Living with Mito
Advocating Responsibly and Communicating Effectively
During a time when families with children with mitochondrial disease may face accusations of medical child abuse or munchausen's by proxy, it is incredibly important to advocate responsibly and communicate effectively. Join us this month with guest speaker Mannie Taimuty-Loomis, BS OD, MAHED and Executive Director of the Jonah & The Whale Foundation, Inc. to learn more and discuss:
- Jan 31, 2012
- Comments: 0
2012 Mito Town Meeting
Read below for a recap of the "2012 Mito Town Meeting"
Everyone - parents, patients, family members and interested volunteers - is encouraged to call in and participate as we discuss important topics for the year.
- Jan 5, 2012
- Comments: 3
Service Dogs
How can a service dog help a child or adult patient with mitochondrial disease?
- May 27, 2011
- Comments: 2
IV (Venous) Use: Access and Complications
Join us this month to learn all about use of IV's for hydration, nutrition and medications.
When are they used? How? And what are potential complications?Download the Slides for this Presentation here
Listen to the recording here!
- Mar 21, 2011
- Comments: 0
Financial assistance for the Mito Cocktail
Mito Cocktail Financial Assistance
author: Heidi Coleman, “Cut the Red Tape” advocate
- Dec 6, 2010
- Comments: 1
Exercise
How can children, teens and adults with mitochondrial disease EXERCISE, especially if fatigue and exercise intolerance are hallmark symptoms of the disease?
Join us this month with Metabolic Nurse Educator Margaret O'Riley from Vancouver, British Columbia to learn more about the research - and practical solutions - surrounding exercise and mitochondrial disease.
- Oct 22, 2010
- Comments: 4
Support for Siblings of Children with Mito
Supporting the brothers and sisters of kids with special needs
- Sep 28, 2010
- Comments: 0
Caring for the Whole Patient
For someone who lives with mitochondrial disease, understanding the "big picture" is important.
LISTEN TO THE RECORDING OF THIS MEETING HERE!
- Aug 31, 2010
- Comments: 2
Camp Korey's Mito Week in Seattle, WA
- Aug 4, 2010
- Comments: 0
Muscle Biopsy Testing for Mitochondrial Disease
For many years, muscle biopsy has been considered the "best" way to obtain an accurate diagnosis of mitochondrial disease. Muscle biopsy is costly, it is invasive, and is occasionally controversial with results that can be difficult for patients and families to understand.
- Jul 6, 2010
- Comments: 2
