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Welcome to MitoAction

MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, clinical research initiatives and by granting wishes for children affected by mitochondrial disease.  We strive to make a measurable impact in the lives of those who are affected by mitochondrial disease.

Support

Providing families, patients, and caregivers opportunities to connect with others who share common experiences with mitochondrial disease.

Educate

Increasing the understanding of mitochondrial disesase by providing access to the most up-to-date and accurate information available.

Advocate

Empowering the mitochondrial disease community with the tools needed to let their voices be heard for their individual healthcare needs.

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Our Impact at a Glance

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plus Mito411 Support Calls logged in 2019

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years serving families facing the daily struggles of mitochondrial disease

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plus mito kids sent to summer camp since 2009

Make a Difference

vol-un-teer – a person who freely offers to take part in an enterprise or undertake a task, often followed by a rush of happiness at knowing you’ve made a difference!

Volunteer

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The 2021 Town Hall Meeting is starting in just over an hour!!
You can still RSVP by visiting this link: https://www.mitoaction.org/single-event/2021townhall/

FAOD Families! ⠀
Join us this evening at 8:15pm EST for our monthly support call! Visit the link in our bio to register!⠀
#mitoaction #mitochondrialdisease #supporteducateadvocate #faod #faodsupport #fattyacidoxidation #support #raredisease #findyourtribe

FAOD Families!
Join us this evening at 8:15pm EST for our monthly support call! There is still time to register - visit http://buff.ly/3eSBmgJ

FAOD Families!
Join us this evening at 8:15pm EST for our monthly support call! There is still time to register - visit bit.ly/35Klz0m

Jupiter Orphan Therapeutics, Inc. ("JOT") a biotechnology company pioneering a novel and disease modifying product named JOTROL™, announced earlier this week that the first patient has been dosed in a Phase I dose escalation study of JOTROL™

...https://www.prnewswire.com/news-releases/jupiter-orphan-therapeutics-announces-first-patient-dosed-in-phase-i-dose-escalation-study-of-jotrol-301205240.html

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Jupiter Orphan Therapeutics Announces First Patient Dosed in Phase I Dose Escalation Study of JOTROL™

/PRNewswire/ -- Jupiter Orphan Therapeutics, Inc. ("JOT") a biotechnology company pioneering a novel and disease modifying product named JOTROL™,...

www.prnewswire.com

The annual Mito Town Hall Meeting is just 2 days away and there is plenty of time left to reserve your spot! We will hear from many organization who have opportunities, programs and projects for families affected by mitochondrial disease.
Click below to RSVP and check out the full agenda: ...https://www.mitoaction.org/single-event/2021townhall/
#mitoaction #mitochondrialdisease #supporteducateadvocate #mitotownhall #mitoexpert #raredisease

The annual Mito Town Hall Meeting is just 2 days away and there is plenty of time left to reserve your spot! We will hear from many organization who have opportunities, programs and projects for families affected by mitochondrial disease.
Click below to RSVP and check out the full agenda: ...https://www.mitoaction.org/single-event/2021townhall/
#mitoaction #mitochondrialdisease #supporteducateadvocate #mitotownhall #mitoexpert #raredisease

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