News
Camp Korey's Mito Week in Seattle, WA
- Aug 4, 2010
- Comments: 0
Muscle Biopsy Testing for Mitochondrial Disease
For many years, muscle biopsy has been considered the "best" way to obtain an accurate diagnosis of mitochondrial disease. Muscle biopsy is costly, it is invasive, and is occasionally controversial with results that can be difficult for patients and families to understand.
- Jul 6, 2010
- Comments: 2
Mitochondrial Disease Awareness Week 2009
CELEBRATE INTERNATIONAL MITOCHONDRIAL DISEASE AWARENESS WEEK
September 20 - September 26, 2009 is International Mitochondrial Disease Awareness Week. During this week we renew our commitment to educate, support and advocate on behalf of mitochondrial disease patients and their families.
- Sep 21, 2009
- Comments: 0
Monkeys with Mito have Normal Babies - with a little help
Cristy's note - Rob from Bloomberg News called me this week and I connected him with Vamsi Mootha for an expert opinion. What do YOU think? Post a comment- share your thoughts!
Gene Mix in Monkeys Fixes Defects, Opens New Ethics Debate
Share | Read more...- Aug 27, 2009
- Comments: 3
Camp Korey hosts Week for Kids with Mitochondrial Disease!
August 10-14, 2009
Camp Korey, near Seattle Washington, is hosting a week dedicated to kids with mitochondrial disease. MitoAction is proud to partner with Camp Korey by sponsoring a camper and helping financially to offset travel and other camp expenses. MitoAction Board of Directors member Gordon Russell is a counselor at Camp Korey this week, and will be updating us daily with pictures and stories about this once-in-a-lifetime opportunity.
- Aug 10, 2009
- Comments: 1
Extreme Clinic Makeover 2009
ABC's Extreme Home Makeover & the Boston Bruins Foundation work with MitoAction for the makeover of the Tufts Medical Center Metabolism Clinic
July 2009, Boston MA
- Jul 6, 2009
- Comments: 0
A Renewed Commitment & A Fresh Look for MitoAction
Once in a while, you get a great opportunity.
Today, we are really excited to show off our new logo and take you on a tour of MitoAction's history.
2005 MitoAction Logo
- Jun 30, 2009
- Comments: 2
Autism & mitochondrial disorders: How much do we really know?
Listen to the audio recording of this meeting here
- Jan 29, 2009
- Comments: 6
Highlights from the MitoAction Walk 08
September 21st, 2008
Cambridge, Massachusetts615 people came together for one cause, and the result was incredible!
Read the 2008 Mitochondrial Disease Awareness Week Press Release
Five years ago, before MitoAction even existed as an organization, a family who is dealing with the diagnosis of mitochondrial disease may have been alone in their efforts to understand and find support and advocacy for the disorder.
- Sep 26, 2008
- Comments: 0
Rocco, You're Not Alone
Congratulations Rocco on making it to the World Series! We continue to offer our encouragement and support.
Original Post August 8, 2008
Tampa Rays MLB player Rocco Baldelli Living with Mitochondrial Disease
He's in the news. His symptoms are vague. He looks tired.
- Aug 8, 2008
- Comments: 2
