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Monthly Mito Expert Series

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Our monthly educational webinars and a podcasts feature guest speakers addressing topics important to the mito community, giving patients and families unprecedented access to leading clinical experts.  More than 125 presentations have been recorded and posted online, making these presentations available to you at your convenience.  The Mito Monthly Expert Series are generally held the first Friday of each month at 12:00pm noon.  See the events calendar for our upcoming presentations.

 

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February 2020

Monthly Mito Expert Series – “The Power of Rare Disease Advocacy”

February 7 @ 12:00 pm - 1:30 pm

Join MitoAction and Shannon von Felden from the Everylife Foundation for our February Monthly Mito Expert Series! "The Power of Rare Disease Advocacy" Advocates are the key to creating real change.  Learn the power that you as a patient and caregiver have, what you can do to move the needle for your rare disease and how to get more involved!   About the Speaker Shannon von Felden is the Director of Rare Disease Legislative Advocates, a program of the EveryLife…

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Dysmotility and Diet
Date: 03/09/2014
Speaker: Kristen M. Roberts, MS, RD
Listen Now: Click Here
View Slides: Click Here
Edison Pharma’s Partnership Offers Hope for Mito Communuty
Date: 02/05/2014
Speaker: Edison Pharma
Listen Now: Click Here
2014 Mito Town Meeting
Date: 01/10/2014
Speaker: Various
PDF: Click Here
Listen Now: Click Here
Helping Your Child Become Independent
Date: 12/06/2013
Speaker: Parag Shah, MD, MPH and Ann Weaver
Listen Now: Click Here
View Slides: Click Here
Creatine Deficiency and Supplementation
Date: 11/01/2013
Speaker: Dr. Joseph Clark PhD
Listen Now: Click Here
EPI-743 Clinical Trial Update
Date: 10/25/2013
Speaker: Dr. Guy Miller & Dr. Greg Enns
Listen Now: Click Here
Introducing Bendavia
Date: 10/04/2013
Speaker: Travis Wilson and Ben Bronstein
Listen Now: Click Here
View Slides: Click Here
Interpreting Genetic Testing
Date: 09/13/2013
Speaker: Dr. Richard Boles
Listen Now: Click Here
View Slides: Click Here
EPI-743 Leighs Syndrome Trial Update
Date: 04/05/2013
Speaker: Dr. Matt Kline and & Dr. Guy Miller
PDF: Click Here
Listen Now: Click Here
Get More from Every Doctor’s Appointment
Date: 03/01/2013
Speaker: Cristy Balcells RN MSN and Kathy Rivers MD
PDF: Click Here
Listen Now: Click Here
View Slides: Click Here
Parents, Stress and Coping with Mitochondrial Disease
Date: 02/01/2013
Speaker: Brenda Senger RN, MA
PDF: Click Here
Listen Now: Click Here
View Slides: Click Here