"*" indicates required fields Name First Last Address Street Address Address Line 2 City State / Province / Region ZIP / Postal Code AfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntarcticaAntigua and BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire, Sint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBritish Indian Ocean TerritoryBrunei DarussalamBulgariaBurkina FasoBurundiCabo VerdeCambodiaCameroonCanadaCayman IslandsCentral African RepublicChadChileChinaChristmas IslandCocos IslandsColombiaComorosCongoCongo, Democratic Republic of theCook IslandsCosta RicaCroatiaCubaCuraçaoCyprusCzechiaCôte d'IvoireDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEswatiniEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaFrench Southern TerritoriesGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuinea-BissauGuyanaHaitiHeard Island and McDonald IslandsHoly SeeHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJerseyJordanKazakhstanKenyaKiribatiKorea, Democratic People's Republic ofKorea, Republic ofKuwaitKyrgyzstanLao People's Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacaoMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMicronesiaMoldovaMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNauruNepalNetherlandsNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth MacedoniaNorthern Mariana IslandsNorwayOmanPakistanPalauPalestine, State ofPanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalPuerto RicoQatarRomaniaRussian FederationRwandaRéunionSaint BarthélemySaint Helena, Ascension and Tristan da CunhaSaint Kitts and NevisSaint LuciaSaint MartinSaint Pierre and MiquelonSaint Vincent and the GrenadinesSamoaSan MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan MayenSwedenSwitzerlandSyria Arab RepublicTaiwanTajikistanTanzania, the United Republic ofThailandTimor-LesteTogoTokelauTongaTrinidad and TobagoTunisiaTurkmenistanTurks and Caicos IslandsTuvaluTürkiyeUS Minor Outlying IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUnited StatesUruguayUzbekistanVanuatuVenezuelaViet NamVirgin Islands, BritishVirgin Islands, U.S.Wallis and FutunaWestern SaharaYemenZambiaZimbabweÅland Islands Country Email PhoneWhat is your connection to mito?* Patient Parent Spouse Caregiver Son Daughter Sibling Grandparent Grandchild Aunt Uncle Cousin Niece Nephew Friend Teacher/Educator Medical Professional Physician Nurse Genetic Counselor Social Worker Researcher Industry Rep Other What is your diagnosis?* Alpers' Disease ACAD9 Deficiency Autosomal Dominante Optic Atrophy (ADOA) Barth Syndrome CACT Deficiency CPEO Complex I Deficiency Complex II Deficiency Complex III Deficiency Complex IV Deficiency Complex V Deficiency CoQ10 Deficiency CPT I Deficiency CPT II Deficiency Creatine Deficiency Syndrome CUD/Primary Carnitine Deficiency Friedreich's Ataxia GAII/MADD Deficiency Kearns-Sayre Syndrome (KSS) Lactic Acidosis LCHAD Deficiency Leigh Syndrome Leukodystrophy LHON LHON Plus Luft Disease MCAD Deficiency MCKAT Deficiency MELAS MEPAN MERRF MIRAS Mitochondrial Cytophy Mitochondrial DNA Depletion Mitochondrial Encencephalopathy Mitochondrial Myopathy MNGIE M/SCHAD Deficiency Multiple Mitochondrial Dysfunction Syndrome NARP Pearson Syndrome POLG Mutations POLG 2 Primary Mitochondrial Myopathy Pyruvate Carboxylase Deficiency Pyruvate Dehydrogenase Deficiency Pyruvate Dhydrogenase Complex Deficiency (PDCD) SCAD Deficiency Thymidine Kinase 2 Deficiency (TK2) VLCAD Deficiency Undiagnosed Other What is your child's diagnosis?* Alpers' Disease ACAD9 Deficiency Autosomal Dominante Optic Atrophy (ADOA) Barth Syndrome CACT Deficiency CPEO Complex I Deficiency Complex II Deficiency Complex III Deficiency Complex IV Deficiency Complex V Deficiency CoQ10 Deficiency CPT I Deficiency CPT II Deficiency Creatine Deficiency Syndrome CUD/Primary Carnitine Deficiency Friedreich's Ataxia GAII/MADD Deficiency Kearns-Sayre Syndrome (KSS) Lactic Acidosis LCHAD Deficiency Leigh Syndrome Leukodystrophy LHON LHON Plus Luft Disease MCAD Deficiency MCKAT Deficiency MELAS MEPAN MERRF MIRAS Mitochondrial Cytophy Mitochondrial DNA Depletion Mitochondrial Encencephalopathy Mitochondrial Myopathy MNGIE M/SCHAD Deficiency Multiple Mitochondrial Dysfunction Syndrome NARP Pearson Syndrome POLG Mutations POLG 2 Primary Mitochondrial Myopathy Pyruvate Carboxylase Deficiency Pyruvate Dehydrogenase Deficiency Pyruvate Dhydrogenase Complex Deficiency (PDCD) SCAD Deficiency Thymidine Kinase 2 Deficiency (TK2) VLCAD Deficiency Undiagnosed Other What is your loved one's diagnosis?* Alpers' Disease ACAD9 Deficiency Autosomal Dominante Optic Atrophy (ADOA) Barth Syndrome CACT Deficiency CPEO Complex I Deficiency Complex II Deficiency Complex III Deficiency Complex IV Deficiency Complex V Deficiency CoQ10 Deficiency CPT I Deficiency CPT II Deficiency Creatine Deficiency Syndrome CUD/Primary Carnitine Deficiency Friedreich's Ataxia GAII/MADD Deficiency Kearns-Sayre Syndrome (KSS) Lactic Acidosis LCHAD Deficiency Leigh Syndrome Leukodystrophy LHON LHON Plus Luft Disease MCAD Deficiency MCKAT Deficiency MELAS MEPAN MERRF MIRAS Mitochondrial Cytophy Mitochondrial DNA Depletion Mitochondrial Encencephalopathy Mitochondrial Myopathy MNGIE M/SCHAD Deficiency Multiple Mitochondrial Dysfunction Syndrome NARP Pearson Syndrome POLG Mutations POLG 2 Primary Mitochondrial Myopathy Pyruvate Carboxylase Deficiency Pyruvate Dehydrogenase Deficiency Pyruvate Dhydrogenase Complex Deficiency (PDCD) SCAD Deficiency Thymidine Kinase 2 Deficiency (TK2) VLCAD Deficiency Undiagnosed Other Tell us what event you are interested in planning and why it is important?*CAPTCHAEmailThis field is for validation purposes and should be left unchanged.
