Living with Mito
Muscle Biopsy Testing for Mitochondrial Disease
For many years, muscle biopsy has been considered the "best" way to obtain an accurate diagnosis of mitochondrial disease. Muscle biopsy is costly, it is invasive, and is occasionally controversial with results that can be difficult for patients and families to understand.
- Jul 6, 2010
- Comments: 0
Nutrition for Mitochondrial Disease Patients
NUTRITION FOR MITOCHONDRIAL DISEASE PATIENTS
with Abby Usen MS RD from
Tufts Floating Hospital for Children, Boston MAListen to the recording of the meeting here
- Apr 14, 2010
- Comments: 1
Becoming a Great Advocate: Advice for Parents & Adult Patients with Complex Needs
Becoming a great advocate: Advice for parents & patients with complex needs
Join us this month with Mark Korson MD and Maggie Orr RN MSN MEd from Tufts Floating Hospital for Children in Boston, MA to discuss the do's and don'ts of being an advocate.
Listen to this teleconference recording here- Mar 30, 2010
- Comments: 0
Q&A with Compounding Pharmacists
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What is a compounding pharmacist?
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How do ingredients in the Mito cocktail different from a compounding pharmacist than an over-the-counter source?
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What are the side effects of the vitamins & supplements used to support adults and children with mitochondrial disease?
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Which vitamins and supplements are most commonly included in a treatment regimen?
- Mar 2, 2010
- Comments: 2
Tips for enjoying the holidays
December 2009
Are you OVERWHELMED?
Click here to listen to the free audio recording of this broadcast here or in iTunes
SPECIAL OFFER UNTIL JANUARY 31, 2010!
- Dec 2, 2009
- Comments: 4
Coping with mitochondrial disease
How do you cope with the unpredictable, invisible disease?
TO LISTEN TO THE RECORDING OF THIS MEETING, CLICK HERE
- Sep 30, 2009
- Comments: 1
Mitochondrial Disease Awareness Week 2009
CELEBRATE INTERNATIONAL MITOCHONDRIAL DISEASE AWARENESS WEEK
September 20 - September 26, 2009 is International Mitochondrial Disease Awareness Week. During this week we renew our commitment to educate, support and advocate on behalf of mitochondrial disease patients and their families.
- Sep 21, 2009
- Comments: 0
Top Ten Back to School Tips for Kids with Mito
Is it time for school already?
- Aug 31, 2009
- Comments: 2
Munchausen by proxy Accusations in Children with Mitochondrial Disease
September MITO Meeting welcomes guest speaker Dr. Alex Flores from Tufts Floating Hospital for Children, Boston Massachusetts
- Aug 19, 2009
- Comments: 13
Camp Korey hosts Week for Kids with Mitochondrial Disease!
August 10-14, 2009
Camp Korey, near Seattle Washington, is hosting a week dedicated to kids with mitochondrial disease. MitoAction is proud to partner with Camp Korey by sponsoring a camper and helping financially to offset travel and other camp expenses. MitoAction Board of Directors member Gordon Russell is a counselor at Camp Korey this week, and will be updating us daily with pictures and stories about this once-in-a-lifetime opportunity.
- Aug 10, 2009
- Comments: 0
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