You can also find these presentations in our Spotify, Google Podcasts, Apple Podcast and Amazon Music podcast library.
Meeting My MELAS Mito Friend – Elizabeth Wood
Granting Wishes One Trip at a Time
Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim McLerran, Head of Product, Medical Intelligence One, Inc
What’s It Like Being a Research Patient with UDN – Ted Will Tell You
Alex the Great and LCHAD
Tara Zier – Stiff Person Syndrome Research Foundation and Finding Your Purpose
Lovevery – Purposeful Play Customized for all Abilities
Meet Devin the Genetic Counselor and Mito Patient
Parenting with Sarcoidosis & Discussing the Global Genes 2022 Rare Patient Advocacy Summit
Meet the Bartles
Owning my Story
Life with Leigh’s
Zogenix (Cristy Balcells)
Dr. Stephanie Mihalas – Find Your Balance, Find Your Center
Gain knowledge from our guest speakers on topics important to the mitochondrial disease community.
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