Meeting Announcements

October MITO Meeting: Tummy Troubles

Cristy Balcells — Wed, 01 Oct 2008 06:02:24 -0700

MITO Meeting: MONTHLY INTERNATIONAL TELECONFERENCE OUTREACH

September MITO Meeting: "Mitochondria - the Big Picture"

Cristy Balcells — Wed, 20 Aug 2008 08:32:13 -0700

September kicks off an exciting month for the mitochondrial disease community. International Mitochondrial Disease Awareness week (September 21-28) inspires many to renew their commitment to actively raise awareness and support for the many adults and children who are affected by mitochondrial disease.

August MITO meeting: CoQ10 & Creatine

Cristy Balcells — Tue, 29 Jul 2008 08:33:53 -0700

MITO Meeting: MONTHLY INTERNATIONAL TELECONFERENCE OUTREACH

Join us this month with Dr. Fran Kendall from Emory University Department of Human Genetics as we dig deeper into confusion surrounding two components of the "Mito Cocktail": Coenzyme Q10 and Creatine.

July 2008 Meeting: Pain

Cristy Balcells — Mon, 30 Jun 2008 07:28:25 -0700

Listen to the audio recording of this meeting

When a person is diagnosed with cancer, several keywords probably come to mind. Chemotherapy, metastasis, remission, radiation...and pain.

What are the keywords we automatically refer to when we hear "mitochondrial disease"?

"Mito...what?"

Too Many Doctors?

Cristy Balcells — Wed, 21 May 2008 11:57:27 -0700

Many adults and children with mitochondrial disease find that they are overwhelmed by multiple specialists. The cardiologist, the gasteroenterologist, the endocrinologist, the neurologist as well as the pediatrician and the metabolic specialist are all expected to coordinate care for the patient and his or her confusing array of symptoms. In reality, the patient (or parent) too often becomes the gatekeeper of all the information, and are frequently frustrated by the challenges of coordinating multiple specialists.

Heat Intolerance & Mitochondrial Disease

admin — Tue, 22 Apr 2008 00:00:00 -0700

It’s getting HOT in here!

Join us May 2nd at noon eastern time for a free conference by telephone to discuss causes, symptoms, and strategies to help with heat intolerance for the child or adult with mitochondrial disease.

Special guest Maggie Orr, RN MSN MEd, will help the group understand some of the causes and symptoms of heat intolerance in people living with mitochondrial disease. The owner from Silver Eagle Outfitters will also be available to answer questions about cooling vests, a solution used successfully by many Mito patients!

Dysautonomia: Troublesome symptoms for Mito patients

admin — Tue, 01 Apr 2008 00:00:00 -0700

April 2008

This month, MitoAction welcomes Dr. David Holtzman to our international toll-free teleconference to discuss “dysautonomia”.