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Monthly Mito Expert Series

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Our monthly educational webinars feature guest speakers addressing topics important to the mito community, giving patients and families unprecedented access to leading clinical experts. More than 125 presentations have been recorded and posted online, making these presentations available to you at your convenience. The Mito Monthly Expert Series are generally held the first Friday of each month at 12:00pm noon. See the events calendar for our upcoming presentations.

 

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May 2021

May 14 Expert Series – Dr. Jerry Vockley – Clinical Trials: Why you should care and why you should participate. How do we know what we know?

May 14 @ 12:00 pm - 1:30 pm

Join MitoAction, Dr. Jerry Vockley from University of Pittsburgh Children's Hospital on Friday, May 14, 2021 for our monthly expert series presentation!   About the Speaker Gerard Vockley, MD, PhD, is an internationally recognized leader in medical genetics and the field of inborn errors of metabolism. He joined Children’s Hospital of Pittsburgh as chief of the Division of Medical Genetics in 2004 and was named professor of pediatrics at the University of Pittsburgh School of Medicine and professor of human…

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May 21 Expert Series – Ultragenyx’s LC-FAOD Odyssey Study: From Patient Experience to Patient Empowerment

May 21 @ 12:00 pm - 1:30 pm

Join MitoAction, Eliza Kruger and Kristin Voorhees from Ultragenyx Pharmaceuticals on Friday, May 21, 2021 at 12:00pm EST for our monthly expert series presentation!   About the Speakers Eliza Kruger is a Director of Global Health Economics and Outcomes Research (HEOR) at Ultragenyx and an expert in HEOR. She is passionate about supporting better, evidence-based decision-making in healthcare, particularly in rare diseases. She has 10 years of experience in academia, consulting andpharmaceutical industry in Singapore and the United States. She…

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You can also find these presentations in our Spotify, Google Podcasts, Apple Podcast and Amazon Music podcast library.

Whole Genome Sequencing for Rare Disorders: The Future Is Here
Date: 04/09/2021
Speaker: Christine Stanley & David Keane
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Mitochondrial Defects May Lead to Autism
Date: 03/05/2021
Speaker: Dr. Douglas Wallace
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Mitochondrial Defects May Lead to Autism
Date: 03/05/2021
Speaker: Dr. Douglas Wallace
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Patients as Partners in Drug Development
Date: 02/12/2021
Speaker: Dr. Madhu Davies
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2021 Mito Town Hall Meeting
Date: 01/15/2021
Speaker: Various
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Mito Basics: Genetics, Testing & Financial
Date: 12/04/2020
Speaker: David Keane
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PTC743 (Vatiquinone) for the Treatment of Mitochondrial Disease With Associated Epilepsy
Date: 11/06/2020
Speaker: Matt Klein & Francesco Bibbiani
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Mito Community Call with the Two Disabled Dudes
Date: 09/14/2020
Speaker: Kyle Bryant
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Charting the Future — What PDCD Teaches Us About Mitochondrial Disease
Date: 09/11/2020
Speaker: Dr. Rebecca Ganetzky
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IEP Considerations for Children with Mitochondrial Disorders
Date: 08/07/2020
Speaker: Gena Padgett
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A Physician’s Perspective on Leigh Syndrome
Date: 07/17/2020
Speaker: Dr. Mary Kay Koenig
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