Our monthly educational webinars and a podcasts feature guest speakers addressing topics important to the mito community, giving patients and families unprecedented access to leading clinical experts. More than 125 presentations have been recorded and posted online, making these presentations available to you at your convenience. The Mito Monthly Expert Series are generally held the first Friday of each month at 12:00pm noon. See the events calendar for our upcoming presentations.
Join MitoAction's CEO, Kira Mann and Karen's CEO, Dave Williams for a step-by-step tutorial to get started using the MitoAction Mobile App platform. This tool will help you manage your day-to-day with mito and help us learn more about the daily challenges you face living with this rare disease. To join online: https://zoom.us/j/6608907637 To join by phone: US: (646) 558-8656 Meeting ID: 660-890-7637 International Numbers Available at: https://zoom.us/u/ady2jZzRvFFind out more »
Join MitoAction and Christine Stanley, Chief Director of Clinical Genomics at Variantyx, Inc. for our Monthly Mito Expert Series presentation on Friday, December 6, 2019! The presentation will be on Genetic Testing: Genome Sequencing A-Z for Mitochondrial Disease Please click the link below to join the webinar: https://zoom.us/j/727617275 Or Telephone: (646) 558-8656 Webinar ID: 727 617 275Find out more »
Join us for the annual Mito Town Hall Meeting! The annual town hall meeting is MitoAction's way of kicking off the new year by sharing all that we have in store for the next 12 months! We will hear from organizations and companies around the globe that have special opportunities, programs and projects for patients and families affected by mitochondrial disease. Some of the organizations we will hear from are: MitoAction Mitochondrial Medicine Society UMDF Stealth Biotherapeutics Acton Pharmacy Ultragenyx…Find out more »
Join MitoAction and Shannon von Felden from the Everylife Foundation for our February Monthly Mito Expert Series! "The Power of Rare Disease Advocacy" Advocates are the key to creating real change. Learn the power that you as a patient and caregiver have, what you can do to move the needle for your rare disease and how to get more involved! About the Speaker Shannon von Felden is the Director of Rare Disease Legislative Advocates, a program of the EveryLife…Find out more »
Join MitoAction and Dr. Amel Karaa on Friday, February 28, 2020 for our Monthly Mito Expert Series! "Understanding the New Recommendations on the Safety of Drug Use in Patients with a Primary Mitochondrial Disease" Clinical guidance is often sought when prescribing drugs for patients with primary mitochondrial disease. Theoretical considerations concerning drug safety in patients with mitochondrial disease may lead to unnecessary withholding of a drug in a situation of clinical need. The aim of this new study was to…Find out more »
Join MitoAction and Annette Hines on April 3, 2020 for our April Monthly Mito Expert Series Ins and Outs of Social Security Navigating Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI) can be overwhelming. This session will be an overview of rules and regulations of both programs, especially for working adults, as well touching on some other public benefits options. Click below for the accompanying slides: About the Speaker Annette M. Hines is the founding partner of Special Needs…Find out more »