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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

  • Mitochondrial Disease
    • About Mito
      • New Patient Kit
      • Types of Mitochondrial Diseases
      • Symptoms
      • Treatment
      • Mito FAQ’s
      • Mitochondrial Disease News
    • Diagnosis & Care
      • Diagnosing Mitochondrial Disease
      • Find a Mito Doctor
      • What is a Mito Cocktail?
      • Mito Sick Protocol
      • Clinical Trials & Studies
    • Day to Day with Mito
      • Living with Mitochondrial Disease
      • Care Management
      • Managing Your Energy
      • Traveling with Mito
      • Navigating COVID-19
    • For Medical Professionals
      • Mitochondrial Care Network
      • Monthly Expert Series
  • Fatty Acid Oxidation Disorders
    • About FAODs
      • Types of FAOD
      • Symptoms
      • Diagnosis
      • Treatment
    • FAOD Programs and Support
      • New Patient Kit
      • FAOD Support Calls
      • FAOD Experts Series
      • FAOD Resources
      • International Metabolic Conference
  • Programs & Support
    • Support
      • Mito411
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      • MitoPlaydates
      • MitoSocials
      • MitoChampions
      • Support Calls
      • Positive Peach Packages
    • Programs
      • Dalia’s Wish
      • Matthew Harty Camper Fund
      • Marcel’s Way Family Fund
      • MitoSantas
      • MyMito App
    • Education
      • Monthly Expert Series
      • Wondering Wednesdays
      • Energy In Action Podcast
      • Energy 4 Education
      • Patient Education Forums
      • International Metabolic Conference
    • Resources & Planning
      • Health Insurance
      • Disability Benefits
      • Mobility Devices
      • Vehicle Modification
      • Estate Planning
      • Medical Child Abuse
  • Join the Cause
    • Giving
      • Donate
      • Honor and Memorial Giving
      • Another Helping
      • Matching Gifts
      • Shop for MitoAction
      • Giving Tuesday – Ways to Give
    • Events
      • International Metabolic Conference
      • MitoAction Energy Walks
      • Sandra K. Russell Derby Day Benefit for Mito
      • Matthew Harty Camper Fund Events
    • Volunteer
      • Host a MitoSocial
      • Host a MitoPlaydate
      • Create a Fundraiser
      • MitoChampions
      • Share Your Ideas
    • Raise Your Voice
      • Take Legislative Action
      • Mitochondrial Disease Awareness Week
  • About Us
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We’re working to improve the quality of life for children, adults, and families living with mitochondrial disease.

About Us

MitoAction is a nonprofit organization founded by patients, parents, and Boston hospital healthcare leaders who had a vision of improving quality of life for children and adults with mitochondrial disease. The organization began in 2005 as an idea and has evolved from a small New England support group to a dynamic, active service organization helping thousands of patients and families. Despite the growth of the organization, the mission remains the same: to make a measurable impact in the lives of those who are affected by mitochondrialdisease.

Originally founded as the Mitochondrial Disease Action Committee, the organization officially changed its name in 2008 to MitoAction.

Our Mission

MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, clinical research initiatives and by granting wishes for children affected by mitochondrial disease.

To do this, MitoAction’s goals include:

  • To improve quality of life for adults and children affected by mitochondrial disease.
  • To internationally raise awareness about mitochondrial disorders, and their relationship to other diseases.
  • To provide specific and practical materials that help patients to manage their symptoms
  • To aggregate and connect the international mitochondrial disease community
  • To engage pharmaceutical industry working toward therapeutic approaches to mitochondrial disorders.
  • To create tools which empower patients and caregivers to be advocates for themselves or their children.
  • To create unique experiential opportunities for adults and children affected by mitochondrial disease.

We strive to offer comprehensive, up-to-date, expert resources, information, and support at no cost to any patient, family, clinician, educator, or member of the community.

We continue to seek multiple ways to offer information such that the resources are accessible and user-friendly for people of all abilities.

We foster relationships with the scientific, academic, research and business community in order to create sustainable support for the mission of MitoAction.

Our Vision

MitoAction’s vision is to create a community of support that reaches every child, adult, and caregiver affected by a mitochondrial disease.

Effective awareness and advocacy will guarantee that every patient has access to specialized care and a network of support and information that improves the journey for every individual affected.

For more information or to get involved with MitoAction, send us an email on our Contact page.


  • About Us
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  • Meet Our Partners
  • Our Team

Upcoming
Events

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Jun 14
8:30 pm - 9:30 pm Event Series

Our Space: A space for young adults to connect and network with Mito and FAODs

Jun 16
12:00 pm - 1:00 pm

Aging with Mito

Jun 16
1:15 pm - 2:15 pm Event Series

Weekly Support Call

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Expert
Series

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Upcoming Presentations

Jun 16
12:00 pm - 1:00 pm

Aging with Mito

View Calendar

Last Presentation

Expert Series: Molecular Bypass Deoxynucleoside Therapy for Thymidine Kinase 2 Deficiency (TK2d)Expert Series:
Presented May 3, 2023

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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