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Heat Intolerance

"My child or I don't tolerate heat very well - how can we survive the summer?"

 

Managing Very Warm Weather

Traveling in the summer or going to a hot climate can be challenging for some people with mitochondrial disorders. There are several suggestions that may help to keep you cool.

Always make sure you are well hydrated. In hotter climates, your body will sweat more and you can lose fluids very quickly. This can make you dizzy and drop your blood pressure more quickly. Stay ahead of the dehydration and carry around a water bottle or sports drink to make sure you/ your child doesn't lose too many electrolytes and fluids. If you have a central line (port or a broviac) for IV hydration or a g-tube, it may be wise to ask your doctor if you can do an extra bolus of fluid on days that will be spent outside in the heat. Prevention is key when keeping dehydration away! If you are unsure about whether you are dehydrated and need more fluids, always check with your doctor.

Signs of dehydration can include: thirst, dry lips, dry mouth, flushed skin, fatigue, irritability, headache, dark urine, decreased urine output. Severe dehydration can include: rapid breathing, rapid and weak pulse, low blood pressure, dizziness, fainting, high fever, inability to pee or cry tears, disinterest in drinking fluid. This degree of dehydration requires medical attention.

If you will be out in the heat for any length of time, make sure there is air conditioning or shade within a short distance of where you will be. It can be dangerous for some people with Mito to be out in the heat for prolonged periods of time and can cause the body temperature to rise to high levels. Access to air conditioning, fans, and shade are necessary for people to stay cool and for body temperature to remain normal. If you will be at a beach, rent a beach umbrella or make sure there is shade from a nearby tree.

Carry around a spritzer fan/water bottle combination.

You can buy these at amusement parks, beaches, or other stores like Wal-Mart. Fill up the water bottle with ice water before going out and use it to cool down. Kids especially like this on hot days and we found ourselves using it even for the healthy kids and adults because it cooled everyone down. The fan can be helpful as well.

Jump in a pool or take a swim in the ocean.

These are great ways of cooling down and can be fun too!

Take some ice packs with you and use them to cool down your body.  (Be careful, regular ice packs can cause frostbite if left in direct contact with the skin. The very young, very old, and anyone with neuropathy or circulation problems are at an even higher risk.) 

You can also buy a cool vest, which is a vest that either works by holding in moisture and slowly evaporating, or a vest with special ice packs built into the sides. These vests can be used by people of any age or size, many companies will create custom vests for people with special situations.  Special vests can be made to accommodate ostomies, body braces, modified cool pack positioning to accommodate wheelchair seating or prolonged bedrest, and more.  For in-depth information about different types of cooling vests as well as potential sources of financial assistance, be sure to visit http://www.mitoaction.org/red-tape/keeping-your-cool-cooling-vest-types-sources-financial-assistance.  You and/your child may be able to get a cooling vest for free!

Wear sunblock and bring along a hat and sunglasses!

Good advice for anyone!

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Comments

MsTyraWatson's picture

MsTyraWatson

05/05/2009

These are some very great comments. God bless you all, I wish you all the best!

- Tyra

jlcarey's picture

jlcarey

07/09/2009

We have found necklace fans from Walmart very useful in the severe heat. They hang around your neck from a string and blow a nice breeze UPWARD - completely hands-free :). We use the fan waterbottles, too. In cooler weather, we use a CamelBak waterbottle backpack to keep hydrated with gatorade or water on excursions. Stay cool and hydrated!
diseasefighter's picture

diseasefighter

02/16/2011

Thanks so much! These tips are going to be invaluable this summer when my family and I head to Southern California for vacation. I've never really liked winter, but I just can't stand heat above the 80's. Neither can my wife or son. We are going to Walmart and we'll stock up on supplies! Thanks a ton!

 

John Anderson

Public Health Practitioner

alert-1.com

EMcClanahan's picture

EMcClanahan

09/06/2011

We purchased a cooling vest for our daughter last spring. It has helped her so much. She is able to stay at school on warm days. She is also able to go outside (with limited activity) this summer. Best investment we have made for her.
Kevinjames's picture

Kevinjames

03/07/2012

You have given great tips. I want this type of information because in warm weather i feel very hot and it is very difficult to living, thanks for posted helpful information, keep it up...............
Kotto's picture

Kotto

04/27/2012

I have a similar problem and I tried everything in the book, but I guess I have the kind of body that doesn't do very well in the hot weather. _________ James Kotto part of the Traduceri autorizate team.