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Monthly Mito Expert Series

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Our monthly educational webinars feature guest speakers addressing topics important to the mito community, giving patients and families unprecedented access to leading clinical experts.  More than 125 presentations have been recorded and posted online, making these presentations available to you at your convenience.  The Mito Monthly Expert Series are generally held the first Friday of each month at 12:00pm noon.  See the events calendar for our upcoming presentations.

 

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August 2020

August Mito Expert Series – IEP Considerations for Students with Mitochondrial Disorders – Gena Padgett

August 7 @ 12:00 pm - 1:30 pm

Join MitoAction and Gena Padgett, a licensed school psychologist for our August Monthly Mito Expert Series presentation titled IEP Considerations for Students with Mitochondrial Disorders.   About the Speaker: Gena Padgett is a licensed school psychologist and teacher for the Deaf and hard of hearing in the state of Indiana.  She completed her Bachelor’s degree in Deaf Education at Converse College in Spartanburg, South Carolina and received her Master’s degree in Linguistics from Gallaudet University in Washington, DC.  Gena proceeded…

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September 2020

September Mito Expert Series – Charting the Future: What PDCD Teaches Us About Mitochondrial Disease – Dr. Rebecca Ganetzsky

September 11 @ 12:00 pm - 1:30 pm

Join MitoAction and Dr. Rebecca Ganetzsky, the Asst. Professor of Pediatrics at the University of Pennsylvania and an attending physician in the Human Genetics Division at the Children’s Hospital of Philadelphia (CHOP) for our September Monthly Mito Expert Series presentation titled Charting the Future -- What PCDC Teaches Us About Mitochondrial Disease! About the Speaker: Rebecca Ganetzky, MD is an assistant professor of pediatrics at the University of Pennsylvania and an attending physician in the division of Human Genetics at…

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You can also find these presentations in our Spotify, Google Podcasts and iTunes podcast library.

Cardiac Issues & FAOD
Date: 07/26/2020
Speaker: Dr. Kathryn Chatfield
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Caregiver Panel Discussion
Date: 07/26/2020
Speaker: Various
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Disability Benefits & Planning
Date: 07/26/2020
Speaker: Annette Hines & Mark Worthington
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Research & Clinical Trials Update
Date: 07/26/2020
Speaker: Dr. Jerry Vockley & Dr. Melanie Gillingham
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Sick Day & Emergency Protocols: Helpful and Potentially Harmful
Date: 07/25/2020
Speaker: Dr. Mark Korson
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Newborn Screening in FAOD
Date: 07/25/2020
Speaker: Dr. Georgianne Arnold
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Pre-Clinical Treatment Studies in FAOD
Date: 07/25/2020
Speaker: Dr. Jerry Vockley
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Acylcarnitines: What are They and What Do They Mean?
Date: 07/25/2020
Speaker: Dr. Melanie Gillingham
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Life Transitions from Pediatric to Adult Patients with Rare Disorders
Date: 07/25/2020
Speaker: Brittany Holmes
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Practical Tips from the VLCAD Nutrition Guidelines and Toolkit – Part 1
Date: 07/25/2020
Speaker: Dr. Sandy Van Calcar & Mary Sowa
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Practical Tips from the VLCAD Nutrition Guidelines and Toolkit – Part 2
Date: 07/25/2020
Speaker: Dr. Sandy Van Calcar & Mary Sowa
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The Magic Bracelet Q&A
Date: 07/25/2020
Speaker: Various
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