Light a Light for Mito

Print Friendly, PDF & Email

For our loved ones we miss so dearly, we light a light and remember you.

MitoAction wants to help you remember those who have lost the battle with mitochondrial disease and ask that friends and family “Light a Light” in their memory.  Please send your photos and memory wishes to us at memories@mitoaction.org

For the angels we miss so dearly, we light a light and remember you.

 

Robert Graham Collins
11/17/15 - 1/24/17
Samya Haddad
3/17/94-12/10/02
Samantha Schichtel
7/18/06-7/25/10
Leanna Haddad
5/5/97-3/20/05
Kayla Marie Dawn O’Flynn
7/22/90 - 7/14/05
George Charles Garman
09/09/09-01/29/10
Briony & Anneliese
Jonathan Ruby
Noah
Brady Hackbarth
04/29/05-09/01/11
Scott Vernon
8/27/73-9/19/85
James “Bubba” Charles Ament
12/13/95-8/21/10  
Carl Mason
10/27/92-1/23/13
Lauren Benney
10/1/02-3/20/12
Jason Brindle
1/26/71-4/7/11
Chance Nathaniel Spurlock
2/23/07-11/28/07
Glenn Hodges Floyd
10/08/42-08/10/99
Kristen Charleston
1/1/93-8/29/11
Matthew Lee Dugas
4/6/05-4/20/15
Jacob Nicholas Wright
12/06/10-04/20/12
Bob Boyle
Samuel Cutliff
 2004 - 2012
Jimmy “The Big Guy” McKay
11/2/06-12/27/07
Noah C.K. Kaawaloa
12/16/04-6/11/07
Kyle Weatherford
11/2/92-4/3/99
Marvin
3/30/99-9/05/05
Jonah Vernon Ritterbush
2/3/13-4/11/13
Emma Frances Dalton
9/22/10 - 4/17/11
Ariana Elizabeth Beaumier
4/24/13-11/18/13
Mamie Rose
Leah Patience Beaumier
3/10/15-3/15/15
Audrey Elizabeth Lawrence
8/10/01-5/12/08
Karina Milenova Kireva
3/30/13-11/14/13
Ryan Mason Donnelly
9/10/06 - 5/1/08
Ashley Lauren Hoppes
2/13/92-3/22/12
Chase Ryan Donnelly
1/1/09 - 7/6/10
Alex Schumacher
4/7/03-10/4/14
Maggie Agnew
6/18/08-2/26/11
Emily Kathryn Rivers
2/18/92-5/10/14
Andrew Whalen
10/5/76 - 6/22/03
Jaycob Alexander Harris
1/31/12-6/30/13
Jaycob Alexander Harris
5/9/08-2/15/13
Alicia J. Hobley
4/8/08 - 6/3/10 
Declan Arthur Gardner
8/30/11-9/2/11
Heather Grace Coleman
9/25/02 - 9/16/05
Connor Scott Millard
3/1/99-9/18/07
Madeline “Kate” Stephens
4/17/01-7/13/08
Randi Evans
Leo Donald Fortunato
4/5/07-4/22/08
Abigail “Abby” Renee Kasuba
4/16/00-3/10/09
Maud Mary Adams Fullerton
01/22/16-09/24/05
Madison Grantham
7/29/04-8/3/06
Patricia Mary Smith (nee Hunter)
7/25/29-12/14/80
Kayla Marie Dawn O’Flynn
7/22/90-7/14/05
Gerald Sacunas
5/1/56-5/14/17
Heather Grace Coleman
 9/25/02-9/16/05
Sabrina “Precious Angel”
8/29/00-8/1/08
Jackson Thomas Feliciano
October 5, 2007
Kirkland Kilbride
3/6/01-12/2/07
George Garman
Rebekka Maelynn Sallee
2/13/04-9/18/16
Grace Caskey
03/06/05-08/17/17
Allen C. Edwards
4/29/14-3/23/17
Jack Thomas Edwards
7/8/08-9/7/12
Jennifer Lee Patrick
7/21/86-11/16/86
Claire Giles Crittenden
3/25/03-4/25/08
Leela Row
7/25/13-8/7/14
AJ
Cooper Roy & Isla Elizabeth Watson
6/4/10-5/29/11 & 5/15/13-4/8/14
Michaela Rae
7/8/93-11/4/03
Krysta D’Nea White
6/7/1998-1/16/2014
Ruth Crane
9/19/33-1/2/12
Jane Windish
4/24/03-4/11/11
Nathan Mowrer
Kain Gregory Buell
8/9/2004-9/2/2014
Colten Lee Abell
8/7/15-12/28/16
Archer Banjo Cleary
9/6/12-4/26/13
Melani Rebekah Mehana Fu
03/07/08-01/29/12
Mannix Mags Agnew
2/10/13-6/12/14
Kathryn Nicole Cole (Katie)
12/28/94-6/15/17
Ellie Brooke Wilkinson
3/5/07-1/25/11
Una Pozon
2/19/08-5/21/15 
Lauren Francis
3/23/06-6/16/14
Bethany Lewallen
11/25/95-10/12/15
Shayla Cecilia Strobhar
7/29/02-5/17/14 
Erin Flynn
Passed February 7, 2014
Levi Jacob Kendall
9/30/12-8/21/13
Ava Merrill
7/8/14-3/17/15
Wyatt Daniel DeStephano
7/23/02-9/27/13 
Corynna Strawser
04/28/97-12/11/13
Eric Thomas Clement
11/28/06-11/26/12
Adrian Corona
04/17/17-07/18/17
Oliver Henry Fleming
7/10/09-1/12/14
Robert Donal Devine
Raelynn Musacco
9/16/06-10/15/08
In loving memory of Carys Karpp
4/23/04-4/14/13
Diego F. Lumauig
9/14/06-8/14/14
Rachel Anne Flynn
01/25/01-03/18/09
Cooper Jackson Casavan
7/16/07-10/12/13
Mito Angel Scott
Samuel Cutliff
Sept. 10, 2012
Aspyn Block
11/14/01-7/15/02 
Brody Tucker
4/25/07-3/7/09
Carter Buffum
Passed on May 19, 2016
Hans-Joachim Kirsch
1959-2014
Leslie Whitt-Williams
6/17/88-10/21/12
Katelyn Shumaker
5/24/99-10/10/07
Rina Goldberg
Sophia Beatriz & Isabel Eryn
10/17/98-12/11/98 & 1/21/01-3/29/01  
Allen Cannon Edwards
Olivia McCormick
8/24/2010-10/31/2013
Leela Row
7/25/13-8/7/14
Arihanna K. Woodall
6/21/11-12/8/13
Brielle Lana Harmon
11/22/11-10/19/14
Kelci Shigeta
12/7/08-8/31/13
Daithì Hasson O’Doherty
11/5/14-3/5/16
Kaidon Andrew Stamper
10/24/03-04/24/13
Khristen Abshire
7/18/97-3/9/13
Christopher Joseph & Bryce Alexander Caldwell
11/6/01-12/20/07 & 4/17/06-12/30/08
Sailor Isabel Assis
7/23/15-6/10/16
Brandon Harris
1/31/03-6/8/12
Sandra K. Russell
5/5/56-8/6/08
Scott
8/27/73-9/19/85 
Danica Wilson
3/25/10-12/17/15
Leah Raquel Lucia
2/17/11-6/6/13
Sara Montgomery
Bridget Lucille Nuccitelli
7/18/07-9/15/07
Jacob Hallberg
Dominic Angelo Nuccitelli
4/16/01-9/14/01
Connor Troy
6/30/00-4/16/13
William Tuthill Dickerson
5/8/91-4/12/94
Diego — Fought MELAS until 2014
Leslie Cora Whitt-Williams
6/17/88-10/21/12 
David Bowen
Sterling Curran Smith
6/4/12-4/8/13
Bethany Lewallen
11/25/95-10/12/15
Taylor Renee Lawhead
2/11/11-6/2/13
Hayden Anthony Hamilton
03/05/08 - 06/13/11
Isabella Carreiro
8/23/02-7/28/10
Gabriel Ruebelmann
4/27/05-4/15/15
Brady Waddick
Desmond Gray
Sharon Perkins
12/5/67-8/13/13
Alyssa Brooke Douglas
5/21/96-8/5/14
Marti Hall
William Reed Jr.
Frankie Gordie Kirkby
Erin Elyse Flynn
9/29/84-2/7/14
Jack Jensen
1/17/06-2/3/07
ReeNa Holleran
6/8/89-3/30/09
William Chandler Brown
1990-2012
Isaac Farooq Malik
9/27/08-1/24/10
Isaac Farooq Malik
9/27/08-1/24/10
Amy Jeannie
5/23/14-3/13/16
Jacob Wright
12/6/10-4/20/12
Alyson/Aly Schwenk
2/8/81-4/13/15
Owen Stump
8/12/06-5/26/10
Kennedy Lynn Burgess
9/12/01-5/6/16
Julian R. Fonville
10/30/09-02/07/12
Caroline Pereira Duraes
5/16/01-9/4/11
Maiya Blackmon
10/15/15-4/2/16
Jack Thomas Edwards
Laney Daniel
11/29/85-3/25/16
Katelynn Joselle Misola
5/29/11-2/24/15
Allie Remarski
12/26/88-10/5/13
Brenan Alijah Petty
11/06/13-10/08/14
Morgan Danielle Gilbreath
8/5/02-11/8/14
Autumn Ruth Kenney
6/11/08-5/31/15
Caleb Jason Jacobs
4/29/10- 9/19/12
Wardell Williams-Gray
2/15/91-12/31/01
Michael C. Vassallo
3/9/73-3/24/15
Jayden Rieffel
12/23/10-09/23/12
Johnathan Gabriel Cunard
6-16-11 to 7-27-19
Danielle Laurine Jollimore
June 18, 1988 - April 9, 2019
Bonnie Codier
Brayden Burge
9/29/04-10/11/13
Joshua Klingler
2/26/13-12/2/14
Mack Michael Harrington
7/25/07-9/22/09
Aiden Yong-Yeon Lee
 04/03/06-11/06/14

Robert Graham Collins

11/17/15 - 1/24/17

Print Friendly, PDF & Email

We lost our son Graham in January 2017, just a few days after he was diagnosed with Alpers’ Disease. In the 14 months Graham lived, he showed us his bravery, strength, and silly personality. Alpers’ disease took him away from us too soon, but we know that Graham’s impact continues to this day. We hope by raising awareness, talking about these terrible diseases, and through fundraising, we will find a cure to save other families the heartbreak we experienced. There is hope, and together, we can achieve it. We love you forever, sweet baby Graham. #growgrahamgrow

Samya Haddad

3/17/94-12/10/02

Print Friendly, PDF & Email

Leigh’s

Samya had a heart of gold and lived her life with pure love and her love was contagious to everyone that she met. She is missed every day dearly.

Samantha Schichtel

7/18/06-7/25/10

Print Friendly, PDF & Email

In memory of Samantha Schichtel

Miss you so very much Samma-roo.

Leanna Haddad

5/5/97-3/20/05

Print Friendly, PDF & Email

Leigh’s

Leanna had a  personality and a giggle that touched everyone and is loved and missed dearly.

Kayla Marie Dawn O’Flynn

7/22/90 - 7/14/05

Print Friendly, PDF & Email
In memory of Kayla Marie Dawn O’Flynn ~ 
It has been seven years since our SweetGirl left this earth but she has not left our hearts … not a day goes by that we don’t think of you, Kay~Marie!  We miss you dearly … loves from Suzette (your mommy), Kevin (your daddy) and Brandi (your little sister) xoxox

George Charles Garman

09/09/09-01/29/10

Print Friendly, PDF & Email

We miss you our little Mito monkey!

The Garman Family

Briony & Anneliese

Print Friendly, PDF & Email

have three babies who were affected by mitochondrial disease.  Two are pictured. Briony died in July 1985 at the age of 14 months.  She spent lots of time in & out of Great Ormond St. Anneliese was my second who died in 1980 at the age of 11 months. Not pictured is Alexandra, who died in 1978 aged 6 days. My babies were beautiful with their white blonde curly hair & brought us much joy in their short lives. Those were the early days of Mito when it was thought to be very rare

Jonathan Ruby

Print Friendly, PDF & Email
We miss you so much!
Love Mom, Ethan, Dylan and Kelly.

Noah

Print Friendly, PDF & Email

Noah passed away on May 11, 2015. He was an angel on Earth, loved by those that barely knew him and adored by those that did. He loved to read, watch his D’s (DVDs), and play on his iPad. Favorite memory when he was 6, just a few months before he passed, was when he let go of the railing and walked up the last step of stairs himself for the first time. He was so proud of himself.

Brady Hackbarth

04/29/05-09/01/11

Print Friendly, PDF & Email

In memory of our sweet angel, Brady. Missed so much by so many. So brave and a smile to melt your heart always!

Scott Vernon

8/27/73-9/19/85

Print Friendly, PDF & Email

I carry you in my heart forever. We need a cure for this terrible disease that took Scott away from us.

James “Bubba” Charles Ament

12/13/95-8/21/10  

Print Friendly, PDF & Email
In memory of James “Bubba” Charles Ament
As we light candles for those who have lost their battle with Mito, let us say a prayer for those who still battle this disease.
Robin Bartel

Carl Mason

10/27/92-1/23/13

Print Friendly, PDF & Email

Carl, who had Leigh’s disease, loved animals, swimming, and playing on his XBox. He had a great sense of humor and never let his limitations stop him from living life to its fullest. He is missed by all who knew him and his absence is felt daily.

Lauren Benney

10/1/02-3/20/12

Print Friendly, PDF & Email
Pyruvate Dehydrogenase Complex Deficiancy (PDCD)
 
We miss you, Lauren, so much.  Love Mummy, Daddy, Matt, Em and Will xxxx

Jason Brindle

1/26/71-4/7/11

Print Friendly, PDF & Email

MELAS

My wonderful son and best friend, intelligent, caring, adventurous, funny and many more adjectives. A son anyone would be proud of. Struck down with MELAS. Life is very cruel and he deserved a better reward for all his hard work and kindness. I miss him every single day and feel guilty because I couldn’t help him. I hope his death will not be in vain and that treatment can be discovered and a cure for mitochondrial disease can be found sometime soon.

Chance Nathaniel Spurlock

2/23/07-11/28/07

Print Friendly, PDF & Email
We love you and miss you so much, sweet baby. It breaks my heart you had to leave us but I am so thankful that you are free from this disease and all the pain it caused you! <3

Glenn Hodges Floyd

10/08/42-08/10/99

Print Friendly, PDF & Email

Silently you suffered, still always with a smile. After two succeeding diagnoses of mitochondrial disease, we now know why. You left us at 56 years young, you are still living in our hearts today. We love and miss you so much.

Kristen Charleston

1/1/93-8/29/11

Print Friendly, PDF & Email

MELAS

Matthew Lee Dugas

4/6/05-4/20/15

Print Friendly, PDF & Email

Matthew, you will always be the completion of me. I love and miss you more with every passing day …

Jacob Nicholas Wright

12/06/10-04/20/12

Print Friendly, PDF & Email

Leigh’s Disease

Miss you, baby bear. x

Bob Boyle

Print Friendly, PDF & Email

MERRF

Bob always lived life to the fullest and encouraged others to do the same. His favorite thing was scuba diving; he had such a love for the ocean. He was one of the strongest people, which we will always remember. We miss and love him so much.

Samuel Cutliff

 2004 - 2012

Print Friendly, PDF & Email
For Samuel Cutliff, Son of Tim and Mary Cutliff,  Anderson, SC
 2004 – 2012

Jimmy “The Big Guy” McKay

11/2/06-12/27/07

Print Friendly, PDF & Email

Complex 1

For someone here for such a short time, it is amazing the change you made in the world. Hugs, kisses, zerberts, Eskimo kisses, and big slobbery puppy dog kisses!

Noah C.K. Kaawaloa

12/16/04-6/11/07

Print Friendly, PDF & Email
Born: Dec. 16, 2004
Got his wings: June 11, 2007
Undiagnosed Mito Angel
 Your memory lives on, my son, in our hearts forever.  Until we meet again, soar high,  my love.

Kyle Weatherford

11/2/92-4/3/99

Print Friendly, PDF & Email

Alpers

We miss him every day. He was so full of life. Had a beautiful smile and laugh. Even when he was so sick he kept us smiling and laughing with him.

Marvin

3/30/99-9/05/05

Print Friendly, PDF & Email

M. Alpers POLG1

Jonah Vernon Ritterbush

2/3/13-4/11/13

Print Friendly, PDF & Email
Not a day goes by that we don’t smile and think of Jonah. He brought us immeasurable joy and happiness and is greatly loved and missed.

Emma Frances Dalton

9/22/10 - 4/17/11

Print Friendly, PDF & Email
Leigh’s Disease
Emma, In your short amount of time here, you touched so many people’s lives and brought so much joy and happiness to everyone around you.  Our lives will never be the same not having you here with us.  We are only happy in the fact that you are no longer suffering, but that doesn’t help our pain in not seeing you grow up. There are no words to describe how much we miss you, and how much our hearts ache. You are truly an angel, and it breaks our heart that we lost you to this disease.  You will always be our little ladybug. 
To the Moon and Back, Baby Girl.
Love, Mommy, and Daddy

Ariana Elizabeth Beaumier

4/24/13-11/18/13

Mamie Rose

Print Friendly, PDF & Email

is still smiling.

Leah Patience Beaumier

3/10/15-3/15/15

Audrey Elizabeth Lawrence

8/10/01-5/12/08

Karina Milenova Kireva

3/30/13-11/14/13

Print Friendly, PDF & Email

Complex I, III, IV

Ryan Mason Donnelly

9/10/06 - 5/1/08

Print Friendly, PDF & Email
Our little noodle, you are missed more then words could say. We think of you
every day. You would have turned 5 years old last week. We hope you celebrated
in heaven and are taking good care of your little brother until we see you again. I am
so thankful you chose me to be your mommy.

We love you! Mommy, Daddy, Colin, Shane, Taylor, and Trevor
 

“There is a sacredness in tears. They are not the mark of weakness,
but of power. They speak more eloquently than ten thousand tongues.
They are the messengers of overwhelming grief…….and unspeakable love. ~Washington Irving

Ashley Lauren Hoppes

2/13/92-3/22/12

Print Friendly, PDF & Email

Ashley loved all and enjoyed life as she knew it with her family. Although she couldn’t attend school, her homeschooling was always fun for her. She was and is a gift from God.

Chase Ryan Donnelly

1/1/09 - 7/6/10

Print Friendly, PDF & Email
 My sweet face. God, I miss you. We all do. We think of you every day. Your Trevor (Chase’s twin) speaks of you often. As do Shane and Taylor. I thank you for choosing me to be your mommy. You changed my life in many ways and taught us so much. You showed them, didn’t you!!!! You were a fighter! I hope you and your big brother are the best of friends and I can’t wait until I see you both again!

Love Mommy, Daddy, Colin, Shane, Taylor, and Trevor
 

“Remember to keep playing after EVERY storm.”~ Mattie J.T. Stepanek

Alex Schumacher

4/7/03-10/4/14

Print Friendly, PDF & Email

Alex received his angel wings on Oct. 4, 2014, and battled MELAS for 11 years. We love and miss him so much.

Maggie Agnew

6/18/08-2/26/11

Print Friendly, PDF & Email
Maggie had complexes I, III, IV and V. She suffered from the day she was born. Maggie will be forever missed and loved!!
Having her a part of our family has changed our lives forever! She taught us about what love really is and how we should never take any part of life for granted. She had an impact on everyone she met!! Maggie is our beautiful Angel!!

Emily Kathryn Rivers

2/18/92-5/10/14

Print Friendly, PDF & Email

We love you and miss you, sweet girl! We know that you are laughing and dancing in Heaven.
Love always, Mom, Dad, Kelly, and John

Andrew Whalen

10/5/76 - 6/22/03

Print Friendly, PDF & Email
Lost his battle to MELAS.  Throughout everything Andrew had been through, he maintained his sense of humor and tried to see the lighter side of it all.  I miss my brother more than words could describe. He truly was my hero.

Jaycob Alexander Harris

1/31/12-6/30/13

Print Friendly, PDF & Email

Jaycob had mitochondrial complex 1 def. We miss and love you, monkey. Sending you lots of kisses.

Jaycob Alexander Harris

5/9/08-2/15/13

Print Friendly, PDF & Email

Our precious Mito warrior!

Alicia J. Hobley

4/8/08 - 6/3/10 

Print Friendly, PDF & Email
For our daughter Alicia J. Hobley who left her exhausted body on  June 3, 2010, from Leigh’s syndrome to go play in heaven. We miss you Little Red Bean.

Declan Arthur Gardner

8/30/11-9/2/11

Print Friendly, PDF & Email
Passed away from Mitochondrial Disease
Our sweet baby boy Declan, Mommy’s arms ache to hold you, Daddy’s
heart will never heal.  But, how lucky we were to kiss and hug you if
only for a little while.
 
Your beautiful face we will always remember, your little fingers and toes.
Now you’re an angel in heaven even more beautiful than I can imagine.
 
Our sweet baby Declan, we will miss you every day. Please watch over
us and remember we will be together again someday.
 
Love, Mommy, Daddy, Tyler, and Sadie

 

 

Heather Grace Coleman

9/25/02 - 9/16/05

Print Friendly, PDF & Email

A man found a cocoon of a butterfly. One day a small opening appeared and he sat and watched the butterfly for several hours as it struggled to force its body through that little hole. Then it seemed to stop making any progress. It appeared as if it had gotten as far as it could and it could go no further. So the man decided to help the butterfly by taking a pair of scissors and snipping off the remaining bit of the cocoon. The butterfly then emerged easily, but it had a swollen body and small, shriveled wings. The man continued to watch the butterfly because he expected that, at any moment, the wings would enlarge and expand to be able to support the body, which would contract in time. Neither happened! In fact, the butterfly spent the rest of its life crawling around with a swollen body and shriveled wings. It never was able to fly.

What the man in his kindness and haste did not understand was that the restricting cocoon and the struggle required for the butterfly to get through the tiny opening were God’s way of forcing fluid from the body of the butterfly into its wings so that it would be ready for flight once it achieved its freedom from the cocoon. Sometimes struggles are exactly what we need in our life. If God allowed us to go through our life without any obstacles, it would cripple us. We would not be as strong as we could have been. We could never fly. ~Author unknown

We are rejoicing as we weep; our beautiful butterfly is no longer bound by the confines of her Mito cocoon.  With love from Mommy, Daddy, Katie, Nick, and countless others who were able to look past the cocoon of tubes and wires, and caught glimpses of her beautiful, colorful wings.

Connor Scott Millard

3/1/99-9/18/07

Print Friendly, PDF & Email

Connor, you are dearly loved and always remembered.  We hold you so close to our hearts.  Your spunky spirit will always be a part of us as we work to help other children and families.  Thank you so much for all you have taught us and how you have changed our hearts and our lives in so many ways.  With so much love and tears, until we hug and kiss again,

Mama, Papa, Caseygirl and your new baby brother Micah James

Madeline “Kate” Stephens

4/17/01-7/13/08

Print Friendly, PDF & Email

Passed away from MELAS and missed more than words could ever describe.

Randi Evans

Print Friendly, PDF & Email

My daughter, Randi, lost her very brave lifelong battle with
the mitochondrial disease on July 25, 2010.  One word described Randi,
UNIQUE!  She was innocent, caring, loving, and encouraged each of us
to live a simpler life with a child’s perspective.  Randi rarely
complained although she suffered daily with severe pain.  Randi is my
inspiration to continue raising awareness of and making strides for
mitochondrial diseases.

Thank you for remembering my sweet angel, Randi!

Catherine LaFond-Evans

Leo Donald Fortunato

4/5/07-4/22/08

Print Friendly, PDF & Email

Leo Donald Fortunato was born on a snowy April 5, 2007, in
Fredericton, New Brunswick.  Leo struggled for a year with
mitochondrial diseased before dying on Earth Day, April 22, 2008.  His
big sister Emma misses giving Leo a bath and singing songs to him.

The families of Kirland Kilbride, Owen Eaves, Alexis Roung and Tucker
Patterson also knows the incredible loss of a child to mitochondrial
disease.  Please light a candle in honor of all children who have lost
their lives to Mito.
With love and compassion,
Sarah, Mario and Emma Fortunato

Abigail “Abby” Renee Kasuba

4/16/00-3/10/09

Print Friendly, PDF & Email

Passed away from MELAS

Maud Mary Adams Fullerton

01/22/16-09/24/05

Print Friendly, PDF & Email

With two succeeding generations of a Mitochondrial Disease diagnosis, there can be no doubt about your diagnosis too.  You lived until almost 90 years old, but your last 15 years were in a hospital and many years before that were in-home care.

Rest easy, Mum you have a flock of Mito angels to keep your watchful eyes upon with your endless patience and understanding smile.  I am sure they are OK!

I love you. 

Jean

Madison Grantham

7/29/04-8/3/06

Print Friendly, PDF & Email

Madison had Alpers Syndrome

Patricia Mary Smith (nee Hunter)

7/25/29-12/14/80

Print Friendly, PDF & Email
   MELAS
So silently she suffered, 
   So beautiful she was.
We’ll always miss you, Mom!
 Janice, Bruce, Grant & Kevin 

Kayla Marie Dawn O’Flynn

7/22/90-7/14/05

Print Friendly, PDF & Email
This is shared in memory of my sweet girl, Kayla Marie Dawn O’Flynn.  Passed away from Mitochondrial Myopathy, Complexes I & IV, Lactic Acidosis and Sideroblastic Anemia…we love your whole world and miss you every day.  HUGS from your mommy, daddy and l’il sister.
 

Gerald Sacunas

5/1/56-5/14/17

Print Friendly, PDF & Email

My wonderful husband… I will love you, always and forever!  (MELAS)

Heather Grace Coleman

 9/25/02-9/16/05

Print Friendly, PDF & Email

It has been years since Heather left her tired, broken body behind and flew to Heaven to be in Jesus’ arms.

You can light a virtual candle in Heather’s memory at:
Heavens_Playground Shrine At nshrine.com

Heather’s birthday and Angel Day fall during Mitochondrial Disease Awareness Week, a time to learn about the disease that took her from us far too soon.  Please visit www.mitoaction.org for more information, and consider making a donation in Heather’s memory.
We love you, sweet Petunia, we will see you in Heaven, love Mommy, Daddy, (Heidi and Paul Coleman), Nicholas, and Kaitlin  www.carepages.com/carepages/MoobleandMitoandMore

Sabrina “Precious Angel”

8/29/00-8/1/08

Print Friendly, PDF & Email

Incredible life lessons taught and admired by many, and a smile to never be forgotten … love & miss my baby girl.

Jackson Thomas Feliciano

October 5, 2007

Print Friendly, PDF & Email

My son, Jackson Thomas Feliciano, died October 5, 2007, from a serious Mitochondrial Disease known as Alpers Syndrome.  It is one of the most catastrophic Mitochondrial Diseases.  He was 18 months old at the onset of his disease and 2 years old when he died.

Kirkland Kilbride

3/6/01-12/2/07

Print Friendly, PDF & Email

visit our event website: www.mitomarch.ca

Kirkland’s webpage: www.caringbridge.org/canada/kirklandk/

 

George Garman

Print Friendly, PDF & Email

When You Ask

When you ask about her
Leave your fears at the door

Your questions open each window
Watch the sunlight stream in

I see her infectious grin
The soft hand inside mine

Come, sit, let me tell you
These times are too rare

When you ask about her
You give me permission

And I need this sunshine
Like daily bread

I can warm these rooms
With the life-giving memories

When you ask about her
You bring the flowers that never die.

by Alice J. Wisler

 

Rebekka Maelynn Sallee

2/13/04-9/18/16

Print Friendly, PDF & Email
#EveryDayWasAGift
She taught me about life, it was supposed to be the other way around. Not a minute goes by that I don’t think of you.
#MomLovesBekka

Grace Caskey

03/06/05-08/17/17

Print Friendly, PDF & Email

My beloved daughter Grace, who was the brightest ray of love and sunshine to everyone she met. I’m filled with gratitude that we lived and cherished each day as if it were our last. Her beauty remains etched in our souls. We will love and miss her every moment of forever.

Allen C. Edwards

4/29/14-3/23/17

Print Friendly, PDF & Email

I will cherish his smile, laugh, and all the good times.

Jack Thomas Edwards

7/8/08-9/7/12

Print Friendly, PDF & Email

In loving memory of my precious grandson, Jack Thomas Edwards! He was an amazing little fighter who taught all of us what unconditional love is all about! His amazing smile brightened everything!! I miss you, Jack, but it strengthens my heart knowing you are running and playing in heaven.

Jennifer Lee Patrick

7/21/86-11/16/86

Claire Giles Crittenden

3/25/03-4/25/08

Print Friendly, PDF & Email

Leigh’s Disease

Our Precious Angel

Leela Row

7/25/13-8/7/14

Print Friendly, PDF & Email

Leigh’s Disease

In memory of our beautiful daughter, Leela Row. We miss you more than words can express. We thank God every day for every moment and every memory He gave us with you. Each day is one more day we’ve been without you here with us, but it is also one day closer to the day we will have you in our arms once again.XOXO

Mommy, Daddy, Meadow, and Dexter

1 Thessalonians 4:13-14

2 Samuel 12:23

AJ

Print Friendly, PDF & Email

This is my grandson AJ. We lost him to this disease at almost his 13th birthday. He had the most beautiful eyes and smile; he lived his life with his great mom, dad, and sister. He’s sadly missed. Love him and miss him lots.

Cooper Roy & Isla Elizabeth Watson

6/4/10-5/29/11 & 5/15/13-4/8/14

Print Friendly, PDF & Email

Siblings Cooper (11 months) and Isla (10 months) passed away from Leigh’s disease. These were the happiest and most wonderful months of our lives and we miss our precious babies more than words can describe. Save us a spot in heaven, my sweet babies.

Michaela Rae

7/8/93-11/4/03

Print Friendly, PDF & Email

Mitochondrial disease Complexes 1 and 3 impacted

Krysta D’Nea White

6/7/1998-1/16/2014

Print Friendly, PDF & Email

Krysta got to go and meet her Heavenly Father after a stay in the hospital for 3 months. We didn’t know what was wrong. It was not until the autopsy that we found out that she had a Mito  Disease. Be sure to always love your children and give them hugs. You never know when it will be the last time you get to do it.

Ruth Crane

9/19/33-1/2/12

Print Friendly, PDF & Email

Ruth, devoted mother, grandmother, and wife, you spent all your life without reading what was wrong. We will never forget you, wonderful person, God is taking care of you now.  Love from us all, until we meet again.

Jane Windish

4/24/03-4/11/11

Print Friendly, PDF & Email

All our love for Jane today and every day.

Mom, Dad, Henry, and Ella

Nathan Mowrer

Print Friendly, PDF & Email

Nathan passed 13 years ago at age 7 from suspected MELAS. Not a day goes by that we don’t miss him.

Kain Gregory Buell

8/9/2004-9/2/2014

Print Friendly, PDF & Email
Pyruvate Dehydrogenase Deficiency
Mommy’s little bull forever and always. Miss you so much, my baby boy.
Mom, Rachel, and Bailey

Colten Lee Abell

8/7/15-12/28/16

Print Friendly, PDF & Email

My son Colt is dearly missed by his family. We were lucky to have him with us for 16 months. At 10 months is when the symptoms started. We were in the hospital for 41 days, which changed our lives forever. Had no idea my son would go through so much. We, of course, never left him in there alone but so very thankful to all the nurse’s doctors and countless other people. I miss my son every minute and losing him was so unfair because of this horrible disease. I pray the world will be aware of this to hopefully one day soon there will be a cure or even better treatments. So very sorry for anyone who has to endure such horrific situations caused by this disease. I love you, Colt, and know you’re daddy’s angel and will be happy to reunite with you again in heaven.

Archer Banjo Cleary

9/6/12-4/26/13

Melani Rebekah Mehana Fu

03/07/08-01/29/12

Mannix Mags Agnew

2/10/13-6/12/14

Print Friendly, PDF & Email

We could never have imagined the love this little boy would bring into our lives and into the lives of so many others. Mannix was always willing to share the love and hugs with everyone. Making everyone feel so special. We miss him more than anything and hope him and his sister are together and know how much they are loved and missed.

Kathryn Nicole Cole (Katie)

12/28/94-6/15/17

Print Friendly, PDF & Email

Katie fought a relentless battle with unwavering courage and kept her spirits up, no matter how difficult things became. We love you, Sweetie, and you’ll always be in our hearts. TTFN

Ellie Brooke Wilkinson

3/5/07-1/25/11

Print Friendly, PDF & Email

Our beautiful Ellie, a smile that was truly amazing. Forever loved and forever missed.

Una Pozon

2/19/08-5/21/15 

Print Friendly, PDF & Email

She never had the energy to do much in her life except make us all feel loved.

Lauren Francis

3/23/06-6/16/14

Print Friendly, PDF & Email

We love and miss you, Goose!

Bethany Lewallen

11/25/95-10/12/15

Print Friendly, PDF & Email
We miss your smiles and your giggles
We miss your sweet spirit
We miss YOU, baby girl…

Shayla Cecilia Strobhar

7/29/02-5/17/14 

Print Friendly, PDF & Email

This disease took the life of a beautiful, smart, sweet, strong & stubborn 11-year-old this year … We are forever grateful for those 11 precious years!  Shay-Shay taught us that one’s “spirit” is defined by an unbelievable “will” to thrive & live because of the daily love, care, support & self-worth that you are surrounded by. Shayla lived that beautiful life because of her wonderful & caring parents and selfless big sister, Tyla. Spread those wings, sweet angel … we know you are finally running, singing, talking and playing! I love you with all my heart. Joanie

Erin Flynn

Passed February 7, 2014

Print Friendly, PDF & Email

Remembering and loving my daughter Erin. Erin passed on February 7,  2014.

Levi Jacob Kendall

9/30/12-8/21/13

Ava Merrill

7/8/14-3/17/15

Print Friendly, PDF & Email

We lost my beautiful granddaughter when she was just 8 months old. In loving memory of our sweet angel Ava.

Wyatt Daniel DeStephano

7/23/02-9/27/13 

Print Friendly, PDF & Email
Wyatt brought such light to our lives. His heart held such an immense amount of love and hope. Wyatt was our very own superhero, defying the odds since 2002. As he would say himself, “Anything is possible.” We are so very proud of our dear boy and the legacy that he has left behind.
We miss you as much as we love you … and we couldn’t love you anymore.
xoxo – Mommy, Daddy, Maggie and Jilly

Corynna Strawser

04/28/97-12/11/13

Eric Thomas Clement

11/28/06-11/26/12

Adrian Corona

04/17/17-07/18/17

Print Friendly, PDF & Email

Adrian Corona is our first son; unfortunately, we lost the battle against mitochondrial disease RRM2B. This was a silent death and we had to let our baby Adrian rest and let him go to heaven, where I know he is now & where he will always be. Our little angel, we never would have thought in a million years we would go through this devastating experience. God allowed us to have him for such a short time but, for that time, we are thankful. We were the happiest family, too. We feel as if it was a beautiful dream that we will never forget. He knows how much all his family loves him and will never forget him. Baby Adrian will always and forever be in our hearts. Adrian was strong and fought hard. You will never be forgotten, Adrian Corona, our little hero. Mom & Dad love and remember you always.

Oliver Henry Fleming

7/10/09-1/12/14

Robert Donal Devine

Print Friendly, PDF & Email

My son passed away on March 10, 2017. He fought a good battle to this horrible disease. He was 10-1/2 years old. My heart is broken and I miss him every second of every day.
Lorene Devine, Mom to a Mito Angel in Heaven

Raelynn Musacco

9/16/06-10/15/08

In loving memory of Carys Karpp

4/23/04-4/14/13

Print Friendly, PDF & Email
I miss you every second and every minute of each and every day. I love you.
Love,
Mom

Diego F. Lumauig

9/14/06-8/14/14

Print Friendly, PDF & Email

 

Diagnosed in early 2009 with MELAS, our little Diego fought the disease like a true warrior.  From his first stroke in 2009 through his pulmonary issues a few years later, and many other ailments, his inner strength never gave up.  “A warrior must only take care that his spirit is not broken.” Diego’s spirit never broke.  Our little warrior’s battle against MELAS ended on August 14, 2014 – one month shy of his 8th birthday. Diego’s torch will never be extinguished, our journey will continue.  One day the true cure for this disease will be available.  On that day, all our warriors will celebrate a victory.  We love you, Diego!
You are the shining light. Love you always. Nurse Clare

Rachel Anne Flynn

01/25/01-03/18/09

Print Friendly, PDF & Email

Rachel was my sister. I still remember the first day we brought her home. She was intelligent, funny, and kind. The doctors didn’t figure out what was wrong until it was too late. Many of their interventions made the problem worse. We need more research. Better research. Actual diagnosis and treatment options. Thank you for the work you’re doing to help other children like Rachel.

Cooper Jackson Casavan

7/16/07-10/12/13

Print Friendly, PDF & Email

In memory of our buddy, Coop the Dude – our favorite superhero.

Mito Angel Scott

Samuel Cutliff

Sept. 10, 2012

Print Friendly, PDF & Email

Leigh’s Disease

The Lord blessed us with a special gift … Samuel. He always had a smile on his face and captured all who met him with his beautiful blue eyes and curly blonde hair! He also had special needs. He passed away on September 10, 2012, from Leigh’s Syndrome, a mitochondrial disease.  Samuel taught us and touched our lives more than any other person. He taught us to treasure each moment, to be content in all circumstances and to put our faith in God through it all. His smile was contagious, his laugh was like music to our ears, and his heart was pure. He loved his family and friends. He loved music, dancing, snuggles, and kisses. He always wanted to be holding our hand and will forever hold our hearts. Our hearts will never be whole again with him gone, but we rejoice that he is now healed and whole. He is praising our Lord and running on the streets of gold. He is perfect. We praise the Lord for giving Samuel to us for almost 8 years and we will treasure each and every memory.  Until we see you again, sweet Samuel … Daddy, Mommy, Gracie, Annaleigh, and Micah ♥

Aspyn Block

11/14/01-7/15/02 

Print Friendly, PDF & Email

Loved and missed more than words could ever describe!

Brody Tucker

4/25/07-3/7/09

Print Friendly, PDF & Email

We miss you every day, Brody. I love you and hope you’re running free in heaven’s playground!

Carter Buffum

Passed on May 19, 2016

Print Friendly, PDF & Email

In loving memory of Carter Buffum. Warrior of 7 years, from Michigan, who passed on May 19, 2016.

Hans-Joachim Kirsch

1959-2014

Print Friendly, PDF & Email

My husband passed away this year on April 4 from complications of MELAS. We miss his smile and his love.

Leslie Whitt-Williams

6/17/88-10/21/12

Katelyn Shumaker

5/24/99-10/10/07

Rina Goldberg

Print Friendly, PDF & Email
Our daughter, Rina, lost her battle with Mito on December 29, 2010, two weeks after her 15th birthday. Rina was passionate about raising disease awareness and making a difference in this world.
 She left this world with this message: “Love Life, Dream Big, Be Positive.”
Before she passed away, Rina wrote a fictional film, “The Magic Bracelet.” As Rina dreamed, it was produced and premiered in Hollywood in May of 2013.”The Magic Bracelet” fulfills Rina’s final wish. Some of her final words to her mom were, “Promise to take care of my film.” Make A Film Foundation is proud to have been able to be a part of making this extraordinary dream come true. “The Magic Bracelet” stars Bailee Madison (The Good Witch, Parental Guidance), Hailee Steinfeld (Pitch Perfect ), Jackson Rathbone (Twilight Franchise), J.K. Simmons (Oscar-Whiplash), Kaitlin Doubleday (Nashville) and James Van Der Beek (Dawson’s Creek). The film was adapted by Academy Award winner (Juno) Diablo Cody and directed by Jon Poll (The Greatest Showman). Rina’s hope was that her film would continue to spread awareness about Mitochondrial Disease. The film has been shown at over 50 screenings globally,  and has won more than 10 awards. It is now shown as part of the yearly curriculum of a school in OH when teaching about Mitochondria in Biology.
 Available on DVD: www.makeafilmfoundation.org   Rina’s beautiful film journey can be followed on FB: Rina’s Magic Bracelet Movie
While each step of Rina’s film is so very bittersweet because she is not here to see it, we know she will always be in the director’s chair.
We thank MitoAction for giving us a space to be able to honor our remarkable children together. We miss Rina every moment more than words can say.
Stacy and Ari Goldberg

Stacy Goldberg

Sophia Beatriz & Isabel Eryn

10/17/98-12/11/98 & 1/21/01-3/29/01  

Print Friendly, PDF & Email

My two beautiful, perfect angels in heaven …

Allen Cannon Edwards

Olivia McCormick

8/24/2010-10/31/2013

Print Friendly, PDF & Email

Our precious angel lost her battle to the mitochondrial disease on Oct. 31, 2013. She was a beautiful blessing from God that we will forever cherish and remember in our hearts each and every day. We love you always sweet girl rest in heavenly peace♡♥♡.

Leela Row

7/25/13-8/7/14

Arihanna K. Woodall

6/21/11-12/8/13

Print Friendly, PDF & Email

Arihanna lost her battle to Pearson’s syndrome on 12/8/13.

Brielle Lana Harmon

11/22/11-10/19/14

Print Friendly, PDF & Email

Loved and missed by so many.
“Bree Bree” was such a strong and courageous little girl through this battle, but she was also such a happy little girl with the most amazing smile which we will cherish forever.  FOREVER OUR HERO!

Kelci Shigeta

12/7/08-8/31/13

Print Friendly, PDF & Email

To my beloved daughter Kelci! She was only 4 years old and since she was 2 years old she fought for her life. Within the last year, it was very difficult; she was on life support with a ventilator, home dialysis, oxygen, tons of meds, chest treatments, and 24/7 care. I was her primary caregiver and we were always in and out of the hospital months at a time with the longest being a 5-month period.   It’s been 19 days since she has passed and it’s getting harder to deal with rather than easier, but I know time heals the heart!  I miss you, Kelci girl, and you will forever be in my heart!  I LOVE YOU!

Daithì Hasson O’Doherty

11/5/14-3/5/16

Print Friendly, PDF & Email

Missed so much by his mammy, daddy big sister Farrah and his grannies and granda, aunts, uncles, cousins, and friends.

Kaidon Andrew Stamper

10/24/03-04/24/13

Print Friendly, PDF & Email

Unspecified mitochondrial disease

Kaidon was the light of our Home. He couldn’t say many words but he definitely could let you know when he wanted something. He loved life as long as he had his favorite toys & cartoons on. We miss him more & more each day. Love You to the Stars & back, Bubby.

Mommy, Memaw Lisa & All

Khristen Abshire

7/18/97-3/9/13

Print Friendly, PDF & Email

I lost my 15=year-old daughter to Mito 3 years ago. She was my joy, my reason for living, and my best friend.

Christopher Joseph & Bryce Alexander Caldwell

11/6/01-12/20/07 & 4/17/06-12/30/08

Print Friendly, PDF & Email

We will forever remember their strength and smiles. Not a day goes by that they are not missed. Their personalities will forever live on in the hearts of anyone whose lives were touched by them. We love you monkey and little monster!

Love Mommy and Daddy

Sailor Isabel Assis

7/23/15-6/10/16

Print Friendly, PDF & Email

Sailor was our firstborn and the light of our lives. We loved our little princess more than anything. Sailor had troubles when she was first born but after several tests and her miraculously recovering we thought it was just a little mishap and our precious baby was healthy. But at 7 months she started having problems again and she rapidly deteriorated over the next few months. The morning we received the diagnosis of Leigh’s syndrome she had troubles breathing and was rushed by ambulance to the PICU. She was intubated and after 3 weeks we had to make the heart-wrenching decision to remove life support. We miss and love her more every day.

Brandon Harris

1/31/03-6/8/12

Print Friendly, PDF & Email
Our sweet precious Brandon smiled and gave so much love. He passed away on June 8th, 2012 from Leigh’s Disease. We are so blessed to have had 9 plus years with him.  He taught us what life is really about.  We met friends that we would never cross paths with if it wasn’t for Brandon.  We miss him every day but know he’s an Angel in Heaven.   We love you, Baby “B.”

Sandra K. Russell

5/5/56-8/6/08

Print Friendly, PDF & Email

In each of her roles, wife, daughter, mother, sister, aunt (here with her lovely niece Anna), Sandra brought passion, joy, and energy. She faced MELAS with strength and grace and left nothing on the table. Sandra is sorely missed by all who were blessed to be part of her life.

Scott

8/27/73-9/19/85 

Print Friendly, PDF & Email

I carry you in my heart forever. Love Mom xx

Danica Wilson

3/25/10-12/17/15

Leah Raquel Lucia

2/17/11-6/6/13

Print Friendly, PDF & Email

Our little Princess Leah Raquel Lucia, she illuminated our lives and the world and brought so much meaning to our lives. We’ll never stop missing you, Leah-boo.

Sara Montgomery

Print Friendly, PDF & Email

Treasure each day you have with your child. If your child asks you to play a game with them and you have laundry to do, let the laundry go another day or do it later after your child is in bed. Take the time to spend with your child. You never know if you will get another chance.

Bridget Lucille Nuccitelli

7/18/07-9/15/07

Print Friendly, PDF & Email

Bridget is suspected to have died from Leigh’s Disease or similar mitochondrial/metabolic disease (still unidentified)

 

Jacob Hallberg

Print Friendly, PDF & Email

We keep Jacob in our hearts and honor his life every day by trying to live in the moment, express kindness, and love life the way he did.

Dominic Angelo Nuccitelli

4/16/01-9/14/01

Print Friendly, PDF & Email

Dominic suspected to have died from mitochondrial/metabolic disease (still unidentified, but possibly Leigh’s disease or similar)

Connor Troy

6/30/00-4/16/13

Print Friendly, PDF & Email

Partial Cytochrome c oxidase deficiency

Connor was the happiest boy. Always smiling!  He never complained even though he was probably always in pain. He loved to hold your hand and would ask everyone he met to play the memory game or Yahtzee.  He loved yellow.  Can’t believe you are 16 now. We miss you, Connor!

William Tuthill Dickerson

5/8/91-4/12/94

Print Friendly, PDF & Email

We went up to Noanet Peak this evening to watch the full moon rise. While up there we lit a candle to honor our dear William Tuthill Dickerson (May 8, 1991 – April 12, 1994) who has been our light and inspiration since he died 19 years ago.  Blessings to all our fellow Mito families.

Amanda and Burley Dickerson

Diego — Fought MELAS until 2014

Print Friendly, PDF & Email

“A warrior must take care that his spirit is not broken.”
To our warrior angel Diego. Your love and strength continue to inspire us. We miss you and will love you until the end of time.

Leslie Cora Whitt-Williams

6/17/88-10/21/12 

Print Friendly, PDF & Email

Leslie had a very bubbly personality.  She loved volunteering and she loved her family.  Her daddy, sister and I miss her so very much.  We will see you again someday.

David Bowen

Print Friendly, PDF & Email

In memory of my lovely Husband David (Dave) taken by M.E.L.A.S nearly two and a half years ago. Loved and never forgotten from your loving wife Joan. Xxx

Sterling Curran Smith

6/4/12-4/8/13

Print Friendly, PDF & Email
Alpers’ Disease

My little hero, ten months was too short a time with you. We miss you every day and remember you always. Our love for you will never fade.

Kisses from Mama, Nana, Papa, Uncle Mac and Aunt Rhys

Bethany Lewallen

11/25/95-10/12/15

Print Friendly, PDF & Email
Our precious Bethy Boo, our oldest daughter who was and remains our inspiration daily. Even as MELAS robbed her of the ability to speak, swallow, walk, and eat, she never lost her amazing smile or her faith in God and our Lord Jesus Christ. She lived her life as a testimony, and we miss her so very much.
We love you, baby girl!!

Taylor Renee Lawhead

2/11/11-6/2/13

Print Friendly, PDF & Email
Antelope, CA
“Forever Our Lovebug, always remembered, never to be forgotten.”

Hayden Anthony Hamilton

03/05/08 - 06/13/11

Print Friendly, PDF & Email

We love and miss you SO much!!

Isabella Carreiro

8/23/02-7/28/10

Print Friendly, PDF & Email
Leigh’s disease

British Columbia, Canada

Miss you always …

Gabriel Ruebelmann

4/27/05-4/15/15

Brady Waddick

Print Friendly, PDF & Email

This is in honor of my sweet nephew Brady Waddick, who was lost to MELAS syndrome in March 2013 at the tender age of 15. Brady had a contagious smile and a personality that would light up the room. He is sadly missed by all who knew him, especially his family. Our lives will never be the same without him, but he will never be forgotten. Good-speed Brady…wish I could tell you auntie loves you one more time, but I know you can still hear me and I know we will meet again someday. May your sweet angel soul rest in peaceful dreams.     

Desmond Gray

Print Friendly, PDF & Email

We miss and love him very much.

Sharon Perkins

12/5/67-8/13/13

Print Friendly, PDF & Email

MELAS

Sharon was a free-spirited and tenacious woman who enjoyed the small, often overlooked, aspects of life. She was a loyal sister and daughter, and a friend to many. So many are scared to live, scared to approach a stranger, and scared to truly be themselves, but Sharon was never fearful, and always a fighter. She loved people and kept her loved ones dear to her. Compassionate, caring, and sensitive are just a few words of who Sharon was. She left the light of inspiration and taught us to appreciate life, no matter what adversity stands in our way. May you rest in peace and suffer no more.

Alyssa Brooke Douglas

5/21/96-8/5/14

Print Friendly, PDF & Email

I wish that you had known the impact you made on people, lives that you changed.

Marti Hall

Print Friendly, PDF & Email

died of mitochondrial disease in 2010, with Danny Boy

William Reed Jr.

Print Friendly, PDF & Email

On August 15, 2016, we lost an amazing man to MELAS. William A Reed Jr was the father of 5 and the soulmate of 1. He never gave up the fight. He always shared with others about his disease and would encourage them to “Live for today, because tomorrow is not a guarantee.”

I have many memories of Bill, of his love, compassion, and ability to laugh and live. I think the biggest memory I have would be a Christmas after stroke number 4 where we sat down with the children and asked them their memories. The answers we expected where far from what they said. They said they remember the water fights, game playing, and dates with dad … Bill was crying because he knew that his time was short, but that the kids had amazing memories to remember him with.

I remember a Halloween just after stroke number 3 where we were out looking for costumes, and Bill bent over to look at something … but I had “lost” him. That year he chose to dress up as a zombie and went to rehab at the hospital. He loved scaring the therapists. Then there was the one a couple of years later where he went in a hazmat suit. At that time I was managing a hospital gift shop and he was volunteering that day. He loved the concerned looks he got walking around the hospital.

There where times he would come home from work and tell me about someone without money to buy food, and we would go shopping in our cupboards to feed them. When he worked in a job that had him traveling all over the USA to install computers he made tapes for the kids to listen to … he read them bedtime stories so they would not miss him. Our last camping trip was with a group of friends and family. Our group entered a sandcastle building contest and won 2nd place. He loved being by the ocean and spending time with family and friends. It was only a few months later that stroke numbers 6 & 7 took his brain away. It would be years later after stroke number 9 that his body would be released.

There are so many good stories to share of him and his life.

Frankie Gordie Kirkby

Print Friendly, PDF & Email

Mitochondrial Depletion Disease

 

Baby Beluga in the deep blue sea

Swim so wild & he swim so free

Heaven above, sea below & a

little white whale on the go

 

     BOOP BOOP

 

remember Grama used to bounce you

when she said BOOP BOOP & you would

LAUGH LAUGH LAUGH

 

I miss you so very much and love you

forever and always my little

Stinky

 

We love you, Frankie! Mommy and Daddy

To our sweet nephew who we know is always looking down and out for us – we miss you like crazy, not a day goes by where we don’t think about you.Today we light a light for you but it’s you who has lit up our lives and shown us how beautiful life is – never again will we take anything for granted.We love you baby boy – If we had a single flower for every time we think about you, we could walk forever in your garden.

 To our beautiful sister and brother – you have shown us what strength means and we will always look up to you for your courage, patience, love, and honor.We hope to one day be as great as parents as you are – it’s been a journey we never thought we would be on, but growth in love comes from a place of absence,where the imagination is left to its own devices and creates you to be much more than reality would ever allow.“When you love someone – you’ll do anything”

 We love you guys – Auntie Margaret & Uncle Shawn

Frankie, you have touched my heart & soul forever and always.  You taught so many life lessons to everyone in such a short time and always brought out the good in people. You made everyone so happy and as you know you were blessed to have the BEST mommy and daddy in the whole universe.

LOVE YOU FOREVER & ALWAYS, GRAMA

Erin Elyse Flynn

9/29/84-2/7/14

Jack Jensen

1/17/06-2/3/07

Print Friendly, PDF & Email
Jack had cardiomyopathy caused by mitochondrial respiratory complex1 deficiency. He always had a smile on his face and there’s not a single day I don’t miss him. I know a piece of me will always be missing until we are together again.

“So come with me, where dreams are born, and time is never planned.

Just think of happy things, and your heart will fly on wings, forever, in Never Never Land!”

Love you forever my very own Peter Pan xxxx

ReeNa Holleran

6/8/89-3/30/09

Print Friendly, PDF & Email

In memory of our daughter ReeNa Holleran.  It’s been 7 years since she left us. Since that terrible disease (MELAS) took her from us.  We miss her so much.  ReeNa was so strong to fight this.  The pain and suffering she went through.  Love you ReeNa.

William Chandler Brown

1990-2012

Print Friendly, PDF & Email

1990-2012 — MELAS 

Isaac Farooq Malik

9/27/08-1/24/10

Print Friendly, PDF & Email

Isaac was the most gentle, beautiful, loving little boy. He brought joy to our world and changed it forever. He is dearly missed but oh so loved! As what would have been his 8th birthday approaches, I often wonder what he would have been like as a big boy. Love you, Isaac, always, Mummy xxx

Isaac Farooq Malik

9/27/08-1/24/10

Print Friendly, PDF & Email

Leigh’s Disease

Deeply loved and missed xxx

Amy Jeannie

5/23/14-3/13/16

Jacob Wright

12/6/10-4/20/12

Print Friendly, PDF & Email

Leigh’s Disease

The 501 days we had you on this earth were the best of our lives. We love and miss you angel and promise to never give up the fight. Butterfly kisses baby bear mummy and daddy xxxx

Alyson/Aly Schwenk

2/8/81-4/13/15

Print Friendly, PDF & Email

Aly saw the good in each person and made each day memorable. She believed in ‘Paying it Forward” in kindness and caring about others. Her leaving us has left a great void in our hearts. However, her legacy of selfless Love will live on in our hearts and through her artwork and poetry.

Owen Stump

8/12/06-5/26/10

Print Friendly, PDF & Email

Owen was our little fighter. Part of him still lives on through his little brother, Levi, who also suffers from Alpers Disease.

We Love You, Angel,

Daddy, Mommy & Levi

Kennedy Lynn Burgess

9/12/01-5/6/16

Print Friendly, PDF & Email

 

Our princess Kennedy lost her battle with Mito (Leigh’s syndrome) on May 6, 2016 at 14 years old. While she had many struggles with her illness, she showed us that life is precious and to try to be happy. She smiled through so many of those struggles. She was loved by so many and we sure do miss her smile. I am sure she is watching over all of us, especially her little sister Lauren, who is also fighting mitochondrial disease. Keep dancing with the angels, baby girl!

Julian R. Fonville

10/30/09-02/07/12

Caroline Pereira Duraes

5/16/01-9/4/11

Print Friendly, PDF & Email
Kearns Sayre Syndrome (KSS)
Caroline was a brave and happy little girl who liked to laugh and made others laugh. She had a positive impact on all who knew her. Even though severely ill for many years she never complained. She was often surrounded by her books and enjoyed time spent looking through them. But most of all she loved coloring, sometimes for hours at a time; her favorite colors were purple, pink and yellow. We miss her so much and are thinking about her every day!

Love Candido (dad), Anita (mom), and Gabriel (brother)

Maiya Blackmon

10/15/15-4/2/16

Print Friendly, PDF & Email

In loving memory … Maiya was diagnosed with Leigh’s disease. Maiya had a contagious smile and started rolling over early. She had a very special and unique bond with her older brother, who misses her greatly. She reacted to her mom’s voice in ways that are magical. She stole her daddy’s heart immediately and they played dress-up together. Her nana has a soft spot that only she can fill. She is greatly missed and loved forever.

Jack Thomas Edwards

Print Friendly, PDF & Email
At 4 years old, Jack lost his battle to Mito on 09/07/12
I love and miss him desperately! 
Mamaw

Laney Daniel

11/29/85-3/25/16

Katelynn Joselle Misola

5/29/11-2/24/15

Allie Remarski

12/26/88-10/5/13

Print Friendly, PDF & Email

Allie was beautiful inside & out. She LOVED her Family & Friends. She had a beautiful spirit & would give of herself unconditionally. Her smile lit up a room & her laughter was contagious even on the toughest days. Allie fought Mito until she took her last breath. She is an inspiration to so many, especially us. She wanted to be remembered as a sports enthusiast & an advocate for those who couldn’t speak for themselves. She is missed & loved every minute of every day.

Brenan Alijah Petty

11/06/13-10/08/14

Print Friendly, PDF & Email

It has been almost a year now since Brenan received his angel wings. We noticed something was wrong at 3 months. By 6 months it was determined possible Leigh’s. The disease seemed to be progressing little by little. At 9 months it was determined he could no longer breathe on his own. The last of August 2014, he received a trach. He seemed to be doing well until he started having infections. We decided near the end of September to have another MRI to see how much it had changed. By then it had taken over his brain stem. His kidneys were beginning to shut down. His mother had to make a decision no mother ever wants to make. The day before he was to be removed from the machine, Brenan passed away on his own. We miss him every day but know he is no longer suffering. His short life touched so many lives.

Morgan Danielle Gilbreath

8/5/02-11/8/14

Print Friendly, PDF & Email

Morgan was a beautiful girl with a laugh that was extremely contagious. Her smile would light up a room, and her hugs could turn a bad day into a great day. She is truly missed by so many but still loved. Morgan, we love and miss you so very much. We now know you are dancing in the sky, singing with angels and eating ice cream with Grandpa. XOXO

Autumn Ruth Kenney

6/11/08-5/31/15

Print Friendly, PDF & Email

Autumn is so loved & so beautiful. She had Leigh’s Disease with Complex 4 Deficiency Surf 1. She fought a long hard fight but lost her battle 11 days prior to her 7th birthday & is now flying free with the Angels. Autumn was loved by so many & even though my heart is breaking I know she is free.

Caleb Jason Jacobs

4/29/10- 9/19/12

Print Friendly, PDF & Email

Caleb was an amazing kid with a magnetic personality. He was diagnosed with Leigh’s Disease at 18 months old and passed away 11 months later. We will miss him always.
Mom, Dad, Alyssa, Allison, and Jordyn

Wardell Williams-Gray

2/15/91-12/31/01

Print Friendly, PDF & Email

Mitochondrial Encephalopathy

Michael C. Vassallo

3/9/73-3/24/15

Print Friendly, PDF & Email

MELAS – Loving husband and father, missed so much.

Jayden Rieffel

12/23/10-09/23/12

Print Friendly, PDF & Email

Jayden lost a 21-month battle to Leighs disease & Mito depletion. His twin brother, Joshua, 33 weeks gestation,  never got to take a breath.

Johnathan Gabriel Cunard

6-16-11 to 7-27-19

Print Friendly, PDF & Email

Missing you every second of every day

Danielle Laurine Jollimore

June 18, 1988 - April 9, 2019

Print Friendly, PDF & Email

This previous soul ‘never gave up’ and was a light and inspiration to everyone she knew. Taken too soon, passed away in her sleep with complications from MELAS that affected the heart, kidneys, legs, pancreas, hearing and caused seizures.

Bonnie Codier

Print Friendly, PDF & Email

Missing our sweet Bonnie, who left us this past February to join her Lord and Savior in heaven. She ran her race with everything she could, and finished, having changed so many lives. We’ll love you forever, Bonnie!! Dance unfettered!!

Brayden Burge

9/29/04-10/11/13

Joshua Klingler

2/26/13-12/2/14

Print Friendly, PDF & Email

Leigh’s disease

His smile was contagious and so was his laugh! He brought us so much joy!! He lives in our hearts until we meet him again someday along with our Savior Jesus.

Mack Michael Harrington

7/25/07-9/22/09

Print Friendly, PDF & Email

mtDNA 8993T>G Leighs disease

Eternal life with Jesus forever❤

Aiden Yong-Yeon Lee

 04/03/06-11/06/14

Print Friendly, PDF & Email

We miss your laughter and your silly jokes, but most of all your snuggles.  You taught us all so much in your short time here.  We miss you more each day; we love you, Peanut.