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Monthly Mito Expert Series

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Our monthly educational webinars and a podcasts feature guest speakers addressing topics important to the mito community, giving patients and families unprecedented access to leading clinical experts.  More than 125 presentations have been recorded and posted online, making these presentations available to you at your convenience.  The Mito Monthly Expert Series are generally held the first Friday of each month at 12:00pm noon.  See the events calendar for our upcoming presentations.

 

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February 2020

Monthly Mito Expert Series – “The Power of Rare Disease Advocacy”

February 7 @ 12:00 pm - 1:30 pm

Join MitoAction and Shannon von Felden from the Everylife Foundation for our February Monthly Mito Expert Series! "The Power of Rare Disease Advocacy" Advocates are the key to creating real change.  Learn the power that you as a patient and caregiver have, what you can do to move the needle for your rare disease and how to get more involved!   About the Speaker Shannon von Felden is the Director of Rare Disease Legislative Advocates, a program of the EveryLife…

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Mitochondria and MitoQ: A Research Update
Date: 03/02/2017
Speaker: Greg Macpherson
PDF: Click Here
Listen Now: Click Here
View Slides: Click Here
Mito-autism support group call and discussion of PANDAS
Date: 01/17/2017
Speaker: Kristi Wees
Listen Now: Click Here
2017 Mito Town Meeting
Date: 01/06/2017
Speaker: Various
PDF: Click Here
Listen Now: Click Here
Stealth BioTherapeutics MMPOWER Update
Date: 12/06/2016
Speaker: Reenie McCarthy
PDF: Click Here
Exercise and Nutrition Therapy for Mitochondrial Disease
Date: 12/02/2016
Speaker: Dr. Mark Tarnopolsky
PDF: Click Here
Listen Now: Click Here
View Slides: Click Here
Getting Through the Day with Mito
Date: 11/04/2016
Speaker: Cheryl M. Clow RN
PDF: Click Here
Listen Now: Click Here
View Slides: Click Here
Molecular Diagnostic Testing for Mitochondrial Disorders
Date: 10/07/2016
Speaker: Dr. Darius Adams
PDF: Click Here
Listen Now: Click Here
View Slides: Click Here
Medical Homes
Date: 08/05/2016
Speaker: Kristi Wees
PDF: Click Here
Listen Now: Click Here
View Slides: Click Here
Extended School Year and Summer Camp Planning
Date: 04/06/2016
Speaker: Annette Hines, Esq
PDF: Click Here
Listen Now: Click Here
View Slides: Click Here
Mitochondrial Medicine Society Update 2016
Date: 04/03/2016
Speaker: Dr. Amy Goldstein
PDF: Click Here
Listen Now: Click Here
View Slides: Click Here
Incapacity Planning and Guardianship
Date: 03/31/2016
Speaker: Annette Hines, Esq & Mark Worthington, Esq.
PDF: Click Here
Listen Now: Click Here
View Slides: Click Here
NORD Public Policy Team
Date: 03/04/2016
Speaker: Various
Listen Now: Click Here