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Monthly Mito Expert Series

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Our monthly educational webinars feature guest speakers addressing topics important to the mito community, giving patients and families unprecedented access to leading clinical experts. More than 125 presentations have been recorded and posted online, making these presentations available to you at your convenience. The Mito Monthly Expert Series are generally held the first Friday of each month at 12:00pm noon. See the events calendar for our upcoming presentations.

 

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May 2021

May 14 Expert Series – Dr. Jerry Vockley – Clinical Trials: Why you should care and why you should participate. How do we know what we know?

May 14 @ 12:00 pm - 1:30 pm

Join MitoAction and Dr. Jerry Vockley from University of Pittsburgh Children's Hospital on Friday, May 14, 2021 for our monthly expert series presentation!     About the Speaker Gerard Vockley, MD, PhD, is an internationally recognized leader in medical genetics and the field of inborn errors of metabolism. He joined Children’s Hospital of Pittsburgh as chief of the Division of Medical Genetics in 2004 and was named professor of pediatrics at the University of Pittsburgh School of Medicine and professor…

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May 21 Expert Series – Ultragenyx’s LC-FAOD Odyssey Study: From Patient Experience to Patient Empowerment

May 21 @ 12:00 pm - 1:30 pm

Join MitoAction, Eliza Kruger and Kristin Voorhees from Ultragenyx Pharmaceutical on Friday, May 21, 2021 at 12:00pm EST for our monthly expert series presentation! On this webinar, Ultragenyx representatives will discuss how insights and feedback from people living with LC-FAOD shaped the design of a new study: LC-FAOD Odyssey. This study uses digital technology developed by PicnicHealth to collate and organize medical records, allowing people living with LC-FAOD to contribute their anonymized data to advance research. Participants will learn about…

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You can also find these presentations in our Spotify, Google Podcasts, Apple Podcast and Amazon Music podcast library.

Medical Care: What Approach Works for You?
Date: 12/08/2017
Speaker: Dr. Mark Korson
Listen Now: Click Here
View Slides: Click Here
What You Should Know About Genetic Testing for Mitochondrial Disorders
Date: 11/03/2017
Speaker: Amanda Balog
PDF: Click Here
Listen Now: Click Here
View Slides: Click Here
How Enteric Microbiome Mitochondrial Function
Date: 09/22/2017
Speaker: Dr. Richard Frye
PDF: Click Here
Listen Now: Click Here
View Slides: Click Here
Stealth BioTherapeutics MMPOWER-2 and REPOWER Study Update
Date: 08/11/2017
Speaker: Reenie McCarthy & Jim Carr
PDF: Click Here
BioElectron Update
Date: 06/23/2017
Speaker: Guy Miller & Matthew Klein
PDF: Click Here
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Mitochondrial Replacement Therapy
Date: 04/21/2017
Speaker: Dr. Michio Hirano & Kris Engelstad, MS, CGC
PDF: Click Here
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Mitochondria and MitoQ: A Research Update
Date: 03/02/2017
Speaker: Greg Macpherson
PDF: Click Here
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Mito-autism support group call and discussion of PANDAS
Date: 01/17/2017
Speaker: Kristi Wees
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2017 Mito Town Meeting
Date: 01/06/2017
Speaker: Various
PDF: Click Here
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Stealth BioTherapeutics MMPOWER Update
Date: 12/06/2016
Speaker: Reenie McCarthy
PDF: Click Here
Exercise and Nutrition Therapy for Mitochondrial Disease
Date: 12/02/2016
Speaker: Dr. Mark Tarnopolsky
PDF: Click Here
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Getting Through the Day with Mito
Date: 11/04/2016
Speaker: Cheryl M. Clow RN
PDF: Click Here
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View Slides: Click Here