News

Camp Korey's Mito Week in Seattle, WA

Cristy Balcells — Wed, 04 Aug 2010 11:01:22 -0700

Muscle Biopsy Testing for Mitochondrial Disease

Cristy Balcells — Tue, 06 Jul 2010 08:57:21 -0700

For many years, muscle biopsy has been considered the "best" way to obtain an accurate diagnosis of mitochondrial disease. Muscle biopsy is costly, it is invasive, and is occasionally controversial with results that can be difficult for patients and families to understand.

Mitochondrial Disease Awareness Week 2009

Cristy Balcells — Mon, 21 Sep 2009 11:50:04 -0700

CELEBRATE INTERNATIONAL MITOCHONDRIAL DISEASE AWARENESS WEEK

September 20 - September 26, 2009 is International Mitochondrial Disease Awareness Week. During this week we renew our commitment to educate, support and advocate on behalf of mitochondrial disease patients and their families.

Monkeys with Mito have Normal Babies - with a little help

Cristy Balcells — Thu, 27 Aug 2009 05:42:52 -0700

Cristy's note - Rob from Bloomberg News called me this week and I connected him with Vamsi Mootha for an expert opinion. What do YOU think? Post a comment- share your thoughts!

Gene Mix in Monkeys Fixes Defects, Opens New Ethics Debate

Share | read more

Camp Korey hosts Week for Kids with Mitochondrial Disease!

Cristy Balcells — Mon, 10 Aug 2009 13:58:22 -0700

August 10-14, 2009

Camp Korey, near Seattle Washington, is hosting a week dedicated to kids with mitochondrial disease. MitoAction is proud to partner with Camp Korey by sponsoring a camper and helping financially to offset travel and other camp expenses. MitoAction Board of Directors member Gordon Russell is a counselor at Camp Korey this week, and will be updating us daily with pictures and stories about this once-in-a-lifetime opportunity.

Extreme Clinic Makeover 2009

Cristy Balcells — Mon, 06 Jul 2009 11:40:02 -0700

ABC's Extreme Home Makeover & the Boston Bruins Foundation work with MitoAction for the makeover of the Tufts Medical Center Metabolism Clinic

July 2009, Boston MA

A Renewed Commitment & A Fresh Look for MitoAction

Cristy Balcells — Tue, 30 Jun 2009 08:06:15 -0700

Once in a while, you get a great opportunity.

Today, we are really excited to show off our new logo and take you on a tour of MitoAction's history.

2005 MitoAction Logo

Autism & mitochondrial disorders: How much do we really know?

Cristy Balcells — Thu, 29 Jan 2009 09:36:48 -0800

Listen to the audio recording of this meeting here

Highlights from the MitoAction Walk 08

Cristy Balcells — Fri, 26 Sep 2008 11:55:22 -0700

September 21st, 2008
Cambridge, Massachusetts

615 people came together for one cause, and the result was incredible!

Read the 2008 Mitochondrial Disease Awareness Week Press Release

Five years ago, before MitoAction even existed as an organization, a family who is dealing with the diagnosis of mitochondrial disease may have been alone in their efforts to understand and find support and advocacy for the disorder.

Rocco, You're Not Alone

Cristy Balcells — Fri, 08 Aug 2008 04:13:01 -0700

Congratulations Rocco on making it to the World Series! We continue to offer our encouragement and support.

Original Post August 8, 2008

Tampa Rays MLB player Rocco Baldelli Living with Mitochondrial Disease

He's in the news. His symptoms are vague. He looks tired.