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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

  • Mitochondrial Disease
    • About Mito
      • New Patient Kit
      • Types of Mitochondrial Diseases
      • Symptoms
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    • Diagnosis & Care
      • Diagnosing Mitochondrial Disease
      • Find a Mito Doctor
      • What is a Mito Cocktail?
      • Mito Sick Protocol
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    • Day to Day with Mito
      • Living with Mitochondrial Disease
      • Care Management
      • Managing Your Energy
      • Traveling with Mito
      • Navigating COVID-19
    • For Medical Professionals
      • Mitochondrial Care Network
      • Monthly Expert Series
  • Fatty Acid Oxidation Disorders
    • About FAODs
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    • FAOD Programs and Support
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Learn about mito, hear the most updated information directly from clinicians, and connect with other families

Patient Education Forums

MitoAction’s Patient Education Forums provide exceptional opportunities for people with mitochondrial disease to receive accurate information about mito, learn about treatment options, clinical trials and research, access experts in the field, and connect with others who are facing similar challenges living with the disease. These live events allow patients, caregivers and family members to interact with one another and clinicians who can answer questions which will support them on their day-to-day journey with mito. Being diagnosed with mitochondrial disease can be a lonely journey. The education forums will connect our patients and those affected by this rare disease to a community filled with the support they so desperately need.

  • Energy 4 Education
  • Energy In Action Podcast
  • Monthly Expert Series
  • New Patient Kit
  • Patient Education Forums

Upcoming
Events

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Oct 5
6:00 pm - 7:00 pm Event Series

CPEO & Me

Oct 6
12:00 pm - 1:00 pm

Expert Series: Ultra-Rare Mitochondrial Diseases: Development Challenges and Opportunities

Oct 6
1:15 pm - 2:15 pm

Weekly Support Call

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Expert
Series

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Upcoming Presentations

Oct 6
12:00 pm - 1:00 pm

Expert Series: Ultra-Rare Mitochondrial Diseases: Development Challenges and Opportunities

Nov 1
7:00 pm - 8:00 pm

Expert Series: LCHADD Retinopathy Update: Moving Toward a Treatment

View Calendar

Last Presentation

Episode 2: Wondering Wednesdays: Ask the Genetic Counselor (February 22, 2023)
Presented August 28, 2023

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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