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Monthly Mito Expert Series

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Our monthly educational webinars feature guest speakers addressing topics important to the mito community, giving patients and families unprecedented access to leading clinical experts. More than 125 presentations have been recorded and posted online, making these presentations available to you at your convenience. The Mito Monthly Expert Series are generally held the first Friday of each month at 12:00pm noon. See the events calendar for our upcoming presentations.

 

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May 2021

May 14 Expert Series – Dr. Jerry Vockley – Clinical Trials: Why you should care and why you should participate. How do we know what we know?

May 14 @ 12:00 pm - 1:30 pm

Join MitoAction and Dr. Jerry Vockley from University of Pittsburgh Children's Hospital on Friday, May 14, 2021 for our monthly expert series presentation!     About the Speaker Gerard Vockley, MD, PhD, is an internationally recognized leader in medical genetics and the field of inborn errors of metabolism. He joined Children’s Hospital of Pittsburgh as chief of the Division of Medical Genetics in 2004 and was named professor of pediatrics at the University of Pittsburgh School of Medicine and professor…

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May 21 Expert Series – Ultragenyx’s LC-FAOD Odyssey Study: From Patient Experience to Patient Empowerment

May 21 @ 12:00 pm - 1:30 pm

Join MitoAction, Eliza Kruger and Kristin Voorhees from Ultragenyx Pharmaceutical on Friday, May 21, 2021 at 12:00pm EST for our monthly expert series presentation! On this webinar, Ultragenyx representatives will discuss how insights and feedback from people living with LC-FAOD shaped the design of a new study: LC-FAOD Odyssey. This study uses digital technology developed by PicnicHealth to collate and organize medical records, allowing people living with LC-FAOD to contribute their anonymized data to advance research. Participants will learn about…

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You can also find these presentations in our Spotify, Google Podcasts, Apple Podcast and Amazon Music podcast library.

Molecular Diagnostic Testing for Mitochondrial Disorders
Date: 10/07/2016
Speaker: Dr. Darius Adams
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Medical Homes
Date: 08/05/2016
Speaker: Kristi Wees
PDF: Click Here
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Extended School Year and Summer Camp Planning
Date: 04/06/2016
Speaker: Annette Hines, Esq
PDF: Click Here
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Mitochondrial Medicine Society Update 2016
Date: 04/03/2016
Speaker: Dr. Amy Goldstein
PDF: Click Here
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Incapacity Planning and Guardianship
Date: 03/31/2016
Speaker: Annette Hines, Esq & Mark Worthington, Esq.
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NORD Public Policy Team
Date: 03/04/2016
Speaker: Various
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Fatty Acid Oxidation Disorders
Date: 02/05/2016
Speaker: Dr. Jerry Vockley
PDF: Click Here
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2016 Mito Town Meeting
Date: 01/08/2016
Speaker: Various
PDF: Click Here
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Diet, Dysmotility, and Tube Feeding
Date: 12/04/2015
Speaker: Kristen R. Roberts, PhD, RD
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Mitochondrial Myopathy
Date: 11/20/2015
Speaker: Dr. Bruce H. Cohen
PDF: Click Here
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Mito-Autism Q&A and Parent/Patient
Date: 10/13/2015
Speaker: Cristy Balcells
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Mitochondrial Disease and Toxins
Date: 10/05/2015
Speaker: Kendall B. Wallace, Ph.D., DABT, ATS
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