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Monthly Mito Expert Series

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Our monthly educational webinars feature guest speakers addressing topics important to the mito community, giving patients and families unprecedented access to leading clinical experts.  More than 125 presentations have been recorded and posted online, making these presentations available to you at your convenience.  The Mito Monthly Expert Series are generally held the first Friday of each month at 12:00pm noon.  See the events calendar for our upcoming presentations.

 

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August 2020

August Mito Expert Series – IEP Considerations for Students with Mitochondrial Disorders – Gena Padgett

August 7 @ 12:00 pm - 1:30 pm

Join MitoAction and Gena Padgett, a licensed school psychologist for our August Monthly Mito Expert Series presentation titled IEP Considerations for Students with Mitochondrial Disorders.   About the Speaker: Gena Padgett is a licensed school psychologist and teacher for the Deaf and hard of hearing in the state of Indiana.  She completed her Bachelor’s degree in Deaf Education at Converse College in Spartanburg, South Carolina and received her Master’s degree in Linguistics from Gallaudet University in Washington, DC.  Gena proceeded…

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September 2020

September Mito Expert Series – Charting the Future: What PDCD Teaches Us About Mitochondrial Disease – Dr. Rebecca Ganetzsky

September 11 @ 12:00 pm - 1:30 pm

Join MitoAction and Dr. Rebecca Ganetzsky, the Asst. Professor of Pediatrics at the University of Pennsylvania and an attending physician in the Human Genetics Division at the Children’s Hospital of Philadelphia (CHOP) for our September Monthly Mito Expert Series presentation titled Charting the Future -- What PCDC Teaches Us About Mitochondrial Disease! About the Speaker: Rebecca Ganetzky, MD is an assistant professor of pediatrics at the University of Pennsylvania and an attending physician in the division of Human Genetics at…

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You can also find these presentations in our Spotify, Google Podcasts and iTunes podcast library.

Hearing Loss in Mitochondrial Disease
Date: 04/04/2014
Speaker: Dr. Peter Kullar
PDF: Click Here
Listen Now: Click Here
View Slides: Click Here
Dysmotility and Diet
Date: 03/09/2014
Speaker: Kristen M. Roberts, MS, RD
Listen Now: Click Here
View Slides: Click Here
Edison Pharma’s Partnership Offers Hope for Mito Communuty
Date: 02/05/2014
Speaker: Edison Pharma
Listen Now: Click Here
2014 Mito Town Meeting
Date: 01/10/2014
Speaker: Various
PDF: Click Here
Listen Now: Click Here
Helping Your Child Become Independent
Date: 12/06/2013
Speaker: Parag Shah, MD, MPH and Ann Weaver
Listen Now: Click Here
View Slides: Click Here
Creatine Deficiency and Supplementation
Date: 11/01/2013
Speaker: Dr. Joseph Clark PhD
Listen Now: Click Here
EPI-743 Clinical Trial Update
Date: 10/25/2013
Speaker: Dr. Guy Miller & Dr. Greg Enns
Listen Now: Click Here
Introducing Bendavia
Date: 10/04/2013
Speaker: Travis Wilson and Ben Bronstein
Listen Now: Click Here
View Slides: Click Here
Interpreting Genetic Testing
Date: 09/13/2013
Speaker: Dr. Richard Boles
Listen Now: Click Here
View Slides: Click Here
Transitioning for Teens and Young Adults with Mitochondrial Disease
Date: 05/03/2013
Speaker: Dr. Hope Schreiber
PDF: Click Here
EPI-743 Leighs Syndrome Trial Update
Date: 04/05/2013
Speaker: Dr. Matt Kline and & Dr. Guy Miller
PDF: Click Here
Listen Now: Click Here
Get More from Every Doctor’s Appointment
Date: 03/01/2013
Speaker: Cristy Balcells RN MSN and Kathy Rivers MD
PDF: Click Here
Listen Now: Click Here
View Slides: Click Here