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MitoAction in the News


A Renewed Commitment & A Fresh Look for MitoAction

Once in a while, you get a great opportunity. Today, we are really excited to show off our new logo and take you on a tour of MitoAction’s history....


Leadership Creed for Mitochondrial Disease

Mitochondrial Disease Leadership Creed for Physicians, Researchers, Patient Advocates and Organization Representatives We believe that mitochondrial disease is a very real and potentially devastating diagnosis. We believe that adults,...


MitoAction’s Statement on Nationwide Closures of Mitochondrial Disease Clinics

In the past year, the mitochondrial disease community has witnessed the closing of five clinics specializing in the treatment of mitochondrial disorders. While these clinic closures all have occurred...


MitoAction Submits Comment to FDA on Proposed Changes to Compounding Pharmacy Regulations

On Monday, July 20, 2015, MitoAction submitted a comment to the FDA on its proposed Memorandum of Understanding concerning the distribution of products from compounding pharmacies. The proposed Memorandum...


MitoAction and Care3 Announce Global Innovation Partnership Focused on Mitochondrial Disease

June 12, 2018 (Boston, MA) – MitoAction (www.mitoaction.org), a leading patient advocacy organization within the mitochondrial disease community and Care3™ (www.care3.co), the world’s first team collaboration platform for healthcare...


Advocating Responsibly and Communicating Effectively

Mannie Taimuty-Loomis, MA, LBS and Executive Director of the Jonah & The Whale Foundation, Inc. to learn more and discuss: -What is medical child abuse? Munchausen’s by proxy? What...