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Clinical Trials and Studies

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You can also find these presentations in our Spotify, Google Podcasts, Apple Podcast and Amazon Music podcast library.

Rare Revolution

Dr. Neena Nizar – Share Your #RareDiseaseTruth & Give Love A Chance

Dalia’s Wish Makes Dreams Come True for the Del Forno Family

Exploring Palliative Care

Meeting My MELAS Mito Friend – Elizabeth Wood

Granting Wishes One Trip at a Time

Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim McLerran, Head of Product, Medical Intelligence One, Inc

What’s It Like Being a Research Patient with UDN – Ted Will Tell You

Alex the Great and LCHAD

Tara Zier – Stiff Person Syndrome Research Foundation and Finding Your Purpose

Lovevery – Purposeful Play Customized for all Abilities

Meet Devin the Genetic Counselor and Mito Patient

Parenting with Sarcoidosis & Discussing the Global Genes 2022 Rare Patient Advocacy Summit

Meet the Bartles

Owning my Story