Lisa Sarfaty, director of strategic planning for the National Organization for Rare Disorders, speaks on the role of the organization and the importance of the Rare Disease Day campaign.
Today is Rare Disease Day 2021, an opportunity for advocates, experts, and the healthcare community at large to come together (virtually) in solidarity for those affected by rare disorders.
Founded by the European Organisation for Rare Disorders (EURODIS), the annual observance aims to raise awareness for such diseases and promote access to treatment, medical representation, and continued research.
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