Loading...

MitoAction in the News


C-Path and MitoAction Announce Data Sharing Agreement to Support Treatment Development in Mitochondrial Disease

TUCSON, Ariz., June 7, 2022 — Critical Path Institute (C-Path) and MitoAction today announced a joint collaboration to incorporate patient data for rare mitochondrial disorders into C-Path’s Rare Disease...


TK2d Patient Voices Elevated at FDA

FOR RELEASE FRIDAY, FEB. 4 AT 11:30AM TK2d Patient Voices Elevated at FDA United Mitochondrial Disease Foundation, MitoAction Champion First Ever Listening Session for this Rare Disease PITTSBURGH, Pa.,...


MitoAction and Cure Mito Foundation Announce Partnership with AllStripes Research

This partnership will support multiple Leigh syndrome research projects and fuel development of future treatments. September 19, 2020 — MitoAction, a nonprofit organization founded to make a measurable impact...


MitoAction Announces the Appointment of Three New Board Members

MitoAction announces the appointment of three members to the board of directors. Each new member brings an array of expertise and experience that will allow MitoAction to continue to...


Children’s Hospital, Family of Justina Pelletier bring case to court

Justina Pelletier was 14 in 2013 when she landed in a locked psychiatric unit at Boston Children’s Hospital, temporarily a ward of the state. Her parents stood accused of medical child...


Mitochondrial Organizations Cooperate to Launch Pilot Phase of The Mitochondrial Network

ATLANTA, January 8, 2018 — The Foundation for Mitochondrial Medicine (FMM), MitoAction, the Mitochondrial Medicine Society (MMS) and the United Mitochondrial Disease Foundation (UMDF) collectively announce an important new...


MitoAction Joins Patients and Physicians for Rx Access

MitoAction has joined Patients and Physicians for Rx Access, a coalition addressing the issue of insurance cuts to compounded medication coverage. Together, MitoAction and Patients and Physicians for Rx...


Extreme Clinic Makeover 2009

ABC’s Extreme Home Makeover & the Boston Bruins Foundation work with MitoAction for the makeover of the Tufts Medical Center Metabolism Clinic July 2009, Boston MA With the help...


Statement on Autism, Vaccines & Mitochondrial Disease

Mitochondrial Disease Action Committee (MitoAction) Statement on Autism, Vaccines and Mitochondrial Disease www.MitoAction.org March 21, 2008 The recent headlines concerning the potential links between autism, mitochondrial diseases, and vaccinations...


Education Content Now Available

It is with great pride and sincerity that I ask all members, families and friends of MitoAction to please congratulate and recognize the following mitochondrial disease patients, moms, care...