http://www.mitoaction.org/category/blog-categories/medical/coordinated-care The taxonomy view with a depth of 0. en http://www.mitoaction.org/blog/advocating-responsibly-and-communicating-effectively <p>During a time when families with children with mitochondrial disease may face accusations of medical child abuse or munchausen's by proxy, it is incredibly important to advocate responsibly and communicate effectively. Join us this month with guest speaker Mannie Taimuty-Loomis, BS OD, MAHED and Executive Director of the <a href="http://www.jtwf.org/">Jonah &amp; The Whale Foundation</a>, Inc. to learn more and discuss:</p><p><a href="http://www.mitoaction.org/blog/advocating-responsibly-and-communicating-effectively">read more</a></p> http://www.mitoaction.org/blog/advocating-responsibly-and-communicating-effectively#comments Coordinated Care Living with Mito Tue, 31 Jan 2012 13:08:53 -0800 Cristy Balcells 1376 at http://www.mitoaction.org http://www.mitoaction.org/blog/support-siblings-children-mito <p><strong>Supporting the brothers and sisters of kids with special needs</strong></p><p><a href="http://www.mitoaction.org/blog/support-siblings-children-mito">read more</a></p> http://www.mitoaction.org/blog/support-siblings-children-mito#comments Coordinated Care Living with Mito Meeting Announcements Support Tue, 28 Sep 2010 07:12:30 -0700 Cristy Balcells 1101 at http://www.mitoaction.org http://www.mitoaction.org/blog/caring-whole-patient <h2><img style="margin-left: 3px; margin-right: 3px; float: left;" src="/files//files/whole_patient_care.png" alt="Caring for the whole patient" width="172" height="172" />For someone who lives with mitochondrial disease, understanding the "big picture" is important.</h2><p><br /><strong><span style="background-color: #ffff99;"><a href="http://www.mitoaction.org/podcasts/caring-whole-patient" target="_blank">LISTEN TO THE RECORDING OF THIS MEETING HERE!</a></span></strong><br /><p><a href="http://www.mitoaction.org/blog/caring-whole-patient">read more</a></p> http://www.mitoaction.org/blog/caring-whole-patient#comments Coordinated Care Living with Mito Medical Meeting Announcements Support Treatment Tue, 31 Aug 2010 08:08:18 -0700 Cristy Balcells 1074 at http://www.mitoaction.org http://www.mitoaction.org/blog/becoming-great-advocate-advice-parents-adult-patients-complex-needs <h1>Becoming a great advocate: Advice for parents &amp; patients with complex needs</h1> <p><span style="font-size: medium;">Join us this month with Mark Korson MD and Maggie Orr RN MSN MEd from Tufts Floating Hospital for Children in Boston, MA to discuss the do's and don'ts of being an advocate.<br /><br /><strong><a style="background-color: #ffff00;" href="/podcasts/becoming-great-advocate">Listen to this teleconference recording here</a></strong></span></p><p><a href="http://www.mitoaction.org/blog/becoming-great-advocate-advice-parents-adult-patients-complex-needs">read more</a></p> http://www.mitoaction.org/blog/becoming-great-advocate-advice-parents-adult-patients-complex-needs#comments Adult Patients Coordinated Care Living with Mito Meeting Announcements Support Tue, 30 Mar 2010 11:26:01 -0700 Cristy Balcells 932 at http://www.mitoaction.org http://www.mitoaction.org/blog/palliative+care+in+mitochondrial+disease <h1>Palliative care &amp; hospice: Quality of Life</h1> <h2>Dr. Pat O'Malley from Massachusetts General Hospital talks about long-term care and quality of life support for adults and children with mitochondrial disease.</h2> <p style="margin: 0px 0px 10px; padding: 0px; line-height: 1.5;"><em><strong><p><a href="http://www.mitoaction.org/blog/palliative+care+in+mitochondrial+disease">read more</a></p> http://www.mitoaction.org/blog/palliative+care+in+mitochondrial+disease#comments Adult Patients Coordinated Care Living with Mito Medical Meeting Announcements Pain Support Treatment Thu, 26 Mar 2009 11:03:58 -0700 Cristy Balcells 608 at http://www.mitoaction.org http://www.mitoaction.org/blog/january-mito-meeting-ideas-occupational-therapist <p><strong>JANUARY 2009</strong></p> <p><span style="font-style: italic;"><a href="/podcasts/ideas-occupational-therapist-with-speaker-susan-orloff-otrl" target="_blank">Listen to the recording of this meeting here</a></span></p><p><a href="http://www.mitoaction.org/blog/january-mito-meeting-ideas-occupational-therapist">read more</a></p> http://www.mitoaction.org/blog/january-mito-meeting-ideas-occupational-therapist#comments Coordinated Care Education Medical Meeting Announcements Support Treatment Mon, 05 Jan 2009 11:34:25 -0800 Cristy Balcells 524 at http://www.mitoaction.org http://www.mitoaction.org/blog/coordinated-care-mitochondrial-disorders <p>&nbsp;</p> <p><span style="font-weight: bold;"><span style="font-size: small;">Too many doctors? Coordinated care for the patient with a mitochondrial disorder.</span></span></p> <p>&nbsp;</p> <p>Based on the MitoAction international teleconference meeting held June 6, 2008</p> <p><a href="/files/multiple-doctors-june-2008.mp3">Listen to the audio recording here</a></p> <p>&nbsp;</p><p><a href="http://www.mitoaction.org/blog/coordinated-care-mitochondrial-disorders">read more</a></p> http://www.mitoaction.org/blog/coordinated-care-mitochondrial-disorders#comments Coordinated Care Medical Mon, 09 Jun 2008 10:01:16 -0700 Cristy Balcells 164 at http://www.mitoaction.org