The International Metabolic Conference for Families and Individuals Impacted by Fatty Acid Oxidation Disorders, is an event dedicated to advancing knowledge and collaboration of patients, clinicians, and researchers. In partnership with Dr. Jerry Vockley, Dr. Melanie Gillingham, and INFORM, MitoAction assembles leading experts to present to patients, families, caregivers, and clinicians about disease management, clinical trials, […]
42 events found.
Events
Calendar of Events
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When a child is diagnosed with an FAOD the world of a caregiver drastically changes. This presentation will draw on the insight of both a long-standing geneticist in the FAOD community and parent who is 17 years into the journey. Together they will explore topics that families face who are new to the journey. If […]
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This presentation will review the diet records and current supplements from participants in the Natural History of LCHADD Retinopathy study. Then Dr. Gillingham will discuss how to maximize micronutrient intake, what is the right amount of protein, and how to think about body weight and weight loss while also managing an FAOD. |
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1 event,Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
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1 event,Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
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Mitochondrial disease is everywhere in medicine, often hiding in plain sight yet shaping the clinical course of patients we see every day. This presentation aims to build a practical framework for understanding mitochondrial disorders as genetic conditions of energy production and intermediary metabolism. Participants will learn to identify key mitochondrial pathways and core features, examine […] |
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2 events,We are thrilled to be collaborating with The POLG Foundation for this wonderful support call series! Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call is a place where you can openly chat about the joys, challenges, and questions that arise from living with FAODs. |
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This presentation will dive deep into the "Falcon Study" to explain what this study is, who qualifies, the mechanism of action of the compound being studied, and how its efficacy is measured. About the Speaker Dr. Mary Kay Koenig Dr. Mary Kay Koenig serves as the Director of the Center for the Treatment of Pediatric […]
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Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
1 event,Join us to raise awareness and funds for mito—one step at a time! Your participation makes a huge difference in the lives of patients and families who rely on us. Help to show our community how strong and powerful we can be together! Living Stones ChurchVictory Ln #1407Alvin, TX 77511 |
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1 event,Join us for Our Space: a space for young adults with Mito and FAODs to connect, network, and hangout! We recognize that being a young adult comes with it's own set of challenges and MitoAction is committed to ensuring that each member of our young adult community feels supported and part of a larger community.Don't […] |
1 event,Are you interested in becoming more involved with MitoAction and advocacy efforts for the community? Become a MitoChampion and engage in ways that are most meaningful to you. Our MitoChampion meetings are a collective space to bring volunteers together to work on various projects related to advocacy, education, peer-to-peer support, fundraising and much more. To […] |
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Join Devin Shuman, MS, LCGC, for the next session in MitoAction’s Genetic Counselor CEU Series, "What a GC Needs to Know About Direct-to-Consumer Testing". This session will explore the growing role of direct-to-consumer genetic testing and provide practical insights to help genetic counselors confidently navigate results, conversations, and considerations in patient care. This session is […] |
1 event,Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
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1 event,Join us for Wondering Wednesdays: Ask the Genetic Counselor every 4th Wednesday of the month. Genetic Counselor and Mito Advocate Devin Shuman will host these informal non-recorded sessions to help […] |
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1 event,Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, […] |
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1 event,Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
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