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Monthly Mito Expert Series

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Our monthly educational webinars feature guest speakers addressing topics important to the mito community, giving patients and families unprecedented access to leading clinical experts. More than 125 presentations have been recorded and posted online, making these presentations available to you at your convenience. The Mito Monthly Expert Series are generally held the first Friday of each month at 12:00pm noon. See the events calendar for our upcoming presentations.

 

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May 2021

May 14 Expert Series – Dr. Jerry Vockley – Clinical Trials: Why you should care and why you should participate. How do we know what we know?

May 14 @ 12:00 pm - 1:30 pm

Join MitoAction and Dr. Jerry Vockley from University of Pittsburgh Children's Hospital on Friday, May 14, 2021 for our monthly expert series presentation!     About the Speaker Gerard Vockley, MD, PhD, is an internationally recognized leader in medical genetics and the field of inborn errors of metabolism. He joined Children’s Hospital of Pittsburgh as chief of the Division of Medical Genetics in 2004 and was named professor of pediatrics at the University of Pittsburgh School of Medicine and professor…

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May 21 Expert Series – Ultragenyx’s LC-FAOD Odyssey Study: From Patient Experience to Patient Empowerment

May 21 @ 12:00 pm - 1:30 pm

Join MitoAction, Eliza Kruger and Kristin Voorhees from Ultragenyx Pharmaceutical on Friday, May 21, 2021 at 12:00pm EST for our monthly expert series presentation! On this webinar, Ultragenyx representatives will discuss how insights and feedback from people living with LC-FAOD shaped the design of a new study: LC-FAOD Odyssey. This study uses digital technology developed by PicnicHealth to collate and organize medical records, allowing people living with LC-FAOD to contribute their anonymized data to advance research. Participants will learn about…

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Mito Supplement Therapy
Date: 09/10/2015
Speaker: Ted Toufas, PharmD, RPh
PDF: Click Here
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Back to School Tips
Date: 08/31/2015
Speaker: Annette Hines, JD & Christy Balcells
PDF: Click Here
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Social Security Disability Insurance and Supplemental Security Income
Date: 08/07/2015
Speaker: Annette Hines & Tai Venuti
PDF: Click Here
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Getting Involved: Awareness Walk & Events 2015
Date: 06/05/2015
Speaker: Cristy Balcells
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Basics of Estate Planning and Special Needs Trusts
Date: 06/01/2015
Speaker: Annette Hines, Esq
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Cannabis Oil to Treat Mitochondrial Disease
Date: 05/17/2015
Speaker: Dr. Fran Kendall
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Mitochondrial Medicine Society Publications
Date: 03/06/2015
Speaker: Dr. Sumit Parikh
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Stealth BT Mitochondrial Myopathy Trial
Date: 02/18/2015
Speaker: Travis Wilson
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2015 Mito Town Meeting
Date: 01/10/2015
Speaker: Various
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Complex Medical Needs and Medical Child Abuse Accusations
Date: 12/13/2014
Speaker: MaryBeth Hollinger, RN, MSN
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PCDC (Pyruvate Dehydrogenase Complex Deficiency)
Date: 11/11/2014
Speaker: Dr. Peter Stacpoole
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Psychiatric Disorders in Mitochondrial Disease
Date: 10/03/2014
Speaker: Dr. Andrew Nierenberg
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