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Monthly Mito Expert Series

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Our monthly educational webinars feature guest speakers addressing topics important to the mito community, giving patients and families unprecedented access to leading clinical experts. More than 125 presentations have been recorded and posted online, making these presentations available to you at your convenience. The Mito Monthly Expert Series are generally held the first Friday of each month at 12:00pm noon. See the events calendar for our upcoming presentations.

 

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May 2021

May 14 Expert Series – Dr. Jerry Vockley – Clinical Trials: Why you should care and why you should participate. How do we know what we know?

May 14 @ 12:00 pm - 1:30 pm

Join MitoAction and Dr. Jerry Vockley from University of Pittsburgh Children's Hospital on Friday, May 14, 2021 for our monthly expert series presentation!     About the Speaker Gerard Vockley, MD, PhD, is an internationally recognized leader in medical genetics and the field of inborn errors of metabolism. He joined Children’s Hospital of Pittsburgh as chief of the Division of Medical Genetics in 2004 and was named professor of pediatrics at the University of Pittsburgh School of Medicine and professor…

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May 21 Expert Series – Ultragenyx’s LC-FAOD Odyssey Study: From Patient Experience to Patient Empowerment

May 21 @ 12:00 pm - 1:30 pm

Join MitoAction, Eliza Kruger and Kristin Voorhees from Ultragenyx Pharmaceutical on Friday, May 21, 2021 at 12:00pm EST for our monthly expert series presentation! On this webinar, Ultragenyx representatives will discuss how insights and feedback from people living with LC-FAOD shaped the design of a new study: LC-FAOD Odyssey. This study uses digital technology developed by PicnicHealth to collate and organize medical records, allowing people living with LC-FAOD to contribute their anonymized data to advance research. Participants will learn about…

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You can also find these presentations in our Spotify, Google Podcasts, Apple Podcast and Amazon Music podcast library.

Mitochondrial Genetics and Diseases
Date: 06/05/2020
Speaker: Dr. Douglas Wallace
Listen Now: Click Here
View Slides: Click Here
Medical Cannabis & Mito
Date: 05/01/2020
Speaker: Dr. Fran Kendall
Listen Now: Click Here
View Slides: Click Here
Q&A – Impacts of COVID-19 on FAOD’s
Date: 04/07/2020
Speaker: Dr. Jerry Vockley
Listen Now: Click Here
Ins and Outs of Social Security
Date: 04/03/2020
Speaker: Annette Hines
Listen Now: Click Here
View Slides: Click Here
The Power of Rare Disease Advocacy
Date: 02/07/2020
Speaker: Shannon von Felden
Listen Now: Click Here
View Slides: Click Here
2020 Mito Town Hall
Date: 01/10/2020
Speaker: Various
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Genetic Testing – Genome Sequencing A-Z for Mitochondrial Disease
Date: 12/06/2019
Speaker: Christine Stanley
Listen Now: Click Here
View Slides: Click Here
Get Connected with MitoAction Mobile
Date: 11/01/2019
Speaker: Dave Williams & Kira Mann
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FAOD: The Other Mitochondrial Energy Diseases
Date: 10/04/2019
Speaker: Dr. Jerry Vockley
Listen Now: Click Here
View Slides: Click Here
Help is on the Way!
Date: 09/13/2019
Speaker: Mary Summers
PDF: Click Here
Listen Now: Click Here
View Slides: Click Here