Stephanie’s son was diagnosed in 2008 with LCHAD deficiency. She spent her son’s early years educating herself through research, journal articles, work groups, and clinicians. She worked alongside her...
Hilary serves as the Director of Programs and Special Events for MitoAction. Hilary strives to bring an innovative approach to programming and to bring an enthusiastic energy to the...
Since 2019, Soozi has been doing Program Support for MitoAction through patient advocacy and research. She has also taken on the role of MitoSocial Moderator since MitoSocials become virtual. ...
Stephanie and her son have been part of the MitoAction community since 2007, when they learned of the organization after his diagnosis of Complex III. She has championed families...
After serving as a volunteer for several months, Jeannie officially joined the MitoAction team in January 2018. Although she had never heard of mitochondrial disease until she started working...