http://www.mitoaction.org/taxonomy/term/2 The taxonomy view with a depth of 0. en http://www.mitoaction.org/blog/special-needs-planning <h1>March MITO Meeting: <br /><br />Planning for your future with Mito... <br />a workshop for parents &amp; adult patients</h1> <h2><em>Monthly International Teleconference Outreach</em></h2> <p><a href="/podcasts/special-needs-planning-workshop-with-jack-raycroft" target="_blank"><em><strong><br /></strong></em></a></p> <p><a href="/podcasts/special-needs-planning-workshop-with-jack-raycroft" target="_blank"><em><strong>Listen to the audio recording of this meeting</strong></em></a></p><p><a href="http://www.mitoaction.org/blog/special-needs-planning">read more</a></p> http://www.mitoaction.org/blog/special-needs-planning#comments Adult Patients Education Legal Advocacy Living with Mito Meeting Announcements Wed, 25 Feb 2009 11:36:55 -0800 Cristy Balcells 579 at http://www.mitoaction.org http://www.mitoaction.org/blog/advice-a-disability-advocate <p>Wendy Helmka understands how important advance directives are for an adult patient with mitochondrial disease.<br /><br />"The doctors told me that I would have died if I had not had the advance directive, or if I had not been able to go home with 24 hour nursing care. I would have been put in a nursing home where medicines used to treat my symptoms would have damaged my mitochondria even more, and may have killed me."<br /><p><a href="http://www.mitoaction.org/blog/advice-a-disability-advocate">read more</a></p> http://www.mitoaction.org/blog/advice-a-disability-advocate#comments Legal Advocacy Tue, 26 Feb 2008 16:00:00 -0800 admin 52 at http://www.mitoaction.org