Special needs planning

by Cristy Balcells

March MITO Meeting:

Planning for your future with Mito...
a workshop for parents & adult patients

Monthly International Teleconference Outreach

Listen to the audio recording of this meeting

"It feels like each day is all I can handle - how can I possibly plan for the future??"

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Advice from a Disability Advocate

by admin

Wendy Helmka understands how important advance directives are for an adult patient with mitochondrial disease.

"The doctors told me that I would have died if I had not had the advance directive, or if I had not been able to go home with 24 hour nursing care. I would have been put in a nursing home where medicines used to treat my symptoms would have damaged my mitochondria even more, and may have killed me."

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