Patient Support Coordinator
Stephanie and her son have been part of the MitoAction community since 2007, when they learned of the organization after his diagnosis of Complex III. She has championed families in a volunteer capacity as they learned alongside others about the effects of this disease and how to live beyond this rare disease. In the fall of 2019, Stephanie joined our team as the Patient Support Coordinator, where she connects with people who are in need of resources and connecting with someone who understands.
“As a parent of a child who is affected, I understand the need to connect with others to find strength in community. My goal is to support all persons with ideas, information, and a bit of humor, especially when the days are long and dark. Together we can become a voice for rare disease.”