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Becoming a Great Advocate: Advice for Parents & Adult Patients with Complex Needs
Becoming a great advocate: Advice for parents & patients with complex needs
Join us this month with Mark Korson MD and Maggie Orr RN MSN MEd from Tufts Floating Hospital for Children in Boston, MA to discuss the do's and don'ts of being an advocate.
Listen to this teleconference recording here- Mar 30, 2010
- Comments: 0
Coping with mitochondrial disease
How do you cope with the unpredictable, invisible disease?
TO LISTEN TO THE RECORDING OF THIS MEETING, CLICK HERE
- Sep 30, 2009
- Comments: 1
Mitochondrial Disease Awareness Week 2009
CELEBRATE INTERNATIONAL MITOCHONDRIAL DISEASE AWARENESS WEEK
September 20 - September 26, 2009 is International Mitochondrial Disease Awareness Week. During this week we renew our commitment to educate, support and advocate on behalf of mitochondrial disease patients and their families.
- Sep 21, 2009
- Comments: 0
Top Ten Back to School Tips for Kids with Mito
Is it time for school already?
- Aug 31, 2009
- Comments: 2
Munchausen by proxy Accusations in Children with Mitochondrial Disease
September MITO Meeting welcomes guest speaker Dr. Alex Flores from Tufts Floating Hospital for Children, Boston Massachusetts
- Aug 19, 2009
- Comments: 13
Camp Korey hosts Week for Kids with Mitochondrial Disease!
August 10-14, 2009
Camp Korey, near Seattle Washington, is hosting a week dedicated to kids with mitochondrial disease. MitoAction is proud to partner with Camp Korey by sponsoring a camper and helping financially to offset travel and other camp expenses. MitoAction Board of Directors member Gordon Russell is a counselor at Camp Korey this week, and will be updating us daily with pictures and stories about this once-in-a-lifetime opportunity.
- Aug 10, 2009
- Comments: 0
Extreme Clinic Makeover 2009
ABC's Extreme Home Makeover & the Boston Bruins Foundation work with MitoAction for the makeover of the Tufts Medical Center Metabolism Clinic
July 2009, Boston MA
- Jul 6, 2009
- Comments: 0
Home Nutrition Support - G-tubes, J-tubes, TPN
Help! G-tubes, J-tubes, TPN - Where do we begin?
June 5th, 2009
- May 27, 2009
- Comments: 0
Palliative Care in Mitochondrial Disease
Palliative care & hospice: Quality of Life
Dr. Pat O'Malley from Massachusetts General Hospital talks about long-term care and quality of life support for adults and children with mitochondrial disease.
- Mar 26, 2009
- Comments: 5
Ideas from an Occupational Therapist
JANUARY 2009
Listen to the recording of this meeting here
- Jan 5, 2009
- Comments: 0
