ad·vo·ca·cy: The act of pleading or arguing in favor of something, such as a cause, idea, or policy; active support.
MitoAction’s advocacy resources are designed to assist patients and families in raising their voice with local and national policy issues that affect mitochondrial disease and the general rare disease community. We encourage you to get involved and help those in Washington understand the challenges and burden of living with a rare disease.
Please click on the links to access information on each of the topics listed below.
How to Contact Your Elected Officials
Below are resources and ways for you to take an active role in legislative issues important to you and the mitochondrial disease community:
- Contact your senators on Twitter and Facebook
- Look up key legislation by state that impacts rare disease
Stand with MitoAction and take ACTION!