Making the decision to attend college when you are dealing with a rare disease can be difficult. There are so many factors that you have to consider that other students don’t such as accessibility for adaptive equipment, housing accommodations, support with classes and managing your energy to get through each day. Below are frequently asked questions about navigating the college experience that can help ease the stress of what should be an exciting time for you!
We are going to visit some colleges that I am thinking of applying to. What should I look for when I go to visit the campus?
Should I take full-time classes when I start my freshman year in college?
Are there any organizations or services that can help me at college or when I get a job?
I get tired really easily from walking and the school I am interested in has a big college campus. Do you have any suggestions for making it easier to get around without tiring out?
What if I have a scooter or a wheelchair but I am not sure how to navigate the campus with it in the snow?
I am on medications that decrease my immune system and make me more susceptible to infections. Should I ask for a private room in the dorms?
What if my school doesn't offer note taking or other services in the classroom?
Will I lose my health insurance if I don't take classes full time or work full time?
I want to have a part-time job during the summer but am not sure what kind of job I would be able to handle because of the stamina and pain issues I have that are associated with my illness.
What should I tell my employer during an interview or after I get a job?