MitoSocials

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Virtual Mito Patient & Family Socials 

Our virtual MitoSocials help connect families with other mito families in their local communities. These low-key, relaxed gatherings allow mito families to meet each other, share stories, give and get support, and realize they’re not alone on this journey. We want to help you get support closer to home, and are hopeful that a MitoSocial will offer just that.

 

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April 2020

Washington, DC Area Virtual MitoSocial

April 18 @ 2:00 pm - 3:30 pm

Join MitoAction and host Soozi Scheller on Saturday, April 18th at 2:00pm EST for a virtual MitoSocial! During this time, you can safely connect with other mito families in your local community.  This virtual gathering will allow you to "meet" each other, share stories, give and get support and know that you are not alone during this COVID-19 pandemic, all from the comfort of your own home!  

Find out more »

FAOD Virtual MitoSocial – Group 1

April 30 @ 7:00 pm - 8:30 pm

Join MitoAction and INFORM for a virtual MitoSocial on Thursday, April 30th at 7:00pm EST to connect with other FAOD families that share a similar diagnosis. This virtual gathering will allow you and other families to "meet" each other, share stories, give and get support, and know that you are not alone during this COVID-19 pandemic, all from the comfort and safety of your own home! This session will be for families with a diagnosis of: CPT1a, CACT, CPT2, CUD,…

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May 2020

FAOD Virtual MitoSocial – Group 2

May 6 @ 7:00 pm - 8:30 pm

Join MitoAction and INFORM for a virtual MitoSocial on Wednesday, May 6th at 7:00pm EST to connect with other FAOD families that share a similar diagnosis. This virtual gathering will allow you and other families to “meet” each other, share stories, give and get support, and know that you are not alone during this COVID-19 pandemic, all from the comfort and safety of your own home! This session will be for families with a diagnosis of: MCAD, MCHAD, MCKAT, SCAD,…

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Michigan Virtual MitoSocial

May 9 @ 11:00 am - 12:30 pm

Join MitoAction on Saturday, May 9th at 11:00am EST for a virtual MitoSocial for mito patients and families in Michigan! During this time, you can safely connect with other mito families in your local community.  This virtual gathering will allow you to "meet" each other, share stories, give and get support and know that you are not alone during this COVID-19 pandemic, all from the comfort of your own home!    

Find out more »

New York Virtual MitoSocial

May 12 @ 7:00 pm - 9:00 pm

Join MitoAction on Tuesday, May 12th at 7:00pm for a virtual MitoSocial for mito patients and families in New York! During this time, you can safely connect with other mito families in your local community.  This virtual gathering will allow you to "meet" each other, share stories, give and get support and know that you are not alone during this COVID-19 pandemic, all from the comfort of your own home!    

Find out more »

Washington, DC Virtual MitoSocial

May 16 @ 2:00 pm - 4:00 pm

Join MitoAction on Saturday, May 16th at 2:00pm for a virtual MitoSocial for mito patients and families in the Washington, DC area! During this time, you can safely connect with other mito families in your local community.  This virtual gathering will allow you to “meet” each other, share stories, give and get support and know that you are not alone during this COVID-19 pandemic, all from the comfort of your own home!    

Find out more »

Kansas Virtual MitoSocial

May 17 @ 3:00 pm - 5:00 pm

Join MitoAction on Sunday, May 17th at 3:00pm CST for a virtual MitoSocial for mito patients and families in Kansas! During this time, you can safely connect with other mito families in your local community.  This virtual gathering will allow you to “meet” each other, share stories, give and get support and know that you are not alone during this COVID-19 pandemic, all from the comfort of your own home!  

Find out more »

Newly Diagnosed Support Call

May 20 @ 7:00 pm - 9:00 pm

Going through the process of a diagnosis for mitochondrial disease is emotionally and physically exhausting.  Join this free Zoom meeting on May 20th to connect with other adult patients and parents of children who are struggling with a "mito" diagnosis. After registering, you will receive a confirmation email containing information about joining the meeting.

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FAOD Virtual MitoSocial

May 21 @ 6:30 pm - 8:00 pm

Join us to connect with other FAOD families. This virtual gathering will allow you and other families to "meet" each other, share stories, give and get support, and know that you are not alone during this COVID-19 pandemic, all from the comfort and safety of your own home! After registering, you will receive a confirmation email containing information about joining the meeting.      

Find out more »

Florida Virtual MitoSocial

May 26 @ 7:00 pm - 9:00 pm

Join MitoAction on Tuesday, May 26th at 7:00pm EST for a virtual MitoSocial for mito patients and families in Florida! During this time, you can safely connect with other mito families in your local community.  This virtual gathering will allow you to “meet” each other, share stories, give and get support and know that you are not alone during this COVID-19 pandemic, all from the comfort of your own home!

Find out more »
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Would you like to host a MitoSocial?
It’s easy! Here’s what the host will do:
  • Secure space for the Social, such as a hospital, church basement, community center, or school and choose a date.
  • Buy snacks and beverages for the event using a stipend from MitoAction.
  • Take care of the day-of setup and cleanup.
  • Send MitoAction photos of your Social, your sign-in sheet, and your receipts.
Here’s what MitoAction will do:
  • Send email invitations to mito patients and families in your area.
  • Manage the RSVPs.
  • Provide a stipend for snacks and beverages.
  • Provide sign-in sheets, name tags, and mito materials to have available at your event.
  • Post photos and a write-up of your Social on our Facebook page.

Host a Social