9 Tips to Ensure Your Insurer Pays Up

by Cristy Balcells

Frustrated with the run-around from health insurance companies? Join us this month with as we discuss strategies for advocating for the diagnosis, management, and treatment of your mitochondrial disease:

- Questions to ask when you receive a health insurance denial

- How to write and get help with an appeal

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Advocating Responsibly and Communicating Effectively

by Cristy Balcells

During a time when families with children with mitochondrial disease may face accusations of medical child abuse or munchausen's by proxy, it is incredibly important to advocate responsibly and communicate effectively. Join us this month with guest speaker Mannie Taimuty-Loomis, BS OD, MAHED and Executive Director of the Jonah & The Whale Foundation, Inc. to learn more and discuss:

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Support for Siblings of Children with Mito

by Cristy Balcells

Supporting the brothers and sisters of kids with special needs

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Caring for the Whole Patient

by Cristy Balcells

For someone who lives with mitochondrial disease, understanding the "big picture" is important.

LISTEN TO THE RECORDING OF THIS MEETING HERE!

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Becoming a Great Advocate: Advice for Parents & Adult Patients with Complex Needs

by Cristy Balcells

Becoming a great advocate: Advice for parents & patients with complex needs

Join us this month with Mark Korson MD and Maggie Orr RN MSN MEd from Tufts Floating Hospital for Children in Boston, MA to discuss the do's and don'ts of being an advocate.

Listen to this teleconference recording here

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Palliative Care in Mitochondrial Disease

by Cristy Balcells

Palliative care & hospice: Quality of Life

Dr. Pat O'Malley from Massachusetts General Hospital talks about long-term care and quality of life support for adults and children with mitochondrial disease.

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Ideas from an Occupational Therapist

Coordinating Care for Mito Patients: An impossible dream?