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 <title>Coordinated Care</title>
 <link>http://www.mitoaction.org/category/blog-categories/medical/coordinated-care</link>
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 <title>Becoming a Great Advocate: Advice for Parents &amp; Adult Patients with Complex Needs</title>
 <link>http://www.mitoaction.org/blog/becoming-great-advocate-advice-parents-adult-patients-complex-needs</link>
 <description>&lt;h1&gt;Becoming a great advocate: Advice for parents &amp;amp; patients with complex needs&lt;/h1&gt;
&lt;p&gt;&lt;span style=&quot;font-size: medium;&quot;&gt;Join us this month with Mark Korson MD and Maggie Orr RN MSN MEd from Tufts Floating Hospital for Children in Boston, MA to discuss the do&#039;s and don&#039;ts of being an advocate.&lt;br /&gt;&lt;br /&gt;&lt;b&gt;&lt;a style=&quot;background-color: #ffff00;&quot; href=&quot;/podcasts/becoming-great-advocate&quot;&gt;Listen to this teleconference recording here&lt;/a&gt;&lt;/b&gt;&lt;/span&gt;&lt;/p&gt;&lt;p&gt;&lt;a href=&quot;http://www.mitoaction.org/blog/becoming-great-advocate-advice-parents-adult-patients-complex-needs&quot;&gt;read more&lt;/a&gt;&lt;/p&gt;</description>
 <comments>http://www.mitoaction.org/blog/becoming-great-advocate-advice-parents-adult-patients-complex-needs#comments</comments>
 <category domain="http://www.mitoaction.org/category/blog-categories/adult-patients">Adult Patients</category>
 <category domain="http://www.mitoaction.org/category/blog-categories/medical/coordinated-care">Coordinated Care</category>
 <category domain="http://www.mitoaction.org/taxonomy/term/3">Living with Mito</category>
 <category domain="http://www.mitoaction.org/taxonomy/term/12">Meeting Announcements</category>
 <category domain="http://www.mitoaction.org/taxonomy/term/17">Support</category>
 <pubDate>Tue, 30 Mar 2010 11:26:01 -0700</pubDate>
 <dc:creator>Cristy Balcells</dc:creator>
 <guid isPermaLink="false">932 at http://www.mitoaction.org</guid>
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<item>
 <title>Palliative Care in Mitochondrial Disease</title>
 <link>http://www.mitoaction.org/blog/palliative+care+in+mitochondrial+disease</link>
 <description>&lt;h1&gt;Palliative care &amp;amp; hospice: Quality of Life&lt;br /&gt;&lt;/h1&gt;
&lt;h2&gt;Dr. Pat O&#039;Malley from Massachusetts General Hospital talks about long-term care and quality of life support for adults and children with mitochondrial disease.&lt;/h2&gt;
&lt;p style=&quot;margin: 0px 0px 10px; padding: 0px; line-height: 1.5;&quot;&gt;&lt;i&gt;&lt;b&gt;&lt;p&gt;&lt;a href=&quot;http://www.mitoaction.org/blog/palliative+care+in+mitochondrial+disease&quot;&gt;read more&lt;/a&gt;&lt;/p&gt;</description>
 <comments>http://www.mitoaction.org/blog/palliative+care+in+mitochondrial+disease#comments</comments>
 <category domain="http://www.mitoaction.org/category/blog-categories/adult-patients">Adult Patients</category>
 <category domain="http://www.mitoaction.org/category/blog-categories/medical/coordinated-care">Coordinated Care</category>
 <category domain="http://www.mitoaction.org/taxonomy/term/3">Living with Mito</category>
 <category domain="http://www.mitoaction.org/taxonomy/term/4">Medical</category>
 <category domain="http://www.mitoaction.org/taxonomy/term/12">Meeting Announcements</category>
 <category domain="http://www.mitoaction.org/category/blog-categories/medical/pain">Pain</category>
 <category domain="http://www.mitoaction.org/taxonomy/term/17">Support</category>
 <category domain="http://www.mitoaction.org/taxonomy/term/11">Treatment</category>
 <pubDate>Thu, 26 Mar 2009 11:03:58 -0700</pubDate>
 <dc:creator>Cristy Balcells</dc:creator>
 <guid isPermaLink="false">608 at http://www.mitoaction.org</guid>
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 <title>Ideas from an Occupational Therapist</title>
 <link>http://www.mitoaction.org/blog/january-mito-meeting-ideas-occupational-therapist</link>
 <description>&lt;p&gt;&lt;b&gt;JANUARY 2009&lt;/b&gt;&lt;/p&gt;
&lt;p&gt;&lt;span style=&quot;font-style: italic;&quot;&gt;&lt;a target=&quot;_blank&quot; href=&quot;/podcasts/ideas-occupational-therapist-with-speaker-susan-orloff-otrl&quot;&gt;Listen to the recording of this meeting here&lt;/a&gt;&lt;/span&gt;&lt;/p&gt;&lt;p&gt;&lt;a href=&quot;http://www.mitoaction.org/blog/january-mito-meeting-ideas-occupational-therapist&quot;&gt;read more&lt;/a&gt;&lt;/p&gt;</description>
 <comments>http://www.mitoaction.org/blog/january-mito-meeting-ideas-occupational-therapist#comments</comments>
 <category domain="http://www.mitoaction.org/category/blog-categories/medical/coordinated-care">Coordinated Care</category>
 <category domain="http://www.mitoaction.org/taxonomy/term/1">Education</category>
 <category domain="http://www.mitoaction.org/taxonomy/term/4">Medical</category>
 <category domain="http://www.mitoaction.org/taxonomy/term/12">Meeting Announcements</category>
 <category domain="http://www.mitoaction.org/taxonomy/term/17">Support</category>
 <category domain="http://www.mitoaction.org/taxonomy/term/11">Treatment</category>
 <pubDate>Mon, 05 Jan 2009 11:34:25 -0800</pubDate>
 <dc:creator>Cristy Balcells</dc:creator>
 <guid isPermaLink="false">524 at http://www.mitoaction.org</guid>
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<item>
 <title>Coordinating Care for Mito Patients: An impossible dream?</title>
 <link>http://www.mitoaction.org/blog/coordinated-care-mitochondrial-disorders</link>
 <description>&lt;p&gt; &lt;/p&gt;
&lt;p&gt;&lt;span style=&quot;font-weight: bold;&quot;&gt;&lt;span style=&quot;font-size: small;&quot;&gt;Too many doctors?  Coordinated care for the patient with a mitochondrial disorder.&lt;/span&gt;&lt;/span&gt;&lt;/p&gt;
&lt;p&gt; &lt;/p&gt;
&lt;p&gt;Based on the MitoAction international teleconference meeting held June 6, 2008&lt;/p&gt;
&lt;p&gt;&lt;a href=&quot;/files/multiple-doctors-june-2008.mp3&quot;&gt;Listen to the audio recording here&lt;/a&gt;&lt;/p&gt;
&lt;p&gt; &lt;/p&gt;&lt;p&gt;&lt;a href=&quot;http://www.mitoaction.org/blog/coordinated-care-mitochondrial-disorders&quot;&gt;read more&lt;/a&gt;&lt;/p&gt;</description>
 <comments>http://www.mitoaction.org/blog/coordinated-care-mitochondrial-disorders#comments</comments>
 <category domain="http://www.mitoaction.org/category/blog-categories/medical/coordinated-care">Coordinated Care</category>
 <category domain="http://www.mitoaction.org/taxonomy/term/4">Medical</category>
 <pubDate>Mon, 09 Jun 2008 10:01:16 -0700</pubDate>
 <dc:creator>Cristy Balcells</dc:creator>
 <guid isPermaLink="false">164 at http://www.mitoaction.org</guid>
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