages with the broader community to assist with awareness and expansion of our education initiatives, and ensures that MitoAction is responding to the issues and concerns facing the mitochondrial community. "Families battling Mito feel alone, isolated, and, at times, targeted because of the true lag in understanding about this disease," MayBeth said. "Being able to offer support, information, and advocacy to other Mito families one-on-one through Mito 411 and the Friday support groups, and increasing availability of educational information has helped me find strength, grow, and give. I love how we share and find understanding and true empathy. I hope to share knowledge and advocacy skills to empower others."MaryBeth can be reached at mito411@mitoaction.org.

 Ginger DeShaney, Director of Operations and Communications

Ginger had never heard of mitochondrial disease until she started working for MitoAction after a long newspaper career. While Mito doesn’t affect her family, she has been welcomed into the Mito community with open arms. Ginger oversees Mito Socials, patient outreach (including sending awareness and educational materials), the Marcel’s Way Family Fund, camper and scholarship outreach, and the MitoAction Memories group. She also highlights our patient community in our Patient Spotlights. If you know of an inspiring patient or caregiver for a story, need materials to raise awareness, want to host a Social, or don’t know where to start on your journey, please contact Ginger at support@mitoacdtion.org.

Shawney Lamm, Director of Special Events and Fundraising

Shawney leads the charge for our signature events: the MitoAction Energy Walk & 5K and our Derby Day Benefits for Mito. Shawney is excited to work with the mitochondrial disease community to launch events across the country to increase awareness of Mito and raise funds to support the programs and services MitoAction provides. If you are interested in hosting an event, volunteering, or have ideas, please contact Shawney at shawney@mitoaction.org.

 

Kristi Wees, Mito-Autism Task Force

Kristi is Chief Patient Advocacy Officer of Empowered Medical Advocacy. For MitoAction, she leads the quarterly Mito-autism conference calls, helps with contacting speakers for the Monthly Mito Expert Series, and fills in occasionally as moderator of the Friday support group calls. Kristi received her bachelor's degree in chemistry from The Pennsylvania State University, where she was one of the inaugural graduates of the Schreyer’s Honors College. She went on to complete her masters degree studies at UCLA in Chemistry. Utilizing her extensive industrial, academic and research experience, as well as, hands-on medical and clinical know-how, Kristi navigated her own daughter’s medical journey back to restored health. Through this process, Kristi became a passionate advocate for all children no matter what the diagnosis and all of her work is founded on the belief that every family deserves the best quality of life together with their child.

Jeannie Freeman, Manager of Finance

Jeannie joins the MitoAction team with more than 10 years of accounting experience. In 2012, she left her career at Plante Moran, one of the nation's largest certified public accounting and business advisory firms, to stay home and raise her two boys. She is excited to have found MitoAction and is committed to spreading awareness of mitochondrial disease. Jeannie is responsible for any accounting related questions and can be reached at jeannie@mitoaction.org.