MitoAction, Cure Mito Foundation and AllStripes are teaming up to create a research database that will grow knowledge and accelerate drug development in MELAS and Leigh Syndrome to power research studies!
Your experience with MELAS or Leigh Syndrome is important and can help researchers advance treatments for our community. By joining this partnership, you can contribute your de-identified medical records to multiple research efforts without leaving home.
How sharing your journey powers progress
Jumpstart new research for your rare disease
Your (or your loved one’s) medical records contain clues that can lead to new treatments
Determine important symptoms to target
AllStripes researchers learn from patient records what would truly improve quality of life.
Speed up developments of treatments
Using cutting-edge tech we analyze your community’s data to improve trial design and chances of success.
Be part of multiple research efforts, without leaving home
Your community’s de-identified records can advance multiple treatment studies.
How it works
1. Sign up
Create your private account and review the AllStripes research consent (takes about 10 minutes).
2. AllStripes gets to work
We do all the behind-the-scenes work to retrieve and process your records.
3. Impact research
Power multiple research projects at once by contributing your de-identified data.