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Mito Expert Series – Introducing the Ultragenyx LC-FAOD Disease Monitoring Programs: Our Commitment to Advancing LC-FAOD Research Globally

Introducing the Ultragenyx LC-FAOD Disease Monitoring Programs: Our Commitment to Advancing LC-FAOD Research Globally Join MitoAction, Laura Pisani-Betancourt and Kristin Voorhees from Ultragenyx Pharmaceutical on Friday, July 9th, 2021 at 12:00pm EST for our monthly expert series presentation! On this webinar, Ultragenyx will discuss the development of its LC-FAOD Disease Monitoring Program (DMP), which includes […]

August Expert Series – Back to School…IEP’s, 504 Plans and More!

Join licensed school psychologist, Gena Padgett and high school history teacher / FAOD mom, Beth Folcher to prepare yourself for sending your child(ren) back to school by exploring the differences between IEPs and 504 plans while learning some helpful tips to support your child(ren) in school.       Click here to follow along with […]

September Monthly Expert Series

Getting the Mito Community Research Ready As more and more clinical trials are taking place for mitochondrial disease, we want to ensure that you are ready to get involved.  Listen in to learn about a new partnership focused on Leigh Syndrome between MitoAction, AllStripes and Cure Mito Foundation that will help you become research ready.  […]