Loading...

MitoAction and Cure Mito Foundation Join Forces with AllStripes to Bring Power to the Patients

MitoAction, Cure Mito Foundation and AllStripes are teaming up to create a research database that will grow knowledge and accelerate drug development in MELAS and Leigh Syndrome to power research studies!

Your experience with MELAS or Leigh Syndrome is important and can help researchers advance treatments for our community. By joining this partnership, you can contribute your de-identified medical records to multiple research efforts without leaving home.

Join MELAS Research Join Leigh Syndrome Research

 

How sharing your journey powers progress

 

Jumpstart new research for your rare disease

Your (or your loved one’s) medical records contain clues that can lead to new treatments

 

 

Determine important symptoms to target

AllStripes researchers learn from patient records what would truly improve quality of life.

 

 

Speed up developments of treatments

Using cutting-edge tech we analyze your community’s data to improve trial design and chances of success.

 

 

Be part of multiple research efforts, without leaving home

Your community’s de-identified records can advance multiple treatment studies.

 

How it works

 

1. Sign up

Create your private account and review the AllStripes research consent (takes about 10 minutes).

 

 

2. AllStripes gets to work

We do all the behind-the-scenes work to retrieve and process your records.

 

 

3. Impact research

Power multiple research projects at once by contributing your de-identified data.

 

Learn More About All Stripes