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Community Update: Fatty Acid Oxidation Treatments & Growing Options
Date: 07/22/2022Speaker:
Dr. Jerry Vockley
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Disability Benefits & Planning
Date: 07/26/2020Speaker:
Annette Hines & Mark Worthington
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Research & Clinical Trials Update
Date: 07/26/2020Speaker:
Dr. Jerry Vockley & Dr. Melanie Gillingham
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Practical Tips from the VLCAD Nutrition Guidelines and Toolkit – Part 1
Date: 07/25/2020Speaker:
Dr. Sandy Van Calcar & Mary Sowa
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Practical Tips from the VLCAD Nutrition Guidelines and Toolkit – Part 2
Date: 07/25/2020Speaker:
Dr. Sandy Van Calcar & Mary Sowa
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Sick Day & Emergency Protocols: Helpful and Potentially Harmful
Date: 07/25/2020Speaker:
Dr. Mark Korson
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Ultragenyx Q&A – A Conversation with Ultragenyx’s CMO and Global Metabolic Dietitian
Date: 07/25/2020Speaker:
Camille Bedrosian & Bridget Reineking
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Pre-Clinical Treatment Studies in FAOD
Date: 07/25/2020Speaker:
Dr. Jerry Vockley
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Acylcarnitines: What are They and What Do They Mean?
Date: 07/25/2020Speaker:
Dr. Melanie Gillingham
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Life Transitions from Pediatric to Adult Patients with Rare Disorders
Date: 07/25/2020Speaker:
Brittany Holmes
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