“It’s my fault – I passed this on to them. It’s hard to have dreams or goals for the future because of the uncertainty”
Raising a family while suffering from any chronic illness can present special challenges to parents. This is particularly true when one suffers from mitochondrial disease as this disease presents with so many various issues. Fatigue, skeletal muscle weakness, and pain present some of the biggest obstacles to overcome. One of the most important principles to remember is that mitochondrial disease is part of your life; it is not your life. Children need to know that mito is not in charge; you are. It will help them to feel more secure through the ups and downs of the condition.