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Transitioning and Coordinating Care
From time to time, mitochondrial disease patients must transition care from one physician to another due to a household move, retirement of a practitioner, aging out of a pediatric practice or any number of other reasons. To facilitate such transitions, MitoAction has created and consolidated resources to help mitochondrial disease patients locate new physicians for their care.
MitoAction has developed a brief health history form to help patients consolidate often lengthy medical histories. This form is required by some practices before a transition may be made. Please download the template attached below and save it as a new document before entering the patient's health history.
MitoAction also is happy to provide suggestions to any mitochondrial disease patient who needs help with finding a doctor to manage their care. Please refer to the physician list here for possible options and feel free to contact firstname.lastname@example.org if you need additional assistance.
Please note that physician names listed on the physician list or otherwise provided by MitoAction are suggestions only; the patient or caregiver ultimately is responsible for selection of medical providers. MitoAction also has no input into or control over whether a particular physician agrees to provide care to specific patient.
For ideas regarding ongoing coordination of care between physicians and responsible advocacy and communication techniques, please refer to the "Navigating the Healthcare System" toolkit produced by members of MitoAction's Advocacy Task Force [under construction] or consult the following archived teleconferences hosted by MitoAction:
- Dr. Mark Korson, "Coordinating Care for Mito Patients - An Impossible Dream?" June 6, 2008
- Dr. Mark Korson and Maggie Orr, RN, "Becoming a Great Advocate - Advice for Parents and Adult Patients with Complex Needs," March, 30, 2010
- Mannie Taimuty-Loomis, MA, LBS, "Advocating Responsibly and Communicating Effectively," February 3, 2012
- Cristy Balcells, RN, MSN, and Dr. Kathy Rivers, "Get More from Every Doctor's Appointment," March 1, 2013