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Monthly Mito Expert Series

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Our monthly educational webinars and a podcasts feature guest speakers addressing topics important to the mito community, giving patients and families unprecedented access to leading clinical experts.  More than 125 presentations have been recorded and posted online, making these presentations available to you at your convenience.  The Mito Monthly Expert Series are generally held the first Friday of each month at 12:00pm noon.  See the events calendar for our upcoming presentations.

 

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October 2019

Monthly Expert Series with Dr. Jerry Vockley

October 4, 2019 @ 12:00 pm - 2:00 pm
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November 2019

MitoAction Monthly Expert Series – Get Connected with MitoAction Mobile

November 1, 2019 @ 12:00 pm - 1:00 pm

Join MitoAction's CEO, Kira Mann and Karen's CEO, Dave Williams for a step-by-step tutorial to get started using the MitoAction Mobile App platform.  This tool will help you manage your day-to-day with mito and help us learn more about the daily challenges you face living with this rare disease.   To join online: https://zoom.us/j/6608907637   To join by phone: US: (646) 558-8656 Meeting ID: 660-890-7637   International Numbers Available at: https://zoom.us/u/ady2jZzRvF  

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December 2019

Mito Monthly Expert Series

December 6, 2019 @ 12:00 pm - 2:00 pm

Join MitoAction and Christine Stanley, Chief Director of Clinical Genomics at Variantyx, Inc. for our Monthly Mito Expert Series presentation on Friday, December 6, 2019! The presentation will be on Genetic Testing: Genome Sequencing A-Z for Mitochondrial Disease   Please click the link below to join the webinar: https://zoom.us/j/727617275 Or Telephone: (646) 558-8656 Webinar ID: 727 617 275  

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January 2020

2020 Town Hall Meeting

January 10 @ 12:00 pm - 2:00 pm

Join us for the annual Mito Town Hall Meeting! The annual town hall meeting is MitoAction's way of kicking off the new year by sharing all that we have in store for the next 12 months!  We will hear from organizations and companies around the globe that have special opportunities, programs and projects for patients and families affected by mitochondrial disease. Some of the organizations we will hear from are: MitoAction Mitochondrial Medicine Society UMDF Stealth Biotherapeutics Acton Pharmacy Ultragenyx…

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February 2020

Monthly Mito Expert Series – “The Power of Rare Disease Advocacy”

February 7 @ 12:00 pm - 1:30 pm

Join MitoAction and Shannon von Felden from the Everylife Foundation for our February Monthly Mito Expert Series! "The Power of Rare Disease Advocacy" Advocates are the key to creating real change.  Learn the power that you as a patient and caregiver have, what you can do to move the needle for your rare disease and how to get more involved!   About the Speaker Shannon von Felden is the Director of Rare Disease Legislative Advocates, a program of the EveryLife…

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Monthly Mito Expert Series – Dr. Amel Karaa

February 28

Join MitoAction and Dr. Amel Karaa on Friday, February 28, 2020 for our Monthly Mito Expert Series! "Understanding the New Recommendations on the Safety of Drug Use in Patients with a Primary Mitochondrial Disease" Clinical guidance is often sought when prescribing drugs for patients with primary mitochondrial disease. Theoretical considerations concerning drug safety in patients with mitochondrial disease may lead to unnecessary withholding of a drug in a situation of clinical need.  The aim of this new study was to…

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April 2020

April Monthly Mito Expert Series – Annette Hines, Esq.

April 3 @ 12:00 pm - 1:30 pm

Join MitoAction and Annette Hines on April 3, 2020 for our April Monthly Mito Expert Series Ins and Outs of Social Security Navigating Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI) can be overwhelming. This session will be an overview of rules and regulations of both programs, especially for working adults, as well touching on some other public benefits options. Click below for the accompanying slides: About the Speaker Annette M. Hines is the founding partner of Special Needs…

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Ins and Outs of Social Security
Date: 04/03/2020
Speaker: Annette Hines
Listen Now: Click Here
View Slides: Click Here
The Power of Rare Disease Advocacy
Date: 02/07/2020
Speaker: Shannon von Felden
Listen Now: Click Here
View Slides: Click Here
2020 Mito Town Hall
Date: 01/10/2020
Speaker: Various
Listen Now: Click Here
Genetic Testing – Genome Sequencing A-Z for Mitochondrial Disease
Date: 12/06/2019
Speaker: Christine Stanley
Listen Now: Click Here
View Slides: Click Here
Get Connected with MitoAction Mobile
Date: 11/01/2019
Speaker: Dave Williams & Kira Mann
Listen Now: Click Here
FAOD: The Other Mitochondrial Energy Diseases
Date: 10/04/2019
Speaker: Dr. Jerry Vockley
Listen Now: Click Here
View Slides: Click Here
Help is on the Way!
Date: 09/13/2019
Speaker: Mary Summers
Listen Now: Click Here
View Slides: Click Here
DTC Testing – Power & Pitfalls
Date: 04/05/2019
Speaker: Dr. Frances Kendall
Listen Now: Click Here
View Slides: Click Here
The Mito Cocktail – What you need to know!
Date: 02/15/2019
Speaker: Ted Toufas & Saad Dinno
Listen Now: Click Here
View Slides: Click Here
2019 Mito Town Meeting
Date: 01/11/2019
Speaker: MitoAction
Listen Now: Click Here