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Meet the MitoAction staff: people committed to improving the everyday lives of those affected by mitochondrial disease!

MitoAction Staff Members

Kira Mann, Chief Executive Officer

Kira brings with her over 25 years of nonprofit experience and has championed growth within various patient advocacy organizations, including the Alzheimer’s Association and the Cutaneous Lymphoma Foundation. Most recently, she served as the Director of Development for Inheritance of Hope, supporting families facing the loss of a parent due to terminal illness. Kira will help MitoAction steward key funding opportunities, strengthen the organization’s business development and governance, and work with the team and the Board of Directors to increase MitoAction’s national impact and presence in the areas of awareness and education of mitochondrial disease. Kira is eager to engage with all members of the mitochondrial disease community to facilitate continued growth of the organization and share in our passion to improve the lives of those affected by this rare disease. “I am honored to join this passionate team and I look forward to continuing the growth and accomplishments of the staff, Board of Directors, and the MitoAction community,” Kira said. You can reach Kira at


Jamie Derosier, Director of Patient and Family Outreach 

Jamie is a Mito Mom that turned her pain into her power to help families affected by this disease.  Her passion is to help Patients and Families find their voice while advocating and ensure they know you are not fighting alone.  Jamie looks forward to giving back to a community that rallied around her family.  If you hear of a patient in need of support, want to set up a social, need materials and help with raising awareness,  or just need someone along your journey, please reach out to her at

Kristi Wees, Mito-Autism Task Force

Kristi is Chief Patient Advocacy Officer of Empowered Medical Advocacy. For MitoAction, she leads the quarterly Mito-autism conference calls, helps with contacting speakers for the Monthly Mito Expert Series, and fills in occasionally as moderator of the Friday support group calls. Kristi received her bachelor's degree in chemistry from The Pennsylvania State University, where she was one of the inaugural graduates of the Schreyer’s Honors College. She went on to complete her masters degree studies at UCLA in Chemistry. Utilizing her extensive industrial, academic and research experience, as well as, hands-on medical and clinical know-how, Kristi navigated her own daughter’s medical journey back to restored health. Through this process, Kristi became a passionate advocate for all children no matter what the diagnosis and all of her work is founded on the belief that every family deserves the best quality of life together with their child.

Jeannie Freeman, Finance and Operations Manager

Jeannie joins the MitoAction team with more than 10 years of accounting experience. In 2012, she left her career at Plante Moran, one of the nation's largest certified public accounting and business advisory firms, to stay home and raise her two boys. She is excited to have found MitoAction and is committed to spreading awareness of mitochondrial disease. Jeannie is responsible for any accounting related questions and can be reached at