http://www.mitoaction.org/taxonomy/term/3 The taxonomy view with a depth of 0. en http://www.mitoaction.org/blog/advocating-responsibly-and-communicating-effectively <p>During a time when families with children with mitochondrial disease may face accusations of medical child abuse or munchausen's by proxy, it is incredibly important to advocate responsibly and communicate effectively. Join us this month with guest speaker Mannie Taimuty-Loomis, BS OD, MAHED and Executive Director of the <a href="http://www.jtwf.org/">Jonah &amp; The Whale Foundation</a>, Inc. to learn more and discuss:</p><p><a href="http://www.mitoaction.org/blog/advocating-responsibly-and-communicating-effectively">read more</a></p> http://www.mitoaction.org/blog/advocating-responsibly-and-communicating-effectively#comments Coordinated Care Living with Mito Tue, 31 Jan 2012 13:08:53 -0800 Cristy Balcells 1376 at http://www.mitoaction.org http://www.mitoaction.org/blog/2012-mito-town-meeting <h4>Read below for a recap of the <span style="color: #008000; font-size: large;">"2012 Mito Town Meeting"</span></h4><h3><span style="font-size: small;">Everyone - parents, patients, family members and interested volunteers - is encouraged to call in and participate as we discuss important topics for the year.<p><a href="http://www.mitoaction.org/blog/2012-mito-town-meeting">read more</a></p> http://www.mitoaction.org/blog/2012-mito-town-meeting#comments Living with Mito Meeting Announcements Thu, 05 Jan 2012 07:29:29 -0800 Cristy Balcells 1365 at http://www.mitoaction.org http://www.mitoaction.org/blog/service-dogs <h2><span style="font-size: medium;"><strong>How can a service dog help a child or adult patient with mitochondrial disease?</strong></span></h2><p><span style="font-size: medium;"><strong><br /></strong></span></p><p><a href="http://www.mitoaction.org/blog/service-dogs">read more</a></p> http://www.mitoaction.org/blog/service-dogs#comments Living with Mito Medical Meeting Announcements Support Fri, 27 May 2011 12:17:45 -0700 Cristy Balcells 1292 at http://www.mitoaction.org http://www.mitoaction.org/blog/iv-venous-use-access-and-complications <h4>Join us this month to learn all about use of IV's for hydration, nutrition and medications. <br /><br />When are they used? How? And what are potential complications?</h4><p><span style="font-size: medium; color: #000000; background-color: #ffff00;"><strong><a href="http://www.mitoaction.org/files/Thrive Venous Access and Complications.pdf">Download the Slides for this Presentation here</a></strong></span></p><h2><a href="http://www.mitoaction.org/podcasts/mona-inocentes-discusses-iv-access" target="_blank">Listen to the recording here!</a></h2><p>&nbsp;</p><p><a href="http://www.mitoaction.org/blog/iv-venous-use-access-and-complications">read more</a></p> http://www.mitoaction.org/blog/iv-venous-use-access-and-complications#comments Living with Mito Medical Meeting Announcements Treatment Mon, 21 Mar 2011 09:37:47 -0700 Cristy Balcells 1220 at http://www.mitoaction.org http://www.mitoaction.org/blog/financial-assistance-mito-cocktail <h2 style="text-align: center;"><span style="font-size: medium;">Mito Cocktail Financial Assistance </span><br /><span style="font-size: small;"><em><span style="font-size: medium;">author: Heidi Coleman, “Cut the Red Tape” advocate</span><br /><p><a href="http://www.mitoaction.org/blog/financial-assistance-mito-cocktail">read more</a></p> http://www.mitoaction.org/blog/financial-assistance-mito-cocktail#comments Adult Patients Living with Mito Medical Mito Cocktail/Supplements Support Treatment Mon, 06 Dec 2010 06:09:57 -0800 Cristy Balcells 1137 at http://www.mitoaction.org http://www.mitoaction.org/blog/exercise <h2><strong>How can children, teens and adults with mitochondrial disease EXERCISE, especially if fatigue and exercise intolerance are hallmark symptoms of the disease?&nbsp; </strong></h2><h4>Join us this month with Metabolic Nurse Educator <span style="color: #333300;">Margaret O'Riley</span> from Vancouver, British Columbia to learn more about the research - and practical solutions - surrounding exercise and mitochondrial disease.</h4><p><a href="http://www.mitoaction.org/files/Mitochondrial Myopathy and exercise presentation.ppt" target="_blank"><span style="background-color: #ffff00;"><st<p><a href="http://www.mitoaction.org/blog/exercise">read more</a></p> http://www.mitoaction.org/blog/exercise#comments Adult Patients Living with Mito Medical Meeting Announcements Pain Treatment Fri, 22 Oct 2010 11:40:35 -0700 Cristy Balcells 1114 at http://www.mitoaction.org http://www.mitoaction.org/blog/support-siblings-children-mito <p><strong>Supporting the brothers and sisters of kids with special needs</strong></p><p><a href="http://www.mitoaction.org/blog/support-siblings-children-mito">read more</a></p> http://www.mitoaction.org/blog/support-siblings-children-mito#comments Coordinated Care Living with Mito Meeting Announcements Support Tue, 28 Sep 2010 07:12:30 -0700 Cristy Balcells 1101 at http://www.mitoaction.org http://www.mitoaction.org/blog/caring-whole-patient <h2><img style="margin-left: 3px; margin-right: 3px; float: left;" src="/files//files/whole_patient_care.png" alt="Caring for the whole patient" width="172" height="172" />For someone who lives with mitochondrial disease, understanding the "big picture" is important.</h2><p><br /><strong><span style="background-color: #ffff99;"><a href="http://www.mitoaction.org/podcasts/caring-whole-patient" target="_blank">LISTEN TO THE RECORDING OF THIS MEETING HERE!</a></span></strong><br /><p><a href="http://www.mitoaction.org/blog/caring-whole-patient">read more</a></p> http://www.mitoaction.org/blog/caring-whole-patient#comments Coordinated Care Living with Mito Medical Meeting Announcements Support Treatment Tue, 31 Aug 2010 08:08:18 -0700 Cristy Balcells 1074 at http://www.mitoaction.org http://www.mitoaction.org/blog/camp-koreys-mito-week-seattle-wa <p style="font-family: Verdana,Arial,Helvetica,sans-serif; font-size: 9px;">&nbsp;</p><p><a href="http://www.mitoaction.org/blog/camp-koreys-mito-week-seattle-wa">read more</a></p> http://www.mitoaction.org/blog/camp-koreys-mito-week-seattle-wa#comments Living with Mito News Support Wed, 04 Aug 2010 11:01:22 -0700 Cristy Balcells 1064 at http://www.mitoaction.org http://www.mitoaction.org/blog/muscle-biopsy-testing-mitochondrial-disease <p>For many years, muscle biopsy has been considered the "best" way to obtain an accurate diagnosis of mitochondrial disease.&nbsp; Muscle biopsy is costly, it is invasive, and is occasionally controversial with results that can be difficult for patients and families to understand. <img style="float: right; margin: 4px;" src="/files//files/medical_testing_web.jpg" alt="Muscle Biopsy Testing?" width="180" height="119" /></p><p><a href="http://www.mitoaction.org/blog/muscle-biopsy-testing-mitochondrial-disease">read more</a></p> http://www.mitoaction.org/blog/muscle-biopsy-testing-mitochondrial-disease#comments Adult Patients Diagnosis Living with Mito Medical Meeting Announcements News Symptoms Tue, 06 Jul 2010 08:57:21 -0700 Cristy Balcells 1024 at http://www.mitoaction.org