Kira serves as CEO of MitoAction and champions the growth of the programs and services offered by MitoAction. Her priority is to ensure that each and every person affected by mitochondrial disease knows they are not alone and that the MitoAction team will be here every step of their journey. Kira is committed to stewarding key funding opportunities, strengthening the organization’s business development and governance and working with the community to increase MitoAction’s national impact and presence in the areas of aware- ness, education and advocacy.
“I am honored to lead this incredible team who works tirelessly each and every day on behalf of the amazing community we serve. I love hearing from our families, and I welcome you to reach out, share your story and help ensure that MitoAction is doing everything we can to pro- vide the support and services that are most meaningful to you.”
After serving as a volunteer for several months, Jeannie officially joined the MitoAction team in January 2018. Although she had never heard of mitochondrial disease until she started working for MitoAction, Jeannie has dedicated herself to learning about this rare disease so she can help MitoAction continue to expand the ways in which we serve the Mito community. Jeannie oversees the day-to-day operations of MitoAction, as well as the Marcel’s Way Family Fund, scholarships, Matthew Harty Camper Fund, MitoSocials, and MitoPlaydates.
“I couldn’t be happier to be a part of the MitoAction team! I truly love all that we do and feel so fortunate to be a part of something that touch- es the lives of so many people.”
Jamie is a Mito Mom that turned her pain into her power to help families affected by this disease. Her passion is to help Patients and Families find their voice while advocating and ensure they know you are not fighting alone. Jamie looks forward to giving back to a community that rallied around her family. If you hear of a patient in need of support, want to set up a social, need materials and help with raising awareness, or just need someone along your journey, please reach out to her at email@example.com
Tracie has been a registered nurse for 22 years. She graduated from the UF College of Nursing and for the last 5 years has maintained her certification as a clinical research professional. 12 years ago, Tracie began working in clinical research involving participants with mitochondrial disease. “It is a privilege for me to have the opportunity to work with MitoAction and help those who reach out to us. I’m excited to be able to positively impact the lives of those we work with.”