Let’s Be the Change We Want to See in the World!
“Almighty Brycey’s” mom, Jamie Derosier, has turned her pain into power by teaming up with MitoAction to start the Nice4Bryce Kindness Project. Bryce Derosier passed away on June 27th, 2018, at only 16 months old, in his parents’ arms after a 20 hour seizure began a four month fight against mitochondrial disease.
“We knew we wanted to create a program that would allow us to support others as so many had done for our family. Teaming up with MitoAction and having them house the Nice4Bryce Kindness Project is a true testament to the personalized and life-changing support MitoAction provides for families like mine,” said Jamie.
The entire Boston community rallied around the family as Bryce fought this devastating disease. His impact could be seen in communities across the state as families lit up their homes green, displayed “Fly High Sweet Bryce” and “Almighty Brycey” signs and as thousands lined the streets, including hundreds of police officers, on Bryce’s final ride home from Boston Children’s Hospital.
As we go forward with the Nice4Bryce Kindness Project, we will be able to embrace other families with the sense of community and unconditional love that surrounded the Derosier family during their most difficult days. Complete strangers came forward to offer their love and support as they were inspired by our “Almighty Brycey’s” story and the lessons we didn’t even realize at the time he was teaching us all. “We began to witness the community embracing not just our family, but one another by doing acts of kindness in honor of my son,” said Jamie. “By doing so, they showed Bryce that his life had made a difference in theirs.”
We hope that you will join the Derosiers and MitoAction as we support our mito families by wrapping our arms around them during hospital stays, providing financial support and sharing the same kindness that others shared during Bryce’s journey. Whether it’s providing a parent a fresh pair of sweatpants to wear in the hospital, a gift card to Starbucks to give them a few moments break, or helping to pay for a month’s supply of prescriptions, our goal is to show families that they are never alone on this journey and that the MitoAction community will rally behind them and uplift them when they need it most.
Join us in sharing Bryce’s story and continuing the impact he made on Boston’s heart with everyone in the world!
Do you know a family who needs us to wrap our arms around them? Nominate a family below.