Join us to raise awareness and funds for mito—one step at a time! Your participation makes a huge difference in the lives of patients and families who rely on us. Help to show our community how strong and powerful we can be together! Basil Marella Park975 English RdRochester, NY 14626
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Events
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2 events,Join us to raise awareness and funds for mito—one step at a time! Your participation makes a huge difference in the lives of patients and families who rely on us. Help to show our community how strong and powerful we can be together! Green Lakes State Park7900 Green Lakes RdFayetteville, NY 13066 |
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I will be presenting an interactive presentation on motivational interviewing: utilizing collaborative client centered communication to bridge barriers in mitochondrial disease care. |
1 event,Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
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The 13th Annual Matthew Harty Camper Fund Golf Tournament honors Matthew’s life while supporting children and families affected by mitochondrial disease. Proceeds benefit the Matthew Harty Camper Fund, Matthew Harty Scholarship Fund, and Dalia’s Wish, helping send children to summer camp, provide scholarships for higher education, and create unforgettable wish vacations for families. Every golfer, […]
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Join Dr. Amy Goldstein as she dives deeper into the clinical trial process. She will highlight: obstacles that are unique to mitochondrial disease patients, how to access emergency/compassionate use, which drugs are currently approved and have on-going clinical trials, and how genetic counselors can stay up to speed with what trials are available for patients. |
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2 events,We are thrilled to be collaborating with The POLG Foundation for this wonderful support call series! Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call […] |
1 event,Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, […] |
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Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
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Writing as Healing workshops offer a safe, supportive space to express our thoughts and feelings through words, enabling us to process trauma, accept difficult news, and rebuild resilience. We are excited to have author Brad Buchanan back with us! This month our writing prompt theme is, “Autumn.” We will write about our memories of autumn, […] |
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This talk will review prenatal testing options available in the United States, limitations to prenatal testing for mitochondrial DNA variants, and considerations for the future of mitochondrial disease prenatal testing. |
1 event,Join us for Our Space: a space for young adults with Mito and FAODs to connect, network, and hangout! We recognize that being a young adult comes with it's own set of challenges and MitoAction is committed to ensuring that each member of our young adult community feels supported and part of a larger community.Don't […] |
1 event,Are you interested in becoming more involved with MitoAction and advocacy efforts for the community? Become a MitoChampion and engage in ways that are most meaningful to you. Our MitoChampion meetings are a collective space to bring volunteers together to work on various projects related to advocacy, education, peer-to-peer support, fundraising and much more. To […] |
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1 event,Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
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1 event,Join us for Wondering Wednesdays: Ask the Genetic Counselor every 4th Wednesday of the month. Genetic Counselor and Mito Advocate Devin Shuman will host these informal non-recorded sessions to help make genetics feel more accessible to everyone. |
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Last chance to submit your art! Don’t miss the opportunity to share your creativity with the mito community. Then take a picture or video of your painting, drawing, knitting, poem, song, comedy bit ect. and send your art and your Artist Release Form to sharry@mitoaction.org. Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
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