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Monthly Mito Expert Series

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Our monthly educational webinars feature guest speakers addressing topics important to the mito community, giving patients and families unprecedented access to leading clinical experts.  More than 125 presentations have been recorded and posted online, making these presentations available to you at your convenience.  The Mito Monthly Expert Series are generally held the first Friday of each month at 12:00pm noon.  See the events calendar for our upcoming presentations.

 

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November 2020

November Mito Expert Series – PTC-743 (Vatiquinone) for the Treatment of Mitochondrial Disease With Associated Refractory Epilepsy – Matt Klein and Francesco Bibbiani

November 6 @ 12:00 pm - 1:30 pm

Join MitoAction and Matthew Klein and Francesco Bibbiani from PTC Therapeutics for our November Mito Expert Series presentation titled, "PTC-743 (Vatiquinone) for the Treatment of Mitochondrial Disease With Associated Refractory Epilepsy".    To view the accompanying slides, click here.   About the Speakers Matthew B. Klein, MD, MS, FACS is Chief Development Officer at PTC Therapeutics, Inc. Prior to joining PTC, Dr. Klein was CEO and Chief Medical Officer of BioElectron Technology Corporation, a biotechnology company focused on development of…

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December 2020

Mito Expert Series – David Keane from GeneDX – Mito Genetic Basics: Disease, Testing and Financial

December 4 @ 12:00 pm - 1:00 pm

Join MitoAction and David Keane from GeneDX for our December Monthly Mito Expert Series presentation titled: Mito Genetic Basics: Disease, Testing and Financial.      About the Speaker: David Keane has been involved with Neurogenetics since 1998 when he started working for Athena Diagnostics.  He attended his first UMDF symposium in 2004 and has been to every symposium since 2007 and currently serves on the UMDF Industry Advisory Board.  He has attended over 50 Mitochondrial Disease Grand Rounds Presentations by…

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Mitochondria and MitoQ: A Research Update
Date: 03/02/2017
Speaker: Greg Macpherson
PDF: Click Here
Listen Now: Click Here
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Mito-autism support group call and discussion of PANDAS
Date: 01/17/2017
Speaker: Kristi Wees
Listen Now: Click Here
2017 Mito Town Meeting
Date: 01/06/2017
Speaker: Various
PDF: Click Here
Listen Now: Click Here
Stealth BioTherapeutics MMPOWER Update
Date: 12/06/2016
Speaker: Reenie McCarthy
PDF: Click Here
Exercise and Nutrition Therapy for Mitochondrial Disease
Date: 12/02/2016
Speaker: Dr. Mark Tarnopolsky
PDF: Click Here
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View Slides: Click Here
Getting Through the Day with Mito
Date: 11/04/2016
Speaker: Cheryl M. Clow RN
PDF: Click Here
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View Slides: Click Here
Molecular Diagnostic Testing for Mitochondrial Disorders
Date: 10/07/2016
Speaker: Dr. Darius Adams
PDF: Click Here
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Medical Homes
Date: 08/05/2016
Speaker: Kristi Wees
PDF: Click Here
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Extended School Year and Summer Camp Planning
Date: 04/06/2016
Speaker: Annette Hines, Esq
PDF: Click Here
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Mitochondrial Medicine Society Update 2016
Date: 04/03/2016
Speaker: Dr. Amy Goldstein
PDF: Click Here
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Incapacity Planning and Guardianship
Date: 03/31/2016
Speaker: Annette Hines, Esq & Mark Worthington, Esq.
PDF: Click Here
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NORD Public Policy Team
Date: 03/04/2016
Speaker: Various
Listen Now: Click Here